To vaccinate or not to vaccinate? That is the question.

Posted by silverwoman @silverwoman, Jan 4, 2021

<p>I know I am not the only post-transplant patient who is thinking about getting the coVID vaccination. My nurse coordinator has told me that the transplant team at Jacksonville has not approved vaccination yet because of the lack of experience with it for our group. One of the Infectious Disease doctors has indicated in a Mayo communication that transplants should be getting vaccinated. The nurse coordinator has said that if we choose to get vaccinated then we should do our laboratories once a week. I'm frustrated and confused by the lack of clear guidance and seemingly conflicting opinions. Is anybody else feeling like this? Have you made any decisions about when and if you will get vaccinated?</p>

Interested in more discussions like this? Go to the Transplants Support Group.

@ca426

I'm just going to give my opinion, I will not be getting the vaccine, I have had COVID, all I had was a cough....it could have been worse I agree. However, since I'm producing antibodies I think its a mute point to take it, and also the too vaccine's are Mrna vaccine a d have never been widely used in the public, everyone has to deiced for their self, weigh the pro's and cons and make their own decisions , but right now I'm worried about where the virus came from and the limited information that we have been able to see, and to one of your points, it was not near as deadly as the said and would even go so far as to say, that the numbers are wrong......mind you this is my opinion.

Jump to this post

I also respect everyone’s right to make their own decision based on their circumstances. You said you had COVID and it wasn’t that bad. Are you also an organ transplant recipient?

REPLY

Yes I've had 4 kidney transplants, now don't get me wrong, this virus is very weird....but I didn't have hardly any issues as a matter of fact I would have never known, that I had the virus. I went to the ER with a bladder infection, and they did an abdominal CT, and saw some ground glass opacities on the bottom of my lungs when they made their pass and so they did the COVID test and I was positive.

REPLY
@ess77

silverwoman, I have a friend with one lung, transplanted several years ago, who is currently going through rejection testing and all that goes with it. No definitive answer yet, but he should know something in a day or so. This is such a tough spot, impossible decision at this time. There is so much still to learn about these vaccines and your situation is truly special. You are going to have to keep yourself safe until you get the absolute YES from your doctors. This is one issue re the covid vaccines that must be dealt with as the true experts......I consider the Mayo infections disease and transplant fellows the experts....have enough time and information to have solid answers. Blessings in this tough time. Elizabeth

Jump to this post

@ess77 I did read somewhere that if you have recent rejection you should not have the vaccine for a while.
JK

REPLY
@ca426

Yes I've had 4 kidney transplants, now don't get me wrong, this virus is very weird....but I didn't have hardly any issues as a matter of fact I would have never known, that I had the virus. I went to the ER with a bladder infection, and they did an abdominal CT, and saw some ground glass opacities on the bottom of my lungs when they made their pass and so they did the COVID test and I was positive.

Jump to this post

Thank you for sharing this. While I will continue to be extremely careful and do plan to get the vaccination at least I know that contracting COVID isn’t an automatic death sentence for transplant recipients on immunosuppressants. I also understand that it’s different for everyone.

REPLY
@contentandwell

@ess77 I did read somewhere that if you have recent rejection you should not have the vaccine for a while.
JK

Jump to this post

@ess77- This certainly makes sense. Any chance of finding the source for this?

REPLY
@ca426

I'm just going to give my opinion, I will not be getting the vaccine, I have had COVID, all I had was a cough....it could have been worse I agree. However, since I'm producing antibodies I think its a mute point to take it, and also the too vaccine's are Mrna vaccine a d have never been widely used in the public, everyone has to deiced for their self, weigh the pro's and cons and make their own decisions , but right now I'm worried about where the virus came from and the limited information that we have been able to see, and to one of your points, it was not near as deadly as the said and would even go so far as to say, that the numbers are wrong......mind you this is my opinion.

Jump to this post

@ca426 - Dr. Poland, of Mayo Clinic has encouraged people who have had COVID-19 to still get the vaccines because it is unknown how long your antibodies will last. I encourage you to have a talk with your doctor about this. Aside from this, after 4 kidney transplants, it might be advisable not to get the vaccines.

In making your decision have you discussed this with your family and transplant doctor? DO you think that where the virus came from has anything to do with the vaccine?

REPLY
@kcbemetoo

I'm with you silverwoman. Just celebrated my 3yr anniversary on 12/22/2020. Only thing good that happened 2020 for me..I am scared but I had checkup last week and my Dr. at Mayo said , get it. I would rather suffer with side effects than suffer with the virus. Im praying for all of us that the good Lord will wrap his arms around us and pull us through,.

Jump to this post

@kcbemetoo, Happy 3 yr anniversary! It is a bright spot worthy of celebrating! Thanks for the reminder that good things are happening in the midst of these hard times. I am going on 12 years with my transplanted liver and kidney. Whenever I read that someone is having their anniversary, I smile as I remember my big day and I whisper a prayer of thanks for my deceased donor and for the transplant team at Mayo Rochester who made it happen.

kcbemetoo, I want to invite you to a discussion that I started where we can share our transplant stories, get to know others, and encourage others by sharing our experiences. Each one of us has a unique story. We want to hear more about your experience and what organ you have received.
- Organ Donation and Transplant: What is Your story? -click on the following link -
https://connect.mayoclinic.org/discussion/organ-donation-and-transplant-what-is-your-story/

REPLY
@kcbemetoo

I'm with you silverwoman. Just celebrated my 3yr anniversary on 12/22/2020. Only thing good that happened 2020 for me..I am scared but I had checkup last week and my Dr. at Mayo said , get it. I would rather suffer with side effects than suffer with the virus. Im praying for all of us that the good Lord will wrap his arms around us and pull us through,.

Jump to this post

kcbemetoo, Amen! Congratulations on your anniversary! That's a biggie...Bless you and I love the imeage and feeling I'm wrapped in His loving arms. Such a peaceful and safe feeling of love......Elizabeth

REPLY
@contentandwell

@ess77 I did read somewhere that if you have recent rejection you should not have the vaccine for a while.
JK

Jump to this post

Well, my friend is scored at 2. Prednisone increased, maybe other drugs, don't know. He feels better now, so hopefully hel'll get through this and move ahead! He's a trouper! Blessings, Elizabeth

REPLY
@wildcat

Thank you for your lovely memories and your kind words. I love your country too and spent a very happy year in St Paul as a student. Everyone loved my Scottish accent!
I'm so sad to see what is happening in Washington tonight especially when we should all be helping each other at this terrible time.

Jump to this post

Hello, wildcat. When were you at St. Paul? I have a deep love for your accent....it's very lovely, melodic, pleasant. Although, I must say at this time in my life I don't understand a fast talking anyone, but you add your beautiful accent and I'm lost! Still begin with my own version of the Scottish accent, tho.

Yes, I think most of the country, most Americans, and our friends overseas, are very sad today. We have so much to celebrate....the advances re virus, including vaccines and the growth in effective treatments. I may or may not like the election or the results, but there is no excuse for violence in this country. We work so well when we work as a country, for the country. The last years have been tough for us all, I think. Add to that 2020 and WOW!

But, no reason for violence. I was horrified this summer as I watched the violence throughout our country. Yesterday was horrifying.

But, today is relatively quiet. I pray God will put his hand on us all, give us calm and understanding and guide us all to a better year.
Blessings to you! Elizabeth

REPLY
Please sign in or register to post a reply.