Weird symptoms

Posted by kriss86 @kriss86, Feb 12, 2019

Hi over the past month or so I have had a variety of symptoms. First were frequent saliva and swallowing. Then a metal taste in mouth and swollen tongue. Last week I had numbness in on my left side of my face and now half my tongue on that side is numb and for the past few days my left arm and leg feel very heavy and hard to use. On top of all of this I have had severe fatigue just tired all of the time. So my question is does this sound like multiple sclerosis a few months before these symptoms I was having like burning itch sensation after taking showers and would feel like internal tremors through out my body and itching tongue that would come and go also I kept biting my tongue in the middle of the night a few weeks ago it’s like symptoms keep adding on and coming and going it’s very nerve racking an help would be appreciated!

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Sorry to hear you're having so many problems. It's hard to why you are having these symptoms. Have you seen a neurologist? I would start with your primary care doctor or a neurologist. I don't have MS. It's can be hard to diagnose, I know that much. I do advise being careful about looking up to much info on the internet looking for symptoms, answers. It's so easy to hyperfocus on all the symptoms and it can take over your life. I know this because I fell into that trap with my own health symptoms.

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@suscros68

Sorry to hear you're having so many problems. It's hard to why you are having these symptoms. Have you seen a neurologist? I would start with your primary care doctor or a neurologist. I don't have MS. It's can be hard to diagnose, I know that much. I do advise being careful about looking up to much info on the internet looking for symptoms, answers. It's so easy to hyperfocus on all the symptoms and it can take over your life. I know this because I fell into that trap with my own health symptoms.

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Thank you for responding that eases my worries a bit. I know dr google isn’t always the answer as it could be so many things. I have been under a lot of stress lately for the last few months and I know stress can cause some really odd weird symptoms. I’m going to give it another week or two and see if the symptoms in my arm and leg go away I did do some excersises last week that I dont normally do so maybe related. Thank you for your help😃 sometimes out minds get the best of us haha

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Hello, @kriss86 – I'd like to add my welcome to Mayo Clinic Connect. I'm sorry to hear you are experiencing so many symptoms. I'd also like to invite into this discussion some members who may have some thoughts on the symptoms you have been experiencing, like @elained @jenniferhunter @jakedduck1 @ambrose @lilgrizz @kariulrich @hopeful33250. They may have some input on whether they seem like multiple sclerosis or another illness, from what they or a loved one have gone through.

Here is some Mayo Clinic information specifically on multiple sclerosis https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269.

It seems like it would be wise to get some medical feedback at this point, as you have been going through a lot, @kriss86. Have you had the chance to make a quick call or portal message to your primary care about what you have been experiencing?

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This sounds more like Lyme disease. Lyme disease comes from being bitten by a tick and it progresses over the years so you may not necessarily remember being bitten. Lyme disease is difficult to treat and not all doctors really know what to do. Lyme disease however is far more treatable and can be cured. There are early symptoms like a rash that comes within the first few weeks after being bitten by the tick. And there are mid stage symptoms and then there are symptoms after the disease has progressed for years. If what you have is Lyme disease it sounds like you have more of the middle or later stages of the disease. I’m not certain where you live but depending on where you live finding a doctor that can test for Lyme disease can be more or less successful. The East Coast seems to be the best place to find doctors that can deal with the successful eradication of Lyme disease. I’m sure mayo clinic might also have some very good treatments for Lyme disease – should you discover this is in fact what you have.

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@kriss86

Thank you for responding that eases my worries a bit. I know dr google isn’t always the answer as it could be so many things. I have been under a lot of stress lately for the last few months and I know stress can cause some really odd weird symptoms. I’m going to give it another week or two and see if the symptoms in my arm and leg go away I did do some excersises last week that I dont normally do so maybe related. Thank you for your help😃 sometimes out minds get the best of us haha

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Hello @kriss86 and welcome to Connect,

Here at Connect we cannot diagnose medical problems but only share from our personal experiences, I would encourage you to seek some medical attention sooner rather than later. These symptoms, might be stress-related, but they do sound like a neurological problem that needs to be diagnosed.

The fact that they come and go is perplexing and many neurological problems are hard to diagnose unless you are in the middle of an episode, like MS, Parkinson's or even small strokes. I had symptoms of a neurological disorder for many years before it was diagnosed so keep looking for answers, with a good medical team.

The numbness, heaviness, etc. that you mention warrant a call or message on your doctor's patient portal.

Will you give that a try rather than waiting?

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@ambrose

This sounds more like Lyme disease. Lyme disease comes from being bitten by a tick and it progresses over the years so you may not necessarily remember being bitten. Lyme disease is difficult to treat and not all doctors really know what to do. Lyme disease however is far more treatable and can be cured. There are early symptoms like a rash that comes within the first few weeks after being bitten by the tick. And there are mid stage symptoms and then there are symptoms after the disease has progressed for years. If what you have is Lyme disease it sounds like you have more of the middle or later stages of the disease. I’m not certain where you live but depending on where you live finding a doctor that can test for Lyme disease can be more or less successful. The East Coast seems to be the best place to find doctors that can deal with the successful eradication of Lyme disease. I’m sure mayo clinic might also have some very good treatments for Lyme disease – should you discover this is in fact what you have.

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I don’t remember being bitten or a rash I did go camping back in June but again don’t remember seeing any bites anywhere I started feeling unwell with different illnesses in early September so I don’t know I’m at a loss

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@hopeful33250

Hello @kriss86 and welcome to Connect,

Here at Connect we cannot diagnose medical problems but only share from our personal experiences, I would encourage you to seek some medical attention sooner rather than later. These symptoms, might be stress-related, but they do sound like a neurological problem that needs to be diagnosed.

The fact that they come and go is perplexing and many neurological problems are hard to diagnose unless you are in the middle of an episode, like MS, Parkinson's or even small strokes. I had symptoms of a neurological disorder for many years before it was diagnosed so keep looking for answers, with a good medical team.

The numbness, heaviness, etc. that you mention warrant a call or message on your doctor's patient portal.

Will you give that a try rather than waiting?

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I did make an appointment with my primary doctor but will have to cancel today as my 5 year old daughter is sick, I will try and make an appointment soon Thank you very much

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@lisalucier

Hello, @kriss86 – I'd like to add my welcome to Mayo Clinic Connect. I'm sorry to hear you are experiencing so many symptoms. I'd also like to invite into this discussion some members who may have some thoughts on the symptoms you have been experiencing, like @elained @jenniferhunter @jakedduck1 @ambrose @lilgrizz @kariulrich @hopeful33250. They may have some input on whether they seem like multiple sclerosis or another illness, from what they or a loved one have gone through.

Here is some Mayo Clinic information specifically on multiple sclerosis https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269.

It seems like it would be wise to get some medical feedback at this point, as you have been going through a lot, @kriss86. Have you had the chance to make a quick call or portal message to your primary care about what you have been experiencing?

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I have not yet but that is a good idea I did make an appointment but have to cancel as my 5 year old is sick today but will make another if doesn’t go away by true time she is better thank you for all of your help😊

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In the meantime it is strongly suggested that you make a journal or diary if you will, document the times and days and what you’re doing when it occurs because many times we get to the doctors office and we forget. I would include the camping trip where you went geographically if you went swimming if you drank or swallowed any of the water accidentally even. The least little thing might give the doctor an idea of what’s going on and a direction to look – it may seem insignificant to us and it may very well be the key to unlocking the whole puzzle. If you’ve had any fevers that come and go, anynausea, brain fog – any little thing that might seem insignificant any tiredness any muscle stiffness any joint aches and pains no matter how fleeting, try to write them down and remember when it all started. I live on a farm and I’m a great outdoor enthusiast as is most of my family living in several different states. Many of us have had sudden onset symptoms such as what you described because we are outside and we are exposed to the bites of ticks into the amoeba and bacteria and viruses of unfiltered water. Generally there will be a fever associated with these diseases that one can acquire from enjoying the great outdoors. My brother-in-law who is 6 foot seven and right at 200 pounds the most physically fit man I know and strong as an ox had symptoms like yours only accompanied by a high fever. He had acquired a disease from a tick that the doctors didn’t even recognize they weren’t quite sure what it was it wasn’t Lyme disease they knew what it wasn’t! Still they were able to do an assessment and with treatment it took about a month to six weeks but he’s as right as rain once again. Hang in there! So glad to hear you’re going to make it to the doctor. Please share what you learned and especially any good news about what makes you feel better!

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@ambrose

In the meantime it is strongly suggested that you make a journal or diary if you will, document the times and days and what you’re doing when it occurs because many times we get to the doctors office and we forget. I would include the camping trip where you went geographically if you went swimming if you drank or swallowed any of the water accidentally even. The least little thing might give the doctor an idea of what’s going on and a direction to look – it may seem insignificant to us and it may very well be the key to unlocking the whole puzzle. If you’ve had any fevers that come and go, anynausea, brain fog – any little thing that might seem insignificant any tiredness any muscle stiffness any joint aches and pains no matter how fleeting, try to write them down and remember when it all started. I live on a farm and I’m a great outdoor enthusiast as is most of my family living in several different states. Many of us have had sudden onset symptoms such as what you described because we are outside and we are exposed to the bites of ticks into the amoeba and bacteria and viruses of unfiltered water. Generally there will be a fever associated with these diseases that one can acquire from enjoying the great outdoors. My brother-in-law who is 6 foot seven and right at 200 pounds the most physically fit man I know and strong as an ox had symptoms like yours only accompanied by a high fever. He had acquired a disease from a tick that the doctors didn’t even recognize they weren’t quite sure what it was it wasn’t Lyme disease they knew what it wasn’t! Still they were able to do an assessment and with treatment it took about a month to six weeks but he’s as right as rain once again. Hang in there! So glad to hear you’re going to make it to the doctor. Please share what you learned and especially any good news about what makes you feel better!

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Yes I did go camping but never went swimming just on a raft that was in Missouri near Branson my temp has been staying in the 99 range and before all this I had an issue with with my bladder like frequent need to go and was in pain but they found nothing then a week after that stopped my throat had a sensation that there was something stuck that went on for a month and finally went away. Then I got the feeling like like I had to constantly swallow do to a lot of saliva build up and then the Metal taste in my mouth started with swollen tongue. Then these numbness sensations came on in my face and in my tongue and then the heaviness in my legs and arms. It’s very strange and odd. Last year I had a few episodes where my big toe on my right side kept going numb and feeling as if I had pins and needles in it. I have had lots of weird feelings like when getting out of the shower a few months ago my arms would be itching and burning and laast year for months I had like a feeling of something crawling on me and it would move all over my body and that was very very nerve wracking I have had many many weird sensations over the last 2 years I have had a ct scan about 2 and half years ago due to not being able to see out of the sides of my vison and they didn’t see anything then. I’m losing my mind over this because it just feels like I’m never going to feel good again I can tell you this before my daughter who is now 3 before I got pregnant with her I was feeling pain all I’ve rmy body and felt like I had the flu constantly it felt just like flu pains. That went on for a long time months and then when I got pregnant with my daughter those symptoms went away and now I have new ones so it is a mystery and I have seen many doctors and haven’t found really anything they did some blood work a few months ago and all the found was i was a lil anemic so that is the whole back story of when I started noticing weird things happening it was a few months before I got pregnant with my 6th child

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