What helped your seizures most: Treatment ctr? Neurologist? Home care?

@27angel
Good question.
After 45 years of uncontrollable seizures My medication became unstable and had to changed so I guess it was my neurologist.
Jake

Yes due to being in Ohio I was concern about which place or treatment could help me understand how to prevent another seizure i do have an appointment that I just remember for follow up or plan of care I will see what Ohio health states would be best. I will keep you all posted on my recovery in the Columbus, Ohio health grant.

@27angel - tagging a few other members of Mayo Clinic Connect's Epilepsy & Seizures support group who can share whether a treatment center, a particular neurologist or a home caregiver helped them or their loved one with their seizure symptoms the most @absentsenior @santosha @dannoyes @keeg1010 @lynn0225 @randallshields56 @bearbayou.

If you can get into Mayo it is by far the best decision you will make in your care journey. I love Mayo JAX and specifically Dr. Brin Freund. If you can get into Mayo let me know and I can see if he can chat with you. He is brilliant!

Also Mayo is so special because if you need them for another care area they can work you in. I have developed another serious health issue and they are fitting me in to see a new specialist.

I guessing since the seizure walking for long periods is a struggle. Speech and vision is complicated to see far before I get there stress is so minimum lately I don't think as much I don't worry as much. Rest is hard because I cant think myself to sleep. I write what I need to accomplish. This is how far I become went to doctor 12/3/2025 just to get iron and b12 for anemia so I just still taking vitamins for oxygen may need oxygen to help neuro flow I don't what it will take to recover fully cant rest because I have deadlines that need to be done or more tragic so I just waiting for the doctor to give me the paperwork by not understanding ER why I was suppose to stay I left no knowing how critical it was I woke feeling fine but when I look at my videos I see the difference.

@27angel

If I were in Ohio I would try to get to the Cleveland clinic. They treat many very complex neurological disorders. So far as what worked for me. The person who drew my blood once at a standard QUEST place, volunteered that she also had epilepsy and the AED that worked for her. I brought her suggestion back to my neurologist and he prescribed it and it has worked for almost 8 years now. Best wishes

It's only five months since my hospitalization for my first seizure episode. Thanks to the hospital neurologist and my own neurologist, I have had no seizures since hospital discharge on June 28. Meds seem to be doing what they're supposed to do: combination of lacosamide and gabapentin.