Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@lioness

@hopeful33250 I woke up with sore throat also must be going around Mine is from post nasal drip I did same lemon @honey in tea ,also I gargle with salt water it will be better now I hope take care Linda

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@lioness Linda,

Yes, post nasal drip is definitely the culprit. Take care of yourself and I'll do the same.

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@mamacita

Hi there, @susanfantini, my name is Jane. My name on here is Mamacita, and I volunteer as a mentor in several groups.
I have been retired for three years, early retirement. My many conditions had deteriorated to the point that I needed a cane or walker to get around.

My pride would not let me, however. The previous year I served at a middle school, where teachers and students alike thought I was exaggerating my symptoms. So I suffered in silence.

The past three years,I have learned a lot about living with pain, pills, treatments, and surgeries. I have lost a few friends and family who were brought up thinking that there are always immediate, perfect answers to invisible illnesses. When good health is a work in progress, some friends lack the determination to support and encourage us.
Here where I live the opioid epidemic is so terrible, even the patients who register a 15 on a scale of one to ten for pain levels, are denied effective treatment. Most doctors around here have to be talked with deeply, seriously, and at length, to get even close to the proper treatment for pain.

Many have to be convinced of our sincerity. No one deserves that kind of treatment. Which is why I am here. I am just one of many who meet up here on Mayo Clinic to share our stories, information, and hope.

We are better together. We will always be better together. We are strong when we know that someone is there for us. Someone who has had experiences and has lived through what we have been through.

After many years of floundering, I am happier than I ever have been. Here I can be heard. And helped. Here I feel encouraged and supported. I can hear about what works for some. Maybe one particular way won't work for me. But maybe this one will?

We are

not medical practioners. We cannot give medical advice. We always say to run it by your PCP before trying any new supplement, diet, or procedure. They will know if your requests go against any of your medications or not.

I, too, have had multiple surgeries, which did appear to work for awhile. I have had treatments that last for months for everyone else. But only a day for me. As the youngsters say, "The struggle is real." But you are not alone. I am here, dropping in as often as possible. There are some wonderful Volunteers you will meet. And friendly patients who have been where you are.

Thank you so, so much for visiting here. And for sharing your story. I hope I get the opportunity to "talk" with you very soon! Have a wonderful day and take good care of you!

Mamacita

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Thanks for your comment…..now how as a group can we get our voices where it matters????

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@susanfantini

Hi! My name is Susan and I've had chronic pain for 8 years now. I'm now a retired R.N. because of my initial cervical fusion. I had two surgeries on my neck, one posterior and one anterior. I too have osteoporosis. I also had two right hip replacements within a month of each other, due to a fractured femur from the first replacement. Now I suffer from severe neck and hip pain. I'm on Fentanyl patches every other day which don't help much.

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Susan, WOW I do wnat to know your pain for myself, and I hope and pray that you will find reliel soon. How can any of us help you? When I read your post I was thanking God that I have some relief………………….so please don't give up and keep sharing and letting others be with you. If you are anything like me, when I am hurting I push people away, don't want to be a baby, or seen weak. Bullfeathers! You have already overcome so much, so please kep going nad in touch…Peace that passes undertanding..JJ

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@hopeful33250

@lioness Linda,

Yes, post nasal drip is definitely the culprit. Take care of yourself and I'll do the same.

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O.k. We need to take care of our bodies best we can for our loved ones

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@briansr

Hi Warren, my name is briansr. Your symptoms sound like Sjogrens syndrome

an autoimmune disease. I was diagnosed with this, sarcoidosis, EMGUS,

fibromyalgia by a very good rheumatologist years ago. My mom had rheumatoid

arthritis, lupus, and Sjogrens syndrome. Find a good rheumatologist, he is

she might help.

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Hi , I’m JuJu. I had breast cancer years ago , had 6 months of chemo , and now I have fibromyalgia. I can’t take opiates , tried weed ( my dr was all about it ) but it makes me almost schizophrenic. I can go happily along for days then I have flu like systoms , pain all over , nasal congestion , depression , , Gabapentin is the only thing that helps , but not that effective , so I stay home until it magically disappears . I can’t plan anything because when it raises its ugly head ! I’m down for the count. Does anyone have anything similar ?

Liked by lioness

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Hello my name is Jan . I had L4 and L5 fractured due to MVA in 2026. I did not let them operate as they wanted. I did allow the Dr. to glue both vertebrae. I let them glue 4 months ago. I continued to have pain. I am suppose to get TENS tomorrow. Has any one on here have this procedure and what do I expect. Do they insert it in your spine?

Liked by grandmaR

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@jannix59

Hello my name is Jan . I had L4 and L5 fractured due to MVA in 2026. I did not let them operate as they wanted. I did allow the Dr. to glue both vertebrae. I let them glue 4 months ago. I continued to have pain. I am suppose to get TENS tomorrow. Has any one on here have this procedure and what do I expect. Do they insert it in your spine?

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I haven’t had one but I know it’s implanted right under your skin close to the bottom of your spine

Liked by grandmaR

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@jfsherley

I haven’t had one but I know it’s implanted right under your skin close to the bottom of your spine

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@jfsherley
Good Morning:
There is nothing to be concerned with regarding the TENS machine.
A TENS unit is an external unit.
It has little pads on it much like a cardiogram.
You stick the pads when you have the pain.
You turn on the unit and adjusts the intensity that is good for you.
The machine stays on for a given amount of time.
When it shuts down, it is done.
Good luck!
Here's to a pain free day!
Ronnie (GRANDMAr)

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@jfsherley

I haven’t had one but I know it’s implanted right under your skin close to the bottom of your spine

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@jfsherley
Hi Again!
A TENS unit is NOT planted right under the skin.
As I previously explained, there are these pads (like a cardiogram) that to put on your skin.
The other end is attached to the machine.
You turn on the united to a comfortable intensity for a period of time.
When it is done, it will shut off.
What Jannix59 is talking about is a SPINAL STIMULATOR.
A spinal stimulator IS placed right under the skin.
Ronnie (GRANDMAr)

PS I'll see if I can find info on it an post it.

https://i.pinimg.com/736x/11/fc/1c/11fc1c11e17b9d717e159f7348cb103f–spinal-cord-stimulator-implant.jpg

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@jannix59

Hello my name is Jan . I had L4 and L5 fractured due to MVA in 2026. I did not let them operate as they wanted. I did allow the Dr. to glue both vertebrae. I let them glue 4 months ago. I continued to have pain. I am suppose to get TENS tomorrow. Has any one on here have this procedure and what do I expect. Do they insert it in your spine?

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I had the surgery , a neurosurgeon performed , it was a piece of cake ..pain immediately gone !

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@juju70

I had the surgery , a neurosurgeon performed , it was a piece of cake ..pain immediately gone !

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They want to burn some nerve endings in in my lower back. They do grow back. I have already had a crushed vertibrae.

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@grandmar

@jfsherley
Hi Again!
A TENS unit is NOT planted right under the skin.
As I previously explained, there are these pads (like a cardiogram) that to put on your skin.
The other end is attached to the machine.
You turn on the united to a comfortable intensity for a period of time.
When it is done, it will shut off.
What Jannix59 is talking about is a SPINAL STIMULATOR.
A spinal stimulator IS placed right under the skin.
Ronnie (GRANDMAr)

PS I'll see if I can find info on it an post it.

https://i.pinimg.com/736x/11/fc/1c/11fc1c11e17b9d717e159f7348cb103f–spinal-cord-stimulator-implant.jpg

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I have a tens unit. I am going to start using it.

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@juju70

Hi , I’m JuJu. I had breast cancer years ago , had 6 months of chemo , and now I have fibromyalgia. I can’t take opiates , tried weed ( my dr was all about it ) but it makes me almost schizophrenic. I can go happily along for days then I have flu like systoms , pain all over , nasal congestion , depression , , Gabapentin is the only thing that helps , but not that effective , so I stay home until it magically disappears . I can’t plan anything because when it raises its ugly head ! I’m down for the count. Does anyone have anything similar ?

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@juju. I have fibromyalgia and this is a fibro flare does it exhaust you ,does me cant do anything till it goes away. For my fibro I take extra magnesium everyday I dont know if this is what keeps the flares at bay but haven't had one in awhile good luck Linda

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@oregongirl

They want to burn some nerve endings in in my lower back. They do grow back. I have already had a crushed vertibrae.

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@oregongirl

They want to burn some nerve endings in in my lower back. They do grow back. I have already had a crushed vertibrae.

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@oregongirl @Texasfreedom. I sent reply cant see it so this is repeat about Burning nerves. I have these in both thighs from my fracture it has effected my nerves going into legs I use a product called My Pain Away A fibro cream by Topricin its also for neuropathy I buy it at CVS it helps alot good luck Linda

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