autoimmune pancreatitis

Posted by harper7745 @harper7745, Sun, Sep 8 3:42pm

Does anyone have an autoimmune pancreatitis? Is Mayo Clinic in Jax a good place to start for 2nd opinion?

Hello @harper7745, There is a Mayo Clinic Newsfeed – Rituximab Maintenance Therapy for Autoimmune Pancreatitis that may provide some information for you here: https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/rituximab-maintenance-therapy-for-autoimmune-pancreatitis/

If you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

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@johnbishop

Hello @harper7745, There is a Mayo Clinic Newsfeed – Rituximab Maintenance Therapy for Autoimmune Pancreatitis that may provide some information for you here: https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/rituximab-maintenance-therapy-for-autoimmune-pancreatitis/

If you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

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Thank you for the helpful information. Presently I am on Prednisone for 2 months. Took Prednisone for 2 weeks and MRI showed great improvement, Had the CP stool problem which kind of went away, but came back, so GI put me on Creon. I was losing weight and many stools. I plan to take your advice after this Prednisone Rx is over. Louise Harper

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How does one get an auto immune pancreas? Does that mean I have an autoimmune disease?

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@harper7745

How does one get an auto immune pancreas? Does that mean I have an autoimmune disease?

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Hi Louise @harper7745, I think your question is a good one but as members we are not able to diagnose anyone. We can share our experience and suggestions based on what we have experienced. Have you asked your doctor about your diagnosis?

Mayo Clinic has some information here on Autoimmune pancreatitis – Symptoms & Causes
https://www.mayoclinic.org/diseases-conditions/autoimmune-pancreatitis/symptoms-causes/syc-20369800

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@johnbishop

Hi Louise @harper7745, I think your question is a good one but as members we are not able to diagnose anyone. We can share our experience and suggestions based on what we have experienced. Have you asked your doctor about your diagnosis?

Mayo Clinic has some information here on Autoimmune pancreatitis – Symptoms & Causes
https://www.mayoclinic.org/diseases-conditions/autoimmune-pancreatitis/symptoms-causes/syc-20369800

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Thank you for such an informative website. My doctor diagnosed me with AIP because my MRI so improved after 2 weeks of steroids. But we didn't discuss how you get an AIP. Louise Harper

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