Your best tips for raw food safety post transplant.

Posted by jolinda @jolinda, Aug 3, 2019

Does anyone have good guidelines for eating raw food post transplant. I am specifically interested if anyone remembers the things you were taught about raw fruits and veggies. As an example I was told it is ok to eat prewashed lettuce if you rewash it or that fruit with bumpy skin, like cantaloupe can't be washed well enough to avoid contaminating the fruit when cutting through it.

@rosemarya

Hi, @genocurt. I want to express my belated welcome to Connect. I also want to say congratulations to you and your husband as you celebrate your 3rd month with his lung transplant! I have a liver and kidney (simultaneous tranplant) and am 10 years post transplant.

You have brought up a very interesting and important topic about seeking out practices that are supported by a (your) medical team. As I have listened and observed from other transplant patients over my years as a recipient, I have learned that each individual, each organ, and each doctor/transplant facility has some unique variations on what is required. I want to encourage you to continue to ask questions, and to share your experience here on Connect. I enjoy your point of view and experience because you are in a unique position of speaking as a lung recipient.

I have located some more discussiont that I want to share with you:
– TransplantsLung Transplant Selection
https://connect.mayoclinic.org/discussion/lung-transplant-selection/
– What can I Expect for my Lung Transplant Review?
https://connect.mayoclinic.org/discussion/lung-transplant/
– Browse Connect pages for newsfeed posts from Mayo Clinic experts. You'll also find useful resources and information.
https://connect.mayoclinic.org/pages/
Are you and husband home now? How can I help you to adjust to your new life? I am here for any and all questions.

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Hello Rosemary, thanks for the welcoming message. Yes, we are finally home after spending 3 months in Jacksonville. Adjusting to the "new normal" will take some getting used to, but I think we are coping well. As for many people in this group, preparing food can sometimes be a challenge as we are learning the dos and don'ts of food preparation. We have not been out to eat yet, and I am very careful about what I fix at home. We are also very aware of the environment and its pollutants.
As we said in a previous post, we enjoy reading the posts and participating in this community.

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@genocurt

Hello Rosemary, thanks for the welcoming message. Yes, we are finally home after spending 3 months in Jacksonville. Adjusting to the "new normal" will take some getting used to, but I think we are coping well. As for many people in this group, preparing food can sometimes be a challenge as we are learning the dos and don'ts of food preparation. We have not been out to eat yet, and I am very careful about what I fix at home. We are also very aware of the environment and its pollutants.
As we said in a previous post, we enjoy reading the posts and participating in this community.

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@genocurt,
Being home IS wonderful! We were away from home at Mayo Rochester for 3 months. There is really no reason to go anywhere at all, except for labs, and those are so-o-o tiring in the beginning, aren't they? As a lung recipient, your husband probably wears a mask, which I didn't have to do.
Are you comfortable to run errands and leave him alone?
I recommend naps as required. We scheduled noon – 3:00 as daily quiet times.
Here is feature that I am especially proud of. I think can see that many of us share how we have adjusted to being at home.

-Top Transplant Hacks: Patients Share Their Best Tips and Tricks
https://connect.mayoclinic.org/page/transplant/newsfeed-post/top-transplant-hacks-patients-share-their-best-tips-and-tricks/

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@jolinda

@genocurt
When you say, "As we said in a previous post, we want to follow evidence-based practices and not hearsay.", it kind of implies that the rest of us are in the "hearsay" category, which is unfair. Ideas like a vinegar rinse or specialized cleaning cloth seem like great ideas and based in logic (even though they aren't accompanied by a double-blind study). I have followed what my medical team has told me to the letter and I think most people here do the same. I want us to have an open community where we can share our best practices.
I remember many things being "bad choice" examples like fresh pineapple and cantaloupe were mentioned as unsafe because there was no way to clean the textured, pourous skin without cutting potential bacteria into them. Berries are tricky to clean, great ideas were provided.

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@melinda I fail to see the reason why cantaloupe (or any melon) and pineapple should prove unhealthy. I cut the flesh away from the rind. None of that touches my lips or is ingested. The same with bananas I don't eat the peel. Am I missing something?

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@gaylea1

@melinda I fail to see the reason why cantaloupe (or any melon) and pineapple should prove unhealthy. I cut the flesh away from the rind. None of that touches my lips or is ingested. The same with bananas I don't eat the peel. Am I missing something?

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@gaylea1 I think the problem is that when you cut a melon open, if there is anything bacterial on the skin the knife can carry that through to the meat of the melon. With bananas, you are just peeling, not cutting through the peel.
JK

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@gaylea1

@melinda I fail to see the reason why cantaloupe (or any melon) and pineapple should prove unhealthy. I cut the flesh away from the rind. None of that touches my lips or is ingested. The same with bananas I don't eat the peel. Am I missing something?

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@gaylea1 it's the bacteria that could be on the outside that is introduced to the inside by the knife when you cut it. The more smooth the rind or skin on the melon the easier it is to wash of the bacteria. Pineapple and cantaloupe/muskmelon are rough on the outside and harder to clean.

JoDee

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@jodeej

@gaylea1 it's the bacteria that could be on the outside that is introduced to the inside by the knife when you cut it. The more smooth the rind or skin on the melon the easier it is to wash of the bacteria. Pineapple and cantaloupe/muskmelon are rough on the outside and harder to clean.

JoDee

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@jodeej thanks so much for the clarification action. I hadn't even thought of that. This is why I love you guys so much.

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@genocurt

We did not mean to offend anyone. We were just bombarded with information/misinformation in the house where we stayed and somehow in a support group. We want to make sure that we follow instructions provided by the medical team/nutritionist/infectious disease specialist so that the practices we follow are supported by a medical team. Like you, we thought it was a good idea to buy the cleaning cloth, but we cannot endorse that product based on science. We were told several times by our medical team that my husband could eat cantaloupe and watermelon so long as we scrub the surface very well. They told us not to buy fruits that have been cut in the store, though. We enjoy reading the posts in this community, but we will continue to ask if a particular practice has been recommended by a medical provider.

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@genocurt It is so hard to sort out all of the information, I wish there was a rule book. 🙂
It's great to compare the info each person shares, as was mentioned earlier the guidelines vary from one transplant center to the next and from doctor to doctor. I personally have my local Nephrologist who is from the U of MN and then my Mayo transplant team to bounce ideas off of. I also check in with friends from CA and FL regularly to see what their teams say. So few studies that I know of have been done on Post Transplant Food Safety, which is why we all benefit from comparing notes. I've gotten fabulous ideas from the contributors on this site. I look forward to learning from you too as you share your transplant wisdom. Always something new to learn! 🙂

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@genocurt

Hello Rosemary, thanks for the welcoming message. Yes, we are finally home after spending 3 months in Jacksonville. Adjusting to the "new normal" will take some getting used to, but I think we are coping well. As for many people in this group, preparing food can sometimes be a challenge as we are learning the dos and don'ts of food preparation. We have not been out to eat yet, and I am very careful about what I fix at home. We are also very aware of the environment and its pollutants.
As we said in a previous post, we enjoy reading the posts and participating in this community.

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@genocurt, How are you and your husband getting along now that you are back at home? Are you getting adjusted to your new normal? Has this been an easier or harder adjustment than you had expected?
Rosemary

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Hello Rosemary, thanks for reaching out. We are doing very well. We have been back home for 2 months by now and life is getting easier. We have found our routine and are very happy at our home. We follow very closely the guidelines provided by the medical team and nutritionist from the Mayo Hospital and hope not to get in trouble. We will be back for checkups in November. We hope all is well with you and your group as well.

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@jolinda

@genocurt It is so hard to sort out all of the information, I wish there was a rule book. 🙂
It's great to compare the info each person shares, as was mentioned earlier the guidelines vary from one transplant center to the next and from doctor to doctor. I personally have my local Nephrologist who is from the U of MN and then my Mayo transplant team to bounce ideas off of. I also check in with friends from CA and FL regularly to see what their teams say. So few studies that I know of have been done on Post Transplant Food Safety, which is why we all benefit from comparing notes. I've gotten fabulous ideas from the contributors on this site. I look forward to learning from you too as you share your transplant wisdom. Always something new to learn! 🙂

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My daughter is preparing for a preemptive kidney transplant in early November. She is in her mid twenties and will recover with us in her childhood home. My husband and I are trying to make plans for her diet post transplant. She has general advice from her dietician, but we would like to find an appropriate cookbook. There are many available that are intended for those with kidney disease. I wonder if there is one that is more helpful for her. Can anyone recommend a cookbook specifically for folks with a kidney transplant? Thank you

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@nkdonahue

My daughter is preparing for a preemptive kidney transplant in early November. She is in her mid twenties and will recover with us in her childhood home. My husband and I are trying to make plans for her diet post transplant. She has general advice from her dietician, but we would like to find an appropriate cookbook. There are many available that are intended for those with kidney disease. I wonder if there is one that is more helpful for her. Can anyone recommend a cookbook specifically for folks with a kidney transplant? Thank you

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I had my kidney transplant 18 months ago. I was told that I can eat anything now, other than the few things that don’t work with the immunosuppressants, pomegranates, grapefruit, Seville oranges. I’ve read on here that someone added star fruit. It felt so foreign to not have to be so careful. Of course they strongly recommend a healthy diet. Your daughter and caregiver will meet with a dietitian and will attend a class on healthy eating.

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@cmael

I had my kidney transplant 18 months ago. I was told that I can eat anything now, other than the few things that don’t work with the immunosuppressants, pomegranates, grapefruit, Seville oranges. I’ve read on here that someone added star fruit. It felt so foreign to not have to be so careful. Of course they strongly recommend a healthy diet. Your daughter and caregiver will meet with a dietitian and will attend a class on healthy eating.

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Thank you for your reply! I thought that reducing sodium intake to 2000mg daily would be required. I look forward to getting Moore details from her dietician.

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