Would like to know people's experience using Fosamax

Posted by dschiff @dschiff, Mar 30, 2016

Would like to know people's experience using Fosamax.

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@mtran88788

I have been on weekly Fosamax since April 2022. I have no side effects. Within 6 weeks of being on the med, pain in my Right hip subsided. Before that I was having hip pain just from standing up. The physical therapist that I worked with at the time determined that the pain was from the osteoporosis because I had no pain when sitting or lying down. That prompted me to decide to seek treatment. I recently had a DEXA scan with TBS in October 2023. Compared to the DEXA from 2021, the results now show that I have osteopenia which is an improvement. TBS is 1.22 meaning bone is “ partially degraded “. Since this is the first TBS, I’ll have to wait until the next one in October 2024 to know more. I had to see an endocrinologist in order to have a DEXA with TBS.
In addition to the Fosamax I also take supplements : Fortibone + collagen type 1&3, vit D and K … I walk 2-2.5 miles with interspersed stomping steps a few times weekly. I also use the Marodyne daily when not traveling. As much as possible I adhere to a bone healthy diet and stay away from processed foods. I recently saw the dentist and there is no deterioration in jaw bones.
I plan to stay on the Fosamax until the next DEXA + TBS in October 2024 then will take things from there.
Sorry for the long post. I hope it helps. Everyone is different so we all have to decide what’s best for each of us depending on each person’s situation.

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Interesting my rheumatologist just told me osteoporosis is silent not painful. Pain is from osteoarthritis 2 different problems

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@busyyaya

Interesting my rheumatologist just told me osteoporosis is silent not painful. Pain is from osteoarthritis 2 different problems

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It’s correct that osteoporosis and osteoarthritis are two different conditions. When you were told that osteoporosis is “ SILENT “ = NO PAIN, I’m sure it applies to most people. IMHO, in many instances there are always people who don’t fit into the general picture. I remember clearly having hip pain just from walking around the house then one day in June 2022, standing in my kitchen I realized the pain is gone. To me it makes sense. An osteoporotic/weaker femur is stressed supporting the body weight => pain. I’m not saying that Fosamax is a miracle drug, far from that. I’m grateful that I don’t have any side effects and it works for me in conjunction with supplements, diet, exercise…Additional details: I started Fortibone and Marodyne LIV in May 2023. Prior to Fosamax, I was on bio identical HRT for 2 years.

Check out these links
https://www.princetonpainandspine.com/blog/can-osteoporosis-cause-joint-pain
https://www.uwmedicine.org/conditions-symptoms/bone-joint-muscle/osteoporosis

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I took Fosomax for 2 years knowing a big fusion of my back was in my future. I had no symptoms taking it.

Now, 5 years post surgery, I have a lot of pain from it.

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@oretsina

Yes, a referral was needed and my primary said a referral would probably only yield a confirmation. I switched primary physicians and the new doctor felt that it was too soon to medicate with one area at -1.9 and the rest higher.

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What were your highest numbers
Thank you,karen

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@allthatjaz

What were your highest numbers
Thank you,karen

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-0.7 on lumbar spine.

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I have only been on Fosamax for 3 months and so far no side effects. I was fearful to take it based on possible side effects & other concerns about its impact on bone. Felt between a rock and a hard place & decided to try it.

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@desertrios

I have only been on Fosamax for 3 months and so far no side effects. I was fearful to take it based on possible side effects & other concerns about its impact on bone. Felt between a rock and a hard place & decided to try it.

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I took fosamax for the recommended limit of 5 years, no apparent side effects at the time. A couple of years after I stopped taking it, I found that I had developed osteonecrosis in my jaw. It's not a common side effect, but it does happen. Like you said, it's like being between a rock and a hard place.

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@suzamo

I took fosamax for the recommended limit of 5 years, no apparent side effects at the time. A couple of years after I stopped taking it, I found that I had developed osteonecrosis in my jaw. It's not a common side effect, but it does happen. Like you said, it's like being between a rock and a hard place.

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Thx for sharing your experience. I’m taking note of it, for sure. Sending good energies to you.

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I have been on Fosomex now for two years. So far, so good. I have not had any side effects. I am so sorry for those of you who could not tolerate this drug. So many side effects to these drugs today that we need to take! My doctor told me that I have to stay on this drug for five years. Just hoping that side effects do not occur. For now, I will keep on taking it. Thank you all for such informative posts.

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@suzamo

I took fosamax for the recommended limit of 5 years, no apparent side effects at the time. A couple of years after I stopped taking it, I found that I had developed osteonecrosis in my jaw. It's not a common side effect, but it does happen. Like you said, it's like being between a rock and a hard place.

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I'm so sorry to hear that. I hope your dr has helped you thru it & you are better now. Have you gone another drug? I'd be so afraid to try another biophospate. I like the bone building drugs but you can only be on them for so long.

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