Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@leticia

Good morning ladies, I am new to this group, but see myself in all your posts. I have been dealing with Fibro for twenty years. Nine years ago I was diagnosed with breast cancer. I Had several surgeries along with six rounds of chemo. Presently, I have daily chronic pain — lower back (if I overdo It) arthritis in both knees (the last six years I’ve been getting either steroid shots, or the sinvisc shots), neuropathy in both my feet (from chemo). My overall pain has gotten worst since chemo (I’m sure aging has also been a contributing factor too). Years ago I took between four – six Percocet a day. For almost two years now, I only take half a pill in the mornings. As most of you can imagine, dealing with all this starts to affect your emotional and mental wellbeing. I’ve seen counsellors at several different times. I do yoga and have been for at least 15 years now, I get massages every other week, and currently started acupuncture for my neuropathy (I feel fortunate to say — it’s working). I have been dealing with all this for so many years now, and I can honestly say I’m in a bad place emotionally right now. I take Ativan once a day to help wth anxiety stemming from all this. I am blessed to say I have a supportive husband in all this although I was never blessed with children. All my family member live far away. The friends I do have, I don’t like to burden them too much with my situation. The fact is that my life very much has become “dealing with my health concerns with much resting in between”. Not too many healthy people want to listen to your issues. It’s a bad place to be. Thank you for listening.

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@leticia Hi. You sure have been through the “wringer”, so to speak. I have some similar issues – fibro, RA, Sjogren’s, Lupus, spinal stenosis, PTSD, restless leg, depression. I have been on antidepressants for years. I do find them very helpful. I have never had cancer or had to deal with the problems of chemo. I am so sorry you have gone through so much. Yes, at times it gets totally overwhelming and we stumble emotionally. Don’t be too hard on yourself, as it is to be expected from time to time. And you may be short changing your friends – perhaps there is one or more who genuinely want to listen to you and let you vent about your pain and circumstances? I know I have friends like that and I, in turn, listen to them. Of course, every time I talk with them isn’t totally about my pain and medical woes. I talk about positives, too, be they working in a garden or something silly my dog did or an interesting movie I saw. I also try to keep a daily blessing journal and remind myself of what I DO have instead of all the things I don’t. I can walk – blessing! I have air conditioning – blessing! I have a good husband – blessing! I do not live in a third world country suffering from these conditions with no easy access to medical care – blessing! I also try to swim two or three times a week and recently purchased a treadmill so I can walk regardless of the weather. Sometimes, however, listening to up beat music and other things just doesn’t cute it. At those times, allow yourself to feel it for a while. Be upset that life has handed you some truly bum cards! Realize that you don’t always have to be “Susie Sunshine”. Cry – it’s okay. Let it out. Then pull yourself together, have a warm bath, and go back to putting one foot in front of the other. Sometimes we forget that we don’t always have to have a “stiff upper lip”. If your husband is supportive, go ahead and break down with him. Tell him just to hold you and not say anything. Just give you a moment to cry and be mad about all of it. You’ll be okay. You have dealt with this stuff for years. Sometimes I think our emotions get stuffed inside and become toxic when we don’t – at times – acknowledge them and release them. Even writing yourself a letter about how angry and sad and hurt you are and then reading it and burning it or flushing it down the toilet can give you relief. I pray you feel better soon! Hugs!

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@leticia

Good morning ladies, I am new to this group, but see myself in all your posts. I have been dealing with Fibro for twenty years. Nine years ago I was diagnosed with breast cancer. I Had several surgeries along with six rounds of chemo. Presently, I have daily chronic pain — lower back (if I overdo It) arthritis in both knees (the last six years I’ve been getting either steroid shots, or the sinvisc shots), neuropathy in both my feet (from chemo). My overall pain has gotten worst since chemo (I’m sure aging has also been a contributing factor too). Years ago I took between four – six Percocet a day. For almost two years now, I only take half a pill in the mornings. As most of you can imagine, dealing with all this starts to affect your emotional and mental wellbeing. I’ve seen counsellors at several different times. I do yoga and have been for at least 15 years now, I get massages every other week, and currently started acupuncture for my neuropathy (I feel fortunate to say — it’s working). I have been dealing with all this for so many years now, and I can honestly say I’m in a bad place emotionally right now. I take Ativan once a day to help wth anxiety stemming from all this. I am blessed to say I have a supportive husband in all this although I was never blessed with children. All my family member live far away. The friends I do have, I don’t like to burden them too much with my situation. The fact is that my life very much has become “dealing with my health concerns with much resting in between”. Not too many healthy people want to listen to your issues. It’s a bad place to be. Thank you for listening.

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that should be “cut” NOT cute!

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@kelseydm, hi. My name is Judy. Im not new to Mayo but haven’t been here in a couple of months. I have type 2 diabetes, hypothyroidism, gastroparesis, arthritis,lichen sclerosis, and a heart attack last September. Since i have so much inflammation going on i thought i might try hemp seed oil or maybe CBD. I was wondering if anyone in this group had experience with it.
Any info would be appreciated. Thanks, Judy
Or Danybegood1
Y

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@danybegood1

@kelseydm, hi. My name is Judy. Im not new to Mayo but haven’t been here in a couple of months. I have type 2 diabetes, hypothyroidism, gastroparesis, arthritis,lichen sclerosis, and a heart attack last September. Since i have so much inflammation going on i thought i might try hemp seed oil or maybe CBD. I was wondering if anyone in this group had experience with it.
Any info would be appreciated. Thanks, Judy
Or Danybegood1
Y

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Maybe one of the monitors of this website could give you a link back to our discussion on this CBD subject. It was extensively talked about just in the last couple days. I’m not sure how to go back to it. You read it I’m sure anybody would be willing to answer questions that you might still have if we can.

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CBD discussion can be found here:
https://connect.mayoclinic.org/discussion/cbd/bookmark/?ajax_hook=action&_wpnonce=dddf891284
Tip: If you click the Search icon at the top of the window (small magnifying glass) and type a search word then press the Enter key, it will bring up a list of links for you.

Hope this helps…John

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@lizer

I’m Elizabeth. I’ve had fibromyalgia since 1998. In the last few years, I’ve developed osteoarthritis and spinal stenosis. I am married with four adult children and a wonderful, caring husband. We also have a wee dog, Bella, who forces me outside for walks twice a day. Lately, managing the FM symptoms has seemed like a full time job and I’m in need of some serious motivation.

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@blindeyepug I really enjoy your balanced approach to life! You continue to discuss an exceptional box of tools for dealing with your problems – you must be a very creative person! Are you an artist or musician? Teresa

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@lizer

I’m Elizabeth. I’ve had fibromyalgia since 1998. In the last few years, I’ve developed osteoarthritis and spinal stenosis. I am married with four adult children and a wonderful, caring husband. We also have a wee dog, Bella, who forces me outside for walks twice a day. Lately, managing the FM symptoms has seemed like a full time job and I’m in need of some serious motivation.

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Hi Teresa. I have a regular job in law, but considered myself an unpublished writer! LOL.(I have written two novels and a series of short stories. My genre tends to lean toward Stephen King territory.) My mother and one of my sisters are extremely talented artists. I am a voracious reader, and have been in and out of therapy over the years. I have learned to try things suggested or which I have read about and discard the ones that don’t work for me. I also believe God gives me the strength to keep on keeping on!

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@johnbishop

CBD discussion can be found here:
https://connect.mayoclinic.org/discussion/cbd/bookmark/?ajax_hook=action&_wpnonce=dddf891284
Tip: If you click the Search icon at the top of the window (small magnifying glass) and type a search word then press the Enter key, it will bring up a list of links for you.

Hope this helps…John

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has anyone ever heard of a hyperbaric chamber for results?

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@johnbishop

CBD discussion can be found here:
https://connect.mayoclinic.org/discussion/cbd/bookmark/?ajax_hook=action&_wpnonce=dddf891284
Tip: If you click the Search icon at the top of the window (small magnifying glass) and type a search word then press the Enter key, it will bring up a list of links for you.

Hope this helps…John

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I had not heard of it but did find some information on Mayo Clinic’s website:
http://www.mayoclinic.org/tests-procedures/hyperbaric-oxygen-therapy/basics/why-its-done/prc-20019167
Hopefully others can share their experience with it.

John

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The Mayo source is good and FDA approves bariatric oxygen therapy for 13 diagnoses. Most seem to be related to healing of wounds. I do know that when the barometric pressure is high….I have less pain, and when it is low, when a storm cell comes through….my pain increases and I usually end up in bed until the weather system moves out of the area.

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@johnbishop

CBD discussion can be found here:
https://connect.mayoclinic.org/discussion/cbd/bookmark/?ajax_hook=action&_wpnonce=dddf891284
Tip: If you click the Search icon at the top of the window (small magnifying glass) and type a search word then press the Enter key, it will bring up a list of links for you.

Hope this helps…John

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Thanks for looking that up. Hopefully my insurance will cover it and I will give it a try since that is what I had originally. But it has been so many years ago but that is what a foot doctor suggested. Will let you guys no what happens.

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@lizer

I’m Elizabeth. I’ve had fibromyalgia since 1998. In the last few years, I’ve developed osteoarthritis and spinal stenosis. I am married with four adult children and a wonderful, caring husband. We also have a wee dog, Bella, who forces me outside for walks twice a day. Lately, managing the FM symptoms has seemed like a full time job and I’m in need of some serious motivation.

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@blindeyepug Your list of interests and talents do not surprise me at all! I appreciate the way you continue to share with others your ideas for coping and moving forward. The idea of trying new ideas and discarding that which doesn’t work, is a great plan. I know that these are hard-learned lessons. Teresa

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@marield65

Hi Vickie, I have chronic pain, and even if it you don’t want to hear it, they are using marijuana more and more for it. It is getting so hard to get any opiods for the pain, and the Drs are pumping up the medical marijuana. What about it bothers you? I tried the marijuana, and it made me paranoid, but for many people it is the only thing that helps. They are talking about putting it in the elderly patients food because they could tolerate it better and you don’t get all the side effects of the pain meds. Are you on pain meds? I am on Vicodin, and have to go to a pain clinic to get it as my Doctor won’t prescribe it, and there are days I don’t need it so I don’t take it, but then they give you less pills at the pain clinic. But you don’t know when you are going to need it so it is good to have a months refill, but they are afraid you are going to sell it instead of taking it. I think at 71 years old I am not in the business of making money, I just want to help myself, and keep my stress level down, but my fear is someday I won’t be able to even get the Vicodin for my pain. How do you feel when you are in pain?marield65

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I have the same fear that they’ll take away my Vicodin, now called Norco because they reduced the amt of Tylenol.It is the only thing that takes my pain away, and I only take one a day so I can get some physical household chores done. Some days I don’t even take one, Hoping one Advil and heating pad will help before I get out of bed.

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@artscaping Is bariatric oxygen therapy the same thing they use for burn victims? There is a hospital in a small town in Maine that we go through on our way to our “camp” that specializes in that. Who would ever think that a small town hospital would have that? I presume it is primarily in larger medical centers.
JK

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@contentandwell

@artscaping Is bariatric oxygen therapy the same thing they use for burn victims? There is a hospital in a small town in Maine that we go through on our way to our “camp” that specializes in that. Who would ever think that a small town hospital would have that? I presume it is primarily in larger medical centers.
JK

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Not necessarily…some physicians have the units in their offices. You can even buy units for your home. I think the oxygen therapy is what is used for burn victims but I am not an expert. My former husband was treated for bladder cancer from radiation with bariatric chamber visits daily for 6 weeks. A former employer worked for a physician who had a unit in his office.

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