Vivaer nasal valve remodeling and Empty Nose Syndrome?
Has anyone had Vivaer procedure? I'm concerned about Empty Nose Syndrome but my doctor claims that only occurs with removing or shrinking turbinates. Doesn't the vivaer procedure also affect turbinates?
Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.
No I was never told this before the surgery or after the surgery by the one that did this. What is wrong with your nose
You can private message me if you would like. I will explain more there.
Ok I thought I did
I live in Vista (North San Diego). My son had a doctor reduce his turbinates during jaw surgery. He has Empty Nose Syndrome. What you describe sounds like ENS. We wasted a lot of time on cardiologists, pulmonology, etc. I am not medical professional so this is disclaimer re medical advice. But it has been 2 years of hell since jaw surgeon cut his turbinates. He gets episodes of suffocation and breathlessness, extremely dry nose, sore throat from air rushing into throat and not being warmed by turbs, cough from air not being conditioned and warmed prior to entering lungs. ENS due to cutting off the inferior turbinates (my son had heads, tails, and bottoms cut off by surgeon who said he would not touch them). There is an Empty Nose Forum on facebook. Try to find them. Some had rib implanted into remaining turbinate remnant to enlarge them and slow air flow (main doctor who does it is in Italy-Dr. Piazza-3 year wait and no travel now with Covid). The shortness of breath and suffocation in my son's case are because turbinates/nerves damaged and brain can't sense air flowing in. ENT doctors cover up for jaw surgeon and each other. My son has seen the U.S. doctors (Dr. Subinoy Das in Ohio does stem cell therapy-didn't work; Dr. Jakar Nayak in Stanford (he may not still be doing implants but he may inject a solution that creates volume so you can tell if implants would help). Dr. Steven Houser is pioneer who discovered cause of ENS and moderates the ENS forum (believe has suspended the alloderm implants he was doing). It has to do with airflow and turbinates not sensing airflow. Also, turbinates may grow back somewhat but may also atrophy. Try to find the Empty Nose Forum on Facebook. The people there have suffered a long time and are best source of info. Some report feeling better in humid environments. We wasted a lot of time and money on pulmonology & cardiology experts who found nothing wrong. Find Empty Nose Forum. They are all praying for advances in stem cells or organ regrowth/transplant. My son has almost fainted on several occasions when the suffocation comes on.
Not a medical professional -disclaimer. Sounds like you have Empty Nose Syndrome (ENS) caused by turbinates being cut off. Go to Facebook Empty Nose Forum. My son has this nightmare condition. The dry, crusting, painful nasal mucosa, lack of sleep, and suffocation are all what he has, plus sore throat and cough from air not being warmed and conditions. Panic attacks from lack of oxygen (yet oxygen tests always register fine). Sorry this has happened to you. We are in San Diego. May help to find others who live near you.
@marychickadee– Hi. Can you tell me if your son also had headaches? And how is his mental health? I have tried to stay away from the forums actually, some sound hopeless with too much negativity.
My son has ENS since jaw surgeon cut his turbinates. Facebook has Empty Nose Forum which may comfort you to talk with other who are suffering and a few have suggestions of personal products they tried. My son has extremely dry nose that crusts and never really heals and stings and hurts (doctor cut turbinates out with scissors then burnt them – after promising not to touch them (obviously it was not a Mayo doctor), episodes of suffocation, severe insomnia (sleeps in short patches), anxiety, sore throat from cold dry air hitting back of throat, cough from lungs getting dry, unfiltered and unconditioned cold air, can't sense air flow. We are in San Diego. My son has had stemcell therapy with Dr. Subinoy Das in Ohio (failed), has been to Italy to see Dr. Fabio Piazza who does rib implants (3 year wait and complicated since jaw surgeon punched hole in lateral nasal wall to sinus), been to see Dr. Jakar Nayak at Stanford (not sure if he still does implants but he may give injections to "beef up" turbinates and create air resistance). We are concluding that there is no real treatment available other than someday stem cells or regeneration of mucosa – all far in future. One person on the Facebook site takes cotton make-up pads, cuts them, then rolls them up and puts in nose and it seems to produce some moisture and slow air rushing through. Sorry for what has happened to you. My son will never be the same. It has forever changed our once happy family..
No headaches. But severe issues with inability to sleep, anxiety, depression. Has not worked since this happened due to depression and fixation on nose. Doctors don't recognize it as being as serious as it is. Saw Dr. Das in Ohio but stem cells didn't work. Dr. Jakar Nayak Stanford will use (hyaluronic acid?) which swells the tissue slowing air flow – he calls it "speed bumps" they last about 3 months. There has to be a turbinate remnant left to do implant. Dr. Nayak is the only one I know of who does those. Not sure cause of headaches but some have mentioned accupuncture working.
@marychickadee-thank you it sounds like you have learned quite a bit. Do you mind if I private message you for questions?
I’m so sorry to hear you are going through this also I read it gets worse over time after my surgery I was never told that he emptied out my nose left nothing to even rebuild on very depressing. Hope you are able to get some relief