Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@grandmar

Hi All!
Thank you all for the good wishes and prayers!
I am actually home!
I am seeing a good reaction on the right leg.
As of now, no pain.
My felt is sore because it is where the actual cutting took place.
I had an X_Lift in my I3/4.
I am now walking (with a walker) and they already have me do PT and OT.
So, that is the story.
I am very tired and excited to see how tings progress.
Have a peaceful evening,
Ronnie (GRANDMAr)

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@grandmar Glad to hear from you. Listen to the professionals, then take heed what your body tells you is best ;))
Best of luck in recovery, and please keep in touch.
Ginger

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Being moderator of a pain group sounds like a full time job to me! Well I have been dealing with migraine disease for many years and haven't as yet found the magic bullet. Wondering if others have found relief with the new drug Aimovig, etc.

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The number of emails is overwhelming. Please unsubscribe me!!

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@jean42

Being moderator of a pain group sounds like a full time job to me! Well I have been dealing with migraine disease for many years and haven't as yet found the magic bullet. Wondering if others have found relief with the new drug Aimovig, etc.

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I was involved in car accident April 1 ,1990 and afterwards suffered migraine headaches worse than the ones I endured prior. I asked one of my Drs. What caused these & his response in Short was
Salt ,& dehydrated state.
I had just been eating salted pretzels during 1 hr. drive to NJ. and
My first devastating headache was age 18 spending the day walking around Manhattan.No h2o Blazing hot sun ,I collapsed on a sofa in Alexanders Dept store ladies room on 5th Ave.
So when my Dr. said
"Dehydration" as a cause of migraines, it all made sense.so I keep the previously mentioned facts in check on a regular basis.its standard operating procedure!
The ABSOLUTE Best remedy in medication form I have found is Butalbital with Aspirin.
Not sure what the Medical world thinks of this,but it is a very subtle, almost unnoticeable drug in my opinion,from my ex

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@thomasmom Im glad you have found relieve with what you have When my son started teething he had a seizure needless to say I was scared to death but the Pediatrician found when he had high fever from his teething , so he gave him Phenobarbital I had to give this to him till he received all his baby teeth a website you can read all about it is http://www.WebMD .com

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@hopeful33250
Teresa
Thank you!
Today is a difficult day.
Pain is worse and I have a sore throat, too.
Hopefully it will get better soon.
Ronnie

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@gingerw

@grandmar Glad to hear from you. Listen to the professionals, then take heed what your body tells you is best ;))
Best of luck in recovery, and please keep in touch.
Ginger

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@gingerw
Thank you!
I am taking it easy. No choice.
Guess all internal pain meds wore off.
A bit uncomfortable now.
Ronnie

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@grandmar

@hopeful33250
Teresa
Thank you!
Today is a difficult day.
Pain is worse and I have a sore throat, too.
Hopefully it will get better soon.
Ronnie

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@grandmar
Ronnie: I'm sorry to hear about the sore throat (I also have one today), that just adds to an unwell feeling doesn't it?
Take it easy and drink plenty of liquids. Hope you feel better soon.

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@grandmar

@gingerw
Thank you!
I am taking it easy. No choice.
Guess all internal pain meds wore off.
A bit uncomfortable now.
Ronnie

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@grandmar
Ronnie, do you have something you can take for pain?

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@hopeful33250

@grandmar
Ronnie, do you have something you can take for pain?

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@hopeful33250
Yes, I have pain medicine which I am taking.
Thanks
Ronnie

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@hopeful33250

@grandmar
Ronnie: I'm sorry to hear about the sore throat (I also have one today), that just adds to an unwell feeling doesn't it?
Take it easy and drink plenty of liquids. Hope you feel better soon.

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@hopeful33250
Sorry you have a sore throat, too.
I believe this is the one I had from the cold I've been fighting since before last week.
I just keep on sucking on candies and drinking.
I am sure all will be getting better within a few days.
I hope you feel better, too.
Ronnie

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@grandmar Thanks Ronnie. Last night I turned on my room humidifier and took some Mucinex. This morning I just finished lemon tea,so I should be on the road to recover soon. I hope you are as well!

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Hi! My name is Susan and I've had chronic pain for 8 years now. I'm now a retired R.N. because of my initial cervical fusion. I had two surgeries on my neck, one posterior and one anterior. I too have osteoporosis. I also had two right hip replacements within a month of each other, due to a fractured femur from the first replacement. Now I suffer from severe neck and hip pain. I'm on Fentanyl patches every other day which don't help much.

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@hopeful33250

@grandmar Thanks Ronnie. Last night I turned on my room humidifier and took some Mucinex. This morning I just finished lemon tea,so I should be on the road to recover soon. I hope you are as well!

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@hopeful33250 I woke up with sore throat also must be going around Mine is from post nasal drip I did same lemon @honey in tea ,also I gargle with salt water it will be better now I hope take care Linda

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@susanfantini

Hi! My name is Susan and I've had chronic pain for 8 years now. I'm now a retired R.N. because of my initial cervical fusion. I had two surgeries on my neck, one posterior and one anterior. I too have osteoporosis. I also had two right hip replacements within a month of each other, due to a fractured femur from the first replacement. Now I suffer from severe neck and hip pain. I'm on Fentanyl patches every other day which don't help much.

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Hi there, @susanfantini, my name is Jane. My name on here is Mamacita, and I volunteer as a mentor in several groups.
I have been retired for three years, early retirement. My many conditions had deteriorated to the point that I needed a cane or walker to get around.

My pride would not let me, however. The previous year I served at a middle school, where teachers and students alike thought I was exaggerating my symptoms. So I suffered in silence.

The past three years,I have learned a lot about living with pain, pills, treatments, and surgeries. I have lost a few friends and family who were brought up thinking that there are always immediate, perfect answers to invisible illnesses. When good health is a work in progress, some friends lack the determination to support and encourage us.
Here where I live the opioid epidemic is so terrible, even the patients who register a 15 on a scale of one to ten for pain levels, are denied effective treatment. Most doctors around here have to be talked with deeply, seriously, and at length, to get even close to the proper treatment for pain.

Many have to be convinced of our sincerity. No one deserves that kind of treatment. Which is why I am here. I am just one of many who meet up here on Mayo Clinic to share our stories, information, and hope.

We are better together. We will always be better together. We are strong when we know that someone is there for us. Someone who has had experiences and has lived through what we have been through.

After many years of floundering, I am happier than I ever have been. Here I can be heard. And helped. Here I feel encouraged and supported. I can hear about what works for some. Maybe one particular way won't work for me. But maybe this one will?

We are

not medical practioners. We cannot give medical advice. We always say to run it by your PCP before trying any new supplement, diet, or procedure. They will know if your requests go against any of your medications or not.

I, too, have had multiple surgeries, which did appear to work for awhile. I have had treatments that last for months for everyone else. But only a day for me. As the youngsters say, "The struggle is real." But you are not alone. I am here, dropping in as often as possible. There are some wonderful Volunteers you will meet. And friendly patients who have been where you are.

Thank you so, so much for visiting here. And for sharing your story. I hope I get the opportunity to "talk" with you very soon! Have a wonderful day and take good care of you!

Mamacita

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