Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@sharonmay7

Yes if anyone has ideas of how we can get the attention of higher ups… Please let us know !! Every time I here somethings about pain pills it is always negative. I bet there r more people helped then hurt! Sharonmay7

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Sharon I couldn’t agree more.

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@sharonmay7

Yes if anyone has ideas of how we can get the attention of higher ups… Please let us know !! Every time I here somethings about pain pills it is always negative. I bet there r more people helped then hurt! Sharonmay7

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I absolutely had gotten to the point where they were hurting me. I’m living proof of it. And I am in no joke I was very serious pain patient. Many many broken bones many many surgeries. Two serious accidents that have affected my neck my back my lower back and my left shoulder. I’ve been on pain medication in various doses for years and they’ve been changed to try to be more effective. You do eventually, maybe not everyone, but most people hit a brick wall. They no longer work, you have to take more and more, you feel like a zombie and they affect your G.I. tract to the point where I wasn’t able to even eat a meal anymore I would throw it up. Please people don’t discounts how you would feel if you are on pain pills every single day and multiple types, how you would feel if you got off alarms. Believe it or not my pain is less and much more tolerable. It’s there I know it, But I’m trying to present a positive picture here not a negative one. I’m finding ways to deal with this but I didn’t even know existed or had barely tried. And when I did try them I was on so much medication that they didn’t stand a chance of working. I know where my injuries are I can still feel them, but they are less intense and their pain and are now being controlled by injections. I’m just trying to be helpful.

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Hi to all. I am 72 Y.O. and have 3 different forms of Arthritis – including Psoriatic Arth. Dx’d about 5 yrs. ago. I retired 6 months ago, in part, to better attend to physical therapy and exercises more consistently. I am allergic to NSAIDs and thus limited to either Tylenol or Opiate category meds. for pain. I have a variety of hobbies which I will be able to get more into now. There are various other medical issues which impact each other and contributes to some depression. Without Methotrexate and Enbrel I would not be able to function, I could hardly open my car door prior to those medications. I live in the metro-Chicago area and have limited ability to walk on the driveway when it is icy/slippery in Winter and my wife is left with doing the snow removal (she’s younger than I am). I help when I can, which varies according to the whims of my conditions. I hope all the readers/members of this group find the support, help and relief they seek.

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@smiles2016

Hi to all. I am 72 Y.O. and have 3 different forms of Arthritis – including Psoriatic Arth. Dx’d about 5 yrs. ago. I retired 6 months ago, in part, to better attend to physical therapy and exercises more consistently. I am allergic to NSAIDs and thus limited to either Tylenol or Opiate category meds. for pain. I have a variety of hobbies which I will be able to get more into now. There are various other medical issues which impact each other and contributes to some depression. Without Methotrexate and Enbrel I would not be able to function, I could hardly open my car door prior to those medications. I live in the metro-Chicago area and have limited ability to walk on the driveway when it is icy/slippery in Winter and my wife is left with doing the snow removal (she’s younger than I am). I help when I can, which varies according to the whims of my conditions. I hope all the readers/members of this group find the support, help and relief they seek.

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Hello @smiles2016, welcome to Mayo Connect! Thank you for sharing with us. I think you are taking some good steps with the physical therapy and exercises. At our age that is extremely important – you have to keep moving. Connect is a great place to ask health related questions and hopefully get answers from folks with similar health issues.

Do you have any questions you would like to ask the other Connect members?

John

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@smiles2016

Hi to all. I am 72 Y.O. and have 3 different forms of Arthritis – including Psoriatic Arth. Dx’d about 5 yrs. ago. I retired 6 months ago, in part, to better attend to physical therapy and exercises more consistently. I am allergic to NSAIDs and thus limited to either Tylenol or Opiate category meds. for pain. I have a variety of hobbies which I will be able to get more into now. There are various other medical issues which impact each other and contributes to some depression. Without Methotrexate and Enbrel I would not be able to function, I could hardly open my car door prior to those medications. I live in the metro-Chicago area and have limited ability to walk on the driveway when it is icy/slippery in Winter and my wife is left with doing the snow removal (she’s younger than I am). I help when I can, which varies according to the whims of my conditions. I hope all the readers/members of this group find the support, help and relief they seek.

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@smiles2016 Hi, I hope the medications you can take help you to feel consistently better. I too am limited to what I can take, basically just tylenol unless something happens that causes acute pain. Let’s face it, Tylenol is not the the greatest help, yet it is better than nothing on those nights when my knees are throbbing from too much exercise — one was replaced a few years ago and the other is scheduled to be done in October.
If your knees are part of your arthritic problem has anyone suggested a knee replacement? I am bone-on-bone so need it really. Since it is not until October I plan to make some appointments for the series of three synvisc shots.
My husband has to do most of the heavy work, and he is not younger than I am, he was 82 yesterday. He is amazing for his age though.
I lived in Chicago for about 4 months on assignment when I was single, in an apartment hotel on the street next to the John Hancock, a couple of blocks closer to the lake. I loved it there and anytime you are on an expense account it makes it very simple. It was a fun city for a single person.
JK

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I’m Elizabeth. I’ve had fibromyalgia since 1998. In the last few years, I’ve developed osteoarthritis and spinal stenosis. I am married with four adult children and a wonderful, caring husband. We also have a wee dog, Bella, who forces me outside for walks twice a day. Lately, managing the FM symptoms has seemed like a full time job and I’m in need of some serious motivation.

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@leticia

Good morning ladies, I am new to this group, but see myself in all your posts. I have been dealing with Fibro for twenty years. Nine years ago I was diagnosed with breast cancer. I Had several surgeries along with six rounds of chemo. Presently, I have daily chronic pain — lower back (if I overdo It) arthritis in both knees (the last six years I’ve been getting either steroid shots, or the sinvisc shots), neuropathy in both my feet (from chemo). My overall pain has gotten worst since chemo (I’m sure aging has also been a contributing factor too). Years ago I took between four – six Percocet a day. For almost two years now, I only take half a pill in the mornings. As most of you can imagine, dealing with all this starts to affect your emotional and mental wellbeing. I’ve seen counsellors at several different times. I do yoga and have been for at least 15 years now, I get massages every other week, and currently started acupuncture for my neuropathy (I feel fortunate to say — it’s working). I have been dealing with all this for so many years now, and I can honestly say I’m in a bad place emotionally right now. I take Ativan once a day to help wth anxiety stemming from all this. I am blessed to say I have a supportive husband in all this although I was never blessed with children. All my family member live far away. The friends I do have, I don’t like to burden them too much with my situation. The fact is that my life very much has become “dealing with my health concerns with much resting in between”. Not too many healthy people want to listen to your issues. It’s a bad place to be. Thank you for listening.

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Welcome @leticia and @ayankeeinnm.
I invite you to explore the conversations in the Chronic Pain group as well as related groups, such as Bones, Joints & Muscles, Breast Cancer and Mental Health. You’ll find the directory of groups here: https://connect.mayoclinic.org/groups/

Here are a few specific conversations you may be interested in joining:
– fibromyalgia pain https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/
– What Distracts You From the Pain? https://connect.mayoclinic.org/discussion/what-distracts-you-from-the-pain/
– Anyone here dealing with peripheral neuropathy? https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/
– Has anybody had an implantable neurostimulator for chronic pain? https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/
– Multiple Sclerosis (MS) – please introduce yourself https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/

Happy CONNECTing.

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hi Jim @powerl2017,
What did you learn at the seminar on stem cells? How did you evalution go?

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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@powerl2017, @jenapower, @19lin
The Center for Regenerative Medicine at Mayo Clinic offers a free telephone Consult Service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Thank you for asking that Jim. I’d love to also hear cause I only have the information I collected. Jennifer

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Thank you so much Colleen! That’s exactly what I needed. Asking every source I know for information because I don’t want to do something stupid, but I know it takes the FDA a long time to approve things. Love to be in a trial. I will read all of that and call the information line thank you so much, Jennifer

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Not having much luck with computers today. I just use your link and went everywhere I can find, could find only a general number, specific numbers for problems I’m not talking about, I found no consult phone number for general questions unless it’s just the general line.

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Jena, the number should be 1-844-276-2003. Did it not work?

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@lizer

I’m Elizabeth. I’ve had fibromyalgia since 1998. In the last few years, I’ve developed osteoarthritis and spinal stenosis. I am married with four adult children and a wonderful, caring husband. We also have a wee dog, Bella, who forces me outside for walks twice a day. Lately, managing the FM symptoms has seemed like a full time job and I’m in need of some serious motivation.

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Welcome Elizabeth,
So good to meet you. Here are a few discussions I think you’ll be interested in joining.
– fibromyalgia pain https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/
– What Distracts You From the Pain? https://connect.mayoclinic.org/discussion/what-distracts-you-from-the-pain/
– Treating osteoperosis https://connect.mayoclinic.org/discussion/hi-im-new-to-the-site-and-am-interested-in-treating-osteoperosis/

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hey I’m a dumb bell, the phone number is at the bottom of her link. I did speak to them and because I’m in California and they’re in Rodchester Minnesota they’re pretty much gone for the day, so there’s a 0-3 hour time difference depending on where you’re located.
844-276-2003

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