What helped your seizures: Treatment Center? Neurologist? Home care?
Has anyone improve there seizure symptoms via treatment center, neurologist, or home caregiver. Of the following which one was more effective.
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I know my answer here may not fall under the specific conditions you show, but in general for all, the thing that has helped me the most is being less stressful and getting better sleep, although my sleep starts and stops twice a night. I'll take it though if it helps me from having a seizure.
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7 ReactionsHi @27angel
Since my epilepsy diagnosis in 2019, several things have really helped me manage my seizures and epilepsy symptoms:
1. Finding the right doctor has been the most important step. I needed someone who not only seeks seizure freedom but truly cares about their patients' overall well-being – a doctor who welcomes questions and encourages you to learn about your condition.
2. Learning my seizure triggers has been enormously helpful. With the guidance of Dr. Andrews and her book "Taking Control of Your Seizures," along with keeping a daily diary (whether I had seizures or not), I've identified my major triggers and even learned to recognize my prodromes – those warning signs that can appear hours or even days before a seizure. Here are some resources if you're interested:
- Andrews-Reiter Website and Approach to Epilepsy
https://www.andrewsreiter.com/newbook.html
- Taking Control of Your Seizures: Workbook
https://www.amazon.com/Taking-Control-Your-Seizures-Treatments/dp/019933501X/ref=sr_1_1
3. Support from my neuropsychologist has been invaluable, especially in those first years after diagnosis. She helped me tremendously with accepting my epilepsy, navigating its challenges, and adapting my lifestyle. Learning to live with epilepsy instead of fighting against it has also helped me control my seizures better.
I have epilepsy, but I don't let epilepsy have me. I continue living my life through adaptations.
Chris
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4 ReactionsHi @27angel again!
May I ask – are you the one with epilepsy, or are you caring for someone who has it?
Chris
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4 Reactions@santosha I am currently being diagnosed for transient awareness since I fainted or passed out the hospital just treated me until I woke up basically gain consciousness. I was so combative inside I decided I would be fine 15days later I start noticing my spelling off my balance off I cant remember routines from high school 1999 a lot is just not registering. I usually don't have insurance so treatment and prescriptions are out. When insurance kicks I am asking what would be the fastest way to get my 11/6/2025 self anything after me not me I just kind of been consciousness 12/ 5/2025 I begin to recite what my life was when I fill the gaps its a struggle word searches, jeopardy, who wants to be a millionaire. I have to continue appointment with neurologist in the future there hopefully I can be and 11/16/2025 the memory picks up not my normal 1995 memory until its a struggled not drugs not on alcohol just cramming or toxicology would state if I had go poison thru a cigarettes I don't know waiting and pending
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1 Reaction@santosha Thank you for the information I will review each link with my healthcare professional to determine whats next after testing and a diagnosis as it is important to understand what occurred on 12/17/2025 that changes my life I keep you posted
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4 Reactions@royanthony Getting rest just does not help before I sleep problems retaining my everyday so resting makes me forget mote I fill so behind anyway so Monday thru Friday busy. Saturday and Sunday I be with friends resting did not work so I just read thru the night just to be able to spell and read its helps me even if it took 3wks for a 399 page book I working with myself because I need to its vital in my society.
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4 Reactionsalso recording every day help talking to you, Youtube, TikTok and Facebook about this journey they have been in my followers life since 2010 everyone praying for a full recovery thank they just didn't meet they have seen my best down thru the years so to appear like this crazy.
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1 ReactionI am glad I have develop a pattern on here Monday thru Friday to engage with you all via text taking it slow even if the world spinning fast soon I be back to full capacity.
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2 Reactions@27angel
Good Morning
I'm truly sorry you're going through this. I understand those memory gaps all too well – I experience them too, especially when my seizures aren't well-controlled. The good news is that once you begin working with a neurologist and find the right treatment, these gaps may improve. I'm hopeful that will be the case for you. 🙏
Can I ask – have you experienced any other episodes since June? And did the hospital prescribe any medication when you were discharged?
I'm hoping you'll get clear answers and a diagnosis soon.
Chris
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@santosha I left the hospital not understanding so I am waiting for insurance to go back
I was not given medication due to being able to understand why am I here I just wanted to leave and I don't why I felt I was ok I compared laying outside with no response. When Ohio health brought me back I felt I was ok to continue living I had the seizure on 11/16/2025 I start declining on 12/7/2025 my memory just was there I realize I had been on my daily routine loss on interest no hobbies, lost passwords, misspelled words, balance off, right eye blurry, can remembering why I arrive no memory from 5am to 9am those were the hours I get up jog create content just stay in bed memory just struggling.
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