Valve Disease

Posted by Mary D @maryd, Aug 8, 2018

I'm wondering if anyone has had symptoms of valve disease that did not show up on a resting echocardiagram (ultrasound of the heart) I believe I'm having persistent symptoms of valve disease. After I exercise, sometimes a few hours later I feel pressure in my chest, shortness of breath, and sometimes fluid retention. My doctor insists that my ultrasound, ejection fraction, and valves are normal but i'm wondering if there is a valve that causes a problem only when stressed with exercise. My coronary arteries are clear. ( I just had a coronary angiogram)

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@peach414144

I am quite ignorant on the stent subject. I am reading about it. Just a few days ago the cardiologist, pulmonary specialist put in three stents (9/6/18) I am now on blood thinners Xarelto 20 mg one time a day.. Most of the pain in my legs are gone but where the stents were placed are still quite painfull when I move. It has only beem 4 days now it is 9/9/18. And where did the horrible constipation come from? Any guidence on this proceedure of mine will be VERY, VERY HELPFUL. Thank you all. Peach

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@peach414144 Two things I know about Stents and Constipation. For constipation ust the Walmart Equate generic of Miralax, Clearlax. Constipation, amother other things, is caused by various forms of Amyloidosis. Oh, and eat a bit helping of grits and eggs every day or two. Stents, Just take them as they come. I have had 24 placed. Twenty four. Now I am down to about 16 after I lost some to CABG. On doc put in 14 in one procedure. Saved my life.

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Maryd I found Northwestern Memorial and Dr Davidson, an interventional cardiologist, after being hospitalized for an unrelated cause. It was there I learned I had CHF, a congenital heart defect - a subaortic membrane, probably from birth (mind you I was 65 at that time), 2 valves with severe, and 1 with moderate regurgitation. Dr Davidson started working with me on adjusting my medications, he tested me to find out if I would be a candidate for TAVR, since surgery was not an option. He has always been honest with me, answers all my questions, and makes suggestions. I went to Mayo Clinic for a second opinion and they confirmed everything I’d been told. Unless something new comes on the market, I will never be able to have surgery but knowing Dr Davidson is watching my health I’m comfortable for the time being. Go online to nm.org - it’s a good site.

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@oldkarl

@peach414144 Two things I know about Stents and Constipation. For constipation ust the Walmart Equate generic of Miralax, Clearlax. Constipation, amother other things, is caused by various forms of Amyloidosis. Oh, and eat a bit helping of grits and eggs every day or two. Stents, Just take them as they come. I have had 24 placed. Twenty four. Now I am down to about 16 after I lost some to CABG. On doc put in 14 in one procedure. Saved my life.

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yes you know your stuff. The vein doctor I was using said you are fine and need no care. However, taking my extreme pain from the toes to the knees on both legs and with the inability to sleep because of this I went to a cardiologist, pulmonary doctor. He saw me on Wednesday,did an ultrasound told me to be back the very next day Thursday fasting. Put me to sleep and I woke up with three stents one on my right side and two on my left side (common iliac veins).The left side was so bad it required two stents. I will be returning soon for more workups. Now this is a doctor. I have been given paperwork on this. One to keep on my person and one for my records, Also a lenghty conversation explaining all of the necessities involved.

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@peach414144

yes you know your stuff. The vein doctor I was using said you are fine and need no care. However, taking my extreme pain from the toes to the knees on both legs and with the inability to sleep because of this I went to a cardiologist, pulmonary doctor. He saw me on Wednesday,did an ultrasound told me to be back the very next day Thursday fasting. Put me to sleep and I woke up with three stents one on my right side and two on my left side (common iliac veins).The left side was so bad it required two stents. I will be returning soon for more workups. Now this is a doctor. I have been given paperwork on this. One to keep on my person and one for my records, Also a lenghty conversation explaining all of the necessities involved.

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Peach414144 sounds like your doing better so glad you posted hope each day will get better

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@peach414144

yes you know your stuff. The vein doctor I was using said you are fine and need no care. However, taking my extreme pain from the toes to the knees on both legs and with the inability to sleep because of this I went to a cardiologist, pulmonary doctor. He saw me on Wednesday,did an ultrasound told me to be back the very next day Thursday fasting. Put me to sleep and I woke up with three stents one on my right side and two on my left side (common iliac veins).The left side was so bad it required two stents. I will be returning soon for more workups. Now this is a doctor. I have been given paperwork on this. One to keep on my person and one for my records, Also a lenghty conversation explaining all of the necessities involved.

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@peach414144 Glad you are keeping a journal. Hope you will never need it again, but if you do, or if your family needs it, .....

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