Your best tips for raw food safety post transplant.

Posted by jolinda @jolinda, Aug 3, 2019

Does anyone have good guidelines for eating raw food post transplant. I am specifically interested if anyone remembers the things you were taught about raw fruits and veggies. As an example I was told it is ok to eat prewashed lettuce if you rewash it or that fruit with bumpy skin, like cantaloupe can't be washed well enough to avoid contaminating the fruit when cutting through it.

Thanks, Danab. We have always taken our shoes off upon entering the house, but for different reasons. Here is information about C. Difficile from the Mayo Clinic. The major source of contamination with C. difficile bacteria is through "feces spread to food, surfaces, and objects when people who are infected don't wash their hands thoroughly". Here is the site: https://www.mayoclinic.org/diseases-conditions/c-difficile/symptoms-causes/syc-20351691

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@genocurt

Thanks, Danab. We have always taken our shoes off upon entering the house, but for different reasons. Here is information about C. Difficile from the Mayo Clinic. The major source of contamination with C. difficile bacteria is through "feces spread to food, surfaces, and objects when people who are infected don't wash their hands thoroughly". Here is the site: https://www.mayoclinic.org/diseases-conditions/c-difficile/symptoms-causes/syc-20351691

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Yes it always amazes me to see the number of people who don't wash there hands after using the restroom. I always have but i bet at least 50% don't. The main reason was not cdiff for us either. We just like a clean house. Also no footware at all on the carpets but we do have inside sandles for the floors. While in the hospital my room was gown up only and the room was cleaned twice a day with bleach. It was taken very seriously.

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@genocurt

Hi Jolinda, during our last meeting with the ID specialist, we were told we could eat any berries SO LONG as we clean them well by a 1-2 minute cold water wash. We specifically asked about using vinegar and she said it was not necessary. I hope this helps.
On another note, we were told by a transplant patient that she makes everyone take their shoes off when they enter her house. Has anyone heard this advice from a transplant team staff? As we said in a previous post, we want to follow evidence-based practices and not hearsay.
Thanks.

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@genocurt As I said initially, the white vinegar wash was not something the transplant department suggested, but that I learned about later. Whether or not it helps for post-transplant patients I think I will continue doing it. I read it in an article about making berries last longer, the vinegar kills spores and the berries really do last longer before spoiling, so that in itself is a benefit, but it is good to know that just washing them is good enough, which is the same thing my transplant team responded this week when I asked them. It can't hurt.

@danab I went back and looked at my lab reports. This is apparently the range for WBC:
WHITE BLOOD CELL COUNT 3.6 Thousand/uL 3.8 – 10.8 Thousand/uL

As you can see, mine is not quite within range but apparently, it is good enough.
JK

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@contentandwell

@genocurt As I said initially, the white vinegar wash was not something the transplant department suggested, but that I learned about later. Whether or not it helps for post-transplant patients I think I will continue doing it. I read it in an article about making berries last longer, the vinegar kills spores and the berries really do last longer before spoiling, so that in itself is a benefit, but it is good to know that just washing them is good enough, which is the same thing my transplant team responded this week when I asked them. It can't hurt.

@danab I went back and looked at my lab reports. This is apparently the range for WBC:
WHITE BLOOD CELL COUNT 3.6 Thousand/uL 3.8 – 10.8 Thousand/uL

As you can see, mine is not quite within range but apparently, it is good enough.
JK

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@genocurt and @contentandwell
After my transplant I met with a nutritionist several times at Mayo. She personally uses a vinegar/water spray for all her fruits and vegies and she never had a transplant. She considers it safe eating. In the Healing Home at Mayo for six weeks right after my transplant we all used a vinegar and water wash and soak. At home I used the vinegar and water spray for a year and a half and now I simply very carefully wash my fruits, including strawberries and my vegies. I also use a Norvex cloth with anti-biotic silver to wash them as well. One side is rough for the vegies and fruits have a softer cleaning surface. Currently I am 2 1/2 years out from my transplant. Just my story.

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@estrada53

@genocurt and @contentandwell
After my transplant I met with a nutritionist several times at Mayo. She personally uses a vinegar/water spray for all her fruits and vegies and she never had a transplant. She considers it safe eating. In the Healing Home at Mayo for six weeks right after my transplant we all used a vinegar and water wash and soak. At home I used the vinegar and water spray for a year and a half and now I simply very carefully wash my fruits, including strawberries and my vegies. I also use a Norvex cloth with anti-biotic silver to wash them as well. One side is rough for the vegies and fruits have a softer cleaning surface. Currently I am 2 1/2 years out from my transplant. Just my story.

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The cloth is anti- bacterial, anti-biotic. Duh!

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@estrada53

The cloth is anti- bacterial, anti-biotic. Duh!

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@estrada53 Where do you purchase these cloths?

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You can buy Norwex online – amazon – or their website. It actually is NORWEX. I received this particular cloth from a friend who sells these products at parties, like the old Tupperware events. I have other cleaning cloths from Norwex as well.

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Thanks, @estrada53 I just went to Amazon and added it to my cart. I will include it with my next order. I have ordered two times from there in the last two days! I really hate not patronizing local stores but sometimes it's just not possible, and often the prices on Amazon are significantly better.
JK

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@genocurt

Hi Jolinda, during our last meeting with the ID specialist, we were told we could eat any berries SO LONG as we clean them well by a 1-2 minute cold water wash. We specifically asked about using vinegar and she said it was not necessary. I hope this helps.
On another note, we were told by a transplant patient that she makes everyone take their shoes off when they enter her house. Has anyone heard this advice from a transplant team staff? As we said in a previous post, we want to follow evidence-based practices and not hearsay.
Thanks.

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@genocurt
When you say, "As we said in a previous post, we want to follow evidence-based practices and not hearsay.", it kind of implies that the rest of us are in the "hearsay" category, which is unfair. Ideas like a vinegar rinse or specialized cleaning cloth seem like great ideas and based in logic (even though they aren't accompanied by a double-blind study). I have followed what my medical team has told me to the letter and I think most people here do the same. I want us to have an open community where we can share our best practices.
I remember many things being "bad choice" examples like fresh pineapple and cantaloupe were mentioned as unsafe because there was no way to clean the textured, pourous skin without cutting potential bacteria into them. Berries are tricky to clean, great ideas were provided.

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We did not mean to offend anyone. We were just bombarded with information/misinformation in the house where we stayed and somehow in a support group. We want to make sure that we follow instructions provided by the medical team/nutritionist/infectious disease specialist so that the practices we follow are supported by a medical team. Like you, we thought it was a good idea to buy the cleaning cloth, but we cannot endorse that product based on science. We were told several times by our medical team that my husband could eat cantaloupe and watermelon so long as we scrub the surface very well. They told us not to buy fruits that have been cut in the store, though. We enjoy reading the posts in this community, but we will continue to ask if a particular practice has been recommended by a medical provider.

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@genocurt

We did not mean to offend anyone. We were just bombarded with information/misinformation in the house where we stayed and somehow in a support group. We want to make sure that we follow instructions provided by the medical team/nutritionist/infectious disease specialist so that the practices we follow are supported by a medical team. Like you, we thought it was a good idea to buy the cleaning cloth, but we cannot endorse that product based on science. We were told several times by our medical team that my husband could eat cantaloupe and watermelon so long as we scrub the surface very well. They told us not to buy fruits that have been cut in the store, though. We enjoy reading the posts in this community, but we will continue to ask if a particular practice has been recommended by a medical provider.

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Hi, @genocurt. I want to express my belated welcome to Connect. I also want to say congratulations to you and your husband as you celebrate your 3rd month with his lung transplant! I have a liver and kidney (simultaneous tranplant) and am 10 years post transplant.

You have brought up a very interesting and important topic about seeking out practices that are supported by a (your) medical team. As I have listened and observed from other transplant patients over my years as a recipient, I have learned that each individual, each organ, and each doctor/transplant facility has some unique variations on what is required. I want to encourage you to continue to ask questions, and to share your experience here on Connect. I enjoy your point of view and experience because you are in a unique position of speaking as a lung recipient.

I have located some more discussiont that I want to share with you:
– TransplantsLung Transplant Selection
https://connect.mayoclinic.org/discussion/lung-transplant-selection/
– What can I Expect for my Lung Transplant Review?
https://connect.mayoclinic.org/discussion/lung-transplant/
– Browse Connect pages for newsfeed posts from Mayo Clinic experts. You'll also find useful resources and information.
https://connect.mayoclinic.org/pages/
Are you and husband home now? How can I help you to adjust to your new life? I am here for any and all questions.

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