Valve Disease

Posted by Mary D @maryd, Aug 8, 2018

I'm wondering if anyone has had symptoms of valve disease that did not show up on a resting echocardiagram (ultrasound of the heart) I believe I'm having persistent symptoms of valve disease. After I exercise, sometimes a few hours later I feel pressure in my chest, shortness of breath, and sometimes fluid retention. My doctor insists that my ultrasound, ejection fraction, and valves are normal but i'm wondering if there is a valve that causes a problem only when stressed with exercise. My coronary arteries are clear. ( I just had a coronary angiogram)

@susanjc

Peach-Are you strong enough to get compression stocking on?

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Sorry, no.

@susanjc

Peach-Are you strong enough to get compression stocking on?

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Lioness-Just trying to get more information. I feel she needs someone to help better understand what procedures were done as a start and why they were not effective.

Peach–I feel you need a better understanding of the procedures performed on you and why they not were effective. A vascular surgeon may be a consideration of someone to see. Meanwhile a wound care doctor can help with any open sores you may have on your legs and feet.

Thank you for caring. There are no open sores because they tricked me. They sis not do the proceedjure. I now somehow need to go to a vascular doctor who is not here in Ocala. Cannot drive as I am going blind. Must figure a way. Thank you again.

@peach414144

I have valve disease in my ankles, knees and thighs not allowing the blood to flow up to the heart carrying the oxygen to the heart. This affects the eyes (going blind) and other problems such as the feet and legs are slowly dying. Supposedly had ablations but of to no avail. When the procedures were done I had no feeling, no pressure, and no pain and there were no marks on the skin. Is this another way to collect medicare without doing the procedure? (These six procedures (2 ankles, 2 knee and 2 thighs.) The valves are not working to open and close to allow proper circulation. None of the relating doctors will address this issue with me. Oh boy Ocala id deadly behind the times. At age 81 it is so difficult to travel a great distance to address these issues. And, the pain in the legs is brutal. Shame!

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Peach–I will email you tomorrow. Looking forward to visiting with you.

@susanjc

Peach–I feel you need a better understanding of the procedures performed on you and why they not were effective. A vascular surgeon may be a consideration of someone to see. Meanwhile a wound care doctor can help with any open sores you may have on your legs and feet.

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I went to a vascular doctor 8 times. They were supposed to give me ablations. They did not and said that they did. Perhaps they think when you reach an older age they can do this and try to say "you forgot and do not know what you are saying" But, if you look at my legs you can see there are no marks on them. And they charged Medicare. If I remember correctly now Jacksonville is where the Mayo clinic is closest to me. I need to work on this. . love you all

@peach414144

Thank you for caring. There are no open sores because they tricked me. They sis not do the proceedjure. I now somehow need to go to a vascular doctor who is not here in Ocala. Cannot drive as I am going blind. Must figure a way. Thank you again.

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@peach414144 Do you any family that can help you ,church , call Mayo in Jacksonville ask for Patient Experience office I have a number but not sure if it will help 507-284-4988 also @gailb or @colleenyoung connect director might be able to help you Bless you Peach

@susanjc

Peach–I feel you need a better understanding of the procedures performed on you and why they not were effective. A vascular surgeon may be a consideration of someone to see. Meanwhile a wound care doctor can help with any open sores you may have on your legs and feet.

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@I gave peach some information that might be of help for her

Hi @peach414144
Here are the contact numbers to inquire about care at Mayo Clinic Florida mayocl.in/1mtmR63

You can also find out more about Medicare coverage https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance/accepted-insurance/medicare/more-on-medicare
And ask about financial assistance programs at Mayo Clinic https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

@carlysmith011

My echos before my 1st surgery didn’t show how bad my valve was. I had a cardiac cath and that showed my valve was critical and explained all my symptoms even though the echos showed mild-moderate stenosis not critical

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Aortic valve

@susanjc

Peach-Are you strong enough to get compression stocking on?

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need 2 people to apply thigh high stockings (the smallest size). Not the answer to the problem. Need 6 ablations for the ankles, knees and thighs.

@susanjc

Peach-Are you strong enough to get compression stocking on?

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@peach414144 did you look at Colleen,s post I ask her to help you ,read her post

@carlysmith011

My echos before my 1st surgery didn’t show how bad my valve was. I had a cardiac cath and that showed my valve was critical and explained all my symptoms even though the echos showed mild-moderate stenosis not critical

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Sounds like an incompetent echo operator or anaylyst! A proper echo test will show the pressure on both sides of the aortic valve and others, as well as show a visual image that an experience operator should be able to see and say OMG, that flow is too low. Maryd, If you have a future echo test, consider having it done at a DIFFERENT place so you get a different analyzer.

@hopeful33250

Hello @carlysmith011 and welcome to Connect.

I appreciate your post regarding your valve disorder and the fact that the seriousness of it did not show up on echos. I'm sure that you are glad that you had the heart cath which pointed out the serious nature of the valve problem.

If you are comfortable sharing more, what type of valve surgery did you have?

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May I ask HOW LONG the first one lasted, what it is made of (cow or pig) and if it was open heart or TAVR?

@peach414144

I have valve disease in my ankles, knees and thighs not allowing the blood to flow up to the heart carrying the oxygen to the heart. This affects the eyes (going blind) and other problems such as the feet and legs are slowly dying. Supposedly had ablations but of to no avail. When the procedures were done I had no feeling, no pressure, and no pain and there were no marks on the skin. Is this another way to collect medicare without doing the procedure? (These six procedures (2 ankles, 2 knee and 2 thighs.) The valves are not working to open and close to allow proper circulation. None of the relating doctors will address this issue with me. Oh boy Ocala id deadly behind the times. At age 81 it is so difficult to travel a great distance to address these issues. And, the pain in the legs is brutal. Shame!

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So nice to see your post to add to prayer list Lioness! I'm pretty sure God will be ok with peach414144 as her name too!

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