Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@lioness

@grandmar my nerves into my thighs are damaged from back fracture I found a nerve cream that really helps me its called My Pain Away Fibro cream by Topricin I get it at CVS.Its also good for neuropathy once a day and usually no more then this And 3% goes to research in fibromyalgia.

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@lioness I wonder if this cream might help with severe leg cramps. I have been getting those quite a bit. I am trying hard to make absolutely, positively sure that I drink plenty of water. I am supposed to drink 80 – 100 ounces a day to combat the potential damage to my kidneys that the immunosuppressants can cause and most days I do achieve that.
JK

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@contentandwell

@lioness I wonder if this cream might help with severe leg cramps. I have been getting those quite a bit. I am trying hard to make absolutely, positively sure that I drink plenty of water. I am supposed to drink 80 – 100 ounces a day to combat the potential damage to my kidneys that the immunosuppressants can cause and most days I do achieve that.
JK

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@Contantandwell I dont know never tried it but I know what works pickle juice leg cramps are gone right away or eat a pickle at bedtime The other is mustard If you try it let me know

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@lioness

@Contantandwell I dont know never tried it but I know what works pickle juice leg cramps are gone right away or eat a pickle at bedtime The other is mustard If you try it let me know

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If you’re having leg cramps it means your low on electrolytes so yal need to make sure you get the flavored water at grocery store that will say electrolytes are added in it . That will definitely stop them . I use to have them and that fixed it .

Liked by lioness

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@jfsherley

If you’re having leg cramps it means your low on electrolytes so yal need to make sure you get the flavored water at grocery store that will say electrolytes are added in it . That will definitely stop them . I use to have them and that fixed it .

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Omg..re leg pain. Thank you. Will do it. Also I wear heavy leg stockings at night when having pain. The minute I put them on, pain lessons.

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Hi! I have good days and not-so-good days, or sometimes hours that I am able to function and hours I cannot. I am dealing with pain from spinal stenosis, scoliosis, kephosis, herniated bulging and retropulsed discs. I have had five spontaneous spinal fractures with no known cause; I do not have osteoporosis. Frequent shingles, UTIs and bronchitis. I also have Lyme and co-infections which were undiagnosed for 3 1/2 years which destroyed my digestive system and caused respiratory problems, muscle cramping and neuropathy (the muscle cramping and neuropathy have resolved with meds for Lyme.) I try to do my best, fix my hair and wear a little makeup when I'm up to it. As a result, many people say "But you look great!" Yeah, just don't come look at my house. What do you answer to that?

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I Have a pain pump inserted in my abdomen. It drips a small, (very small) dose of narcotics into a catheter that runs up my spin. Prior to that my back pain was crippling even with huge doses of Oxycontin. I, like you, have many issues with my back, there is very little of it that looks as it was intended to look. I still can't walk without a cane or walker but my pain is very bearable and i have most of my life back. I did have had Lyme's in the early 80's however my cramping and neuropathy were the result of heavy chemo when I had cancer. I take Lyrica, 300mg. x 2 per day and Amitriptyline, 25mg x1 per day for the neuropathy and Baclofen, 20 mg. 1x per day for the cramping. I play the guitar and sing 2 hours per day minimum, I go to the gym for one hour on a nustep recumbent cross trainer and I cook two meals a day for my wife and son. There is always hope. we are not supposed to recommend anything on this venue but you really should look into the pain pump. A dose of meds delivered via the pump is 300 times more effective than the same dose taken orally. Because of the small dose the side effect and addiction problems do not come up. I get my pump refiled every 3 to 4 months in a 5 minute procedure at my doctors office and it is painless. Check it out. Love and Blessings.

Liked by marychapman

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Hello..thanks for the warm welcome.
I'm 63 yr old dreamer of being pain free some day…i have pain 24/7…intensity goes up n down throughout the day. I have many diagnosis that has brought me to my knees with pain..litterally. it's been ongoing for long time. Was forced to leave nursing after 25 years due to my health. Was very active prior to my disability..Have had numerous surgeries….hoping to b able to converse with other people that are in chronic pain n can relate .Dx's..arthritis..sm nerve neuropathy..pelvic floor neuropathy 2nd to pelvic surgeryx3 made worse by each surgery…left with mesh to keep things together but made things so much worse..another to remove n repair..left with more pain..1 hip replaced other one needs to b replaced like now..but refusing to get it done for now..also spinal stenosis with lot of degenerate disk disease..anemia….etc..last one is fibromyalgia..lot of tests n treatments done with no relief. Traveled to different hospitals n seen by different doctors…now I say I'm done with it all..whats done is done ..i can't go back. Just trying to live with the new me which has been extremely hard..my mind races like I'm 26 but my body feels like it's 106 yrs old..the golden years..not what i planned for retirement…one day at a time..continue to stay strong n pray..i will. Looking forward to getting to know everyone here……dreamer 🌈somewhere over that rainbow….
.

Liked by lioness

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@sarahtoo

Hi! I have good days and not-so-good days, or sometimes hours that I am able to function and hours I cannot. I am dealing with pain from spinal stenosis, scoliosis, kephosis, herniated bulging and retropulsed discs. I have had five spontaneous spinal fractures with no known cause; I do not have osteoporosis. Frequent shingles, UTIs and bronchitis. I also have Lyme and co-infections which were undiagnosed for 3 1/2 years which destroyed my digestive system and caused respiratory problems, muscle cramping and neuropathy (the muscle cramping and neuropathy have resolved with meds for Lyme.) I try to do my best, fix my hair and wear a little makeup when I'm up to it. As a result, many people say "But you look great!" Yeah, just don't come look at my house. What do you answer to that?

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@saratoo. Tell them your maid,s cleaning today

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@dreamer63

Hello..thanks for the warm welcome.
I'm 63 yr old dreamer of being pain free some day…i have pain 24/7…intensity goes up n down throughout the day. I have many diagnosis that has brought me to my knees with pain..litterally. it's been ongoing for long time. Was forced to leave nursing after 25 years due to my health. Was very active prior to my disability..Have had numerous surgeries….hoping to b able to converse with other people that are in chronic pain n can relate .Dx's..arthritis..sm nerve neuropathy..pelvic floor neuropathy 2nd to pelvic surgeryx3 made worse by each surgery…left with mesh to keep things together but made things so much worse..another to remove n repair..left with more pain..1 hip replaced other one needs to b replaced like now..but refusing to get it done for now..also spinal stenosis with lot of degenerate disk disease..anemia….etc..last one is fibromyalgia..lot of tests n treatments done with no relief. Traveled to different hospitals n seen by different doctors…now I say I'm done with it all..whats done is done ..i can't go back. Just trying to live with the new me which has been extremely hard..my mind races like I'm 26 but my body feels like it's 106 yrs old..the golden years..not what i planned for retirement…one day at a time..continue to stay strong n pray..i will. Looking forward to getting to know everyone here……dreamer 🌈somewhere over that rainbow….
.

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@dreamer63 Hello welcome to this wonderful group we all have problems of some kind Im a retired nurse after35 yrs fractured L2 on the job so this did me in retirement called I have fibromyalgia,bulging disc spondylitis and o.a.all through me Besides the reg.med I do holistic meds also I found ginger -Tumeric tea helps me Ginger for your stomach and Tumeric for inflammation works great So far Ive had 3people tell me what a good night sleep they had Trader Joe's has it only there Consider this ,the inflammation is what makes us hurt more also just today I bought a Easty Rest Adjustable bed I tried it and as soon as I had my head and legs up myback pain went away Im sorry to hear of all your problems God bless you I,ll keep you in my prayers

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I'm a lower back pain and knee pain sufferer and I want to learn here and also want get some advice for doctor/expert. Thanks

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Search wsh66 and read my posts on the pain pump.

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Hi All!!
I don't know if you remember a message I posted the other day.
After a week, my pain from my lumbar surgery was getting worse instead of better.
I was given opioids to manage the pain.
However, my hubby and I were afraid for me to write take the prescribed dosage of 1 tablet every 4 hours because of all the news about addiction.
Anyway, after so many responses from members, I decided to follow the directions but my hubby still did not feel good about it.
I finally called the doctor.
I was told exactly what I told here, I need to stay ahead of the pain.
That means I take my pain meds, 1 every 4 hours (4 a day), and walk.
Yesterday, I started the plan and I started feeling improvement immediately.
So, we are both OK with following the instructions.
BTW….I told the doc that it would be helpful if these instructions and possible side effects were told to patient before surgery.

Anyway, just wanted to chceck in with everyone and thank you for all the input you have shared!

Ronnie (GRANDMAr)

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@grandmar

Hi All!!
I don't know if you remember a message I posted the other day.
After a week, my pain from my lumbar surgery was getting worse instead of better.
I was given opioids to manage the pain.
However, my hubby and I were afraid for me to write take the prescribed dosage of 1 tablet every 4 hours because of all the news about addiction.
Anyway, after so many responses from members, I decided to follow the directions but my hubby still did not feel good about it.
I finally called the doctor.
I was told exactly what I told here, I need to stay ahead of the pain.
That means I take my pain meds, 1 every 4 hours (4 a day), and walk.
Yesterday, I started the plan and I started feeling improvement immediately.
So, we are both OK with following the instructions.
BTW….I told the doc that it would be helpful if these instructions and possible side effects were told to patient before surgery.

Anyway, just wanted to chceck in with everyone and thank you for all the input you have shared!

Ronnie (GRANDMAr)

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@grandmar Yeah!!!! Glad to hear you're doing well, and wishing you nothing but success, more each day!
Ginger

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@gingerw

@grandmar Yeah!!!! Glad to hear you're doing well, and wishing you nothing but success, more each day!
Ginger

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@gingerw
Thank you , Ginger!
Now that I am doing what I am suppose to be doing, I am hoping success, too!
Ronnie

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@dementmt

I'm a lower back pain and knee pain sufferer and I want to learn here and also want get some advice for doctor/expert. Thanks

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@dementmt Hi there welcome to our group we give advice what helps a person, talk let our experience talk for us. So maybe you will benefit from others . I also have back pain from a fracture, bulging disc ,spondylitis and finally found my mattress wasn't giving me the support I wanted it was sagging so ordered a new bed . I had Easy Rest Adjustable Bed come and give me a demo. It was like day and night . After my legs and head was raised immediately my back pain left I think the science behind it is stretching the vertebrae remember back in the day the Dr. put you on a stretching machine I think this is the same science behind the adjustable bed. I ordered the bed it will be here sometime 1st of Oct. cant wait last night I was wishing I had the bed all ready. ,what a difference this made it also has massage in it . Once I get it I,ll probably not want to get up LOL My neurologist told me to get back into aqua exercise and I know from my own experience exercise is the key to releasing the muscles and nerves to relax. So good luck I know how your suffering I am too.

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