To vaccinate or not to vaccinate? That is the question.

Posted by silverwoman @silverwoman, Jan 4 9:40am

I know I am not the only post-transplant patient who is thinking about getting the coVID vaccination. My nurse coordinator has told me that the transplant team at Jacksonville has not approved vaccination yet because of the lack of experience with it for our group. One of the Infectious Disease doctors has indicated in a Mayo communication that transplants should be getting vaccinated. The nurse coordinator has said that if we choose to get vaccinated then we should do our laboratories once a week. I’m frustrated and confused by the lack of clear guidance and seemingly conflicting opinions. Is anybody else feeling like this? Have you made any decisions about when and if you will get vaccinated?

@silverwoman

I have had the same feeling that the doctors are being very conservative with their guidance, not willing to commit at this point because of the lack of history with this new type of vaccine production, as well as their conservative approach to medicine which I, for one, like. However, I have decided to go ahead and be vaccinated because I am much more afraid of getting the coVID influenza than I am of the vaccine. Weighing the risk between the two, I'm going to opt for the vaccine. Everyone's input has helped me to think (and rethink) my decision, so thanks to all.

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I too will opt for the vaccine. You are not alone.

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I'm with you silverwoman. Just celebrated my 3yr anniversary on 12/22/2020. Only thing good that happened 2020 for me..I am scared but I had checkup last week and my Dr. at Mayo said , get it. I would rather suffer with side effects than suffer with the virus. Im praying for all of us that the good Lord will wrap his arms around us and pull us through,.

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@wildcat

Simply for information, can I say that my Transplant team are advising all their patients to take any of the vaccines currently available here. In Scotland that means the Pfizer mRNA vaccine or the Oxford Astra Zeneca vaccine. New vaccines will come on board I expect and we will be updated. Hope this helps.

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I love Scotland! I was there after WWII. Went over from Virginia via freighter to Edinburgh for my father to get his PHD. We lived there for about a year while he studied, lived in a tiny appt with coal heat and very little coal available. No sugar. No or little milk. I was 1 year old and began speaking with a very, thick Scotish brogue, I still revert to if ever around a Scot. I suppose I can say it's my original language, although I never spoke Celtic as far as I know! My nanny taught me to talk and took good care of me while we were there.

Mom often gave me her ration of food for the day. Unbelieveable how difficult that time was for your country. She got pheumonia on the trip home and almost died, from malnutrition. I wore a kilt, Monroe Clan, and wore it in the US after getting home. To school. Also, a little cap? I still have and occasionally use the tea coaster Mom got while there. I do love my tea……

Dad went back to Edin. to receive some kind of recognition and I was very sad I couldn't travel with him. What a lovely country! Blessings, Elizabeth

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@kcbemetoo

I'm with you silverwoman. Just celebrated my 3yr anniversary on 12/22/2020. Only thing good that happened 2020 for me..I am scared but I had checkup last week and my Dr. at Mayo said , get it. I would rather suffer with side effects than suffer with the virus. Im praying for all of us that the good Lord will wrap his arms around us and pull us through,.

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Thank you for your lovely memories and your kind words. I love your country too and spent a very happy year in St Paul as a student. Everyone loved my Scottish accent!
I'm so sad to see what is happening in Washington tonight especially when we should all be helping each other at this terrible time.

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I'm just going to give my opinion, I will not be getting the vaccine, I have had COVID, all I had was a cough….it could have been worse I agree. However, since I'm producing antibodies I think its a mute point to take it, and also the too vaccine's are Mrna vaccine a d have never been widely used in the public, everyone has to deiced for their self, weigh the pro's and cons and make their own decisions , but right now I'm worried about where the virus came from and the limited information that we have been able to see, and to one of your points, it was not near as deadly as the said and would even go so far as to say, that the numbers are wrong……mind you this is my opinion.

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@contentandwell

@cmael What hospital is your transplant team at? I am wondering because I have heard nothing yet from my hospital, Mass General, and I really want to get this vaccine. As I have heard many transplant teams have said, the side effects of the virus will be much less serious than the potential side-effects of the vaccine.

Seriously, look at how many people have died from COVID already. It's on the rise everywhere in this country, and I read that in CA it's so bad that ambulance companies have been told that patients who they believe have little chance of survival should not be brought to the hospital! So, the ambulance personnel are making that life or death decision? That just does not seem right to me.

To paraphrase the older gentleman in England who got the vaccine, "I've come this far, I don't want to die from Covid", and it is rampant everywhere now due to people not respecting the no-travel advice over the holidays.
JK

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I had my transplant at Mayo Rochester. That’s who I contacted for answers. Our daughter, my donor, was able to get her vaccine today. The place she works at was allocated 30 doses. She was offered one because they know that she spends a lot of time with me and my husband, who has dementia and helps out.

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@ca426

I'm just going to give my opinion, I will not be getting the vaccine, I have had COVID, all I had was a cough….it could have been worse I agree. However, since I'm producing antibodies I think its a mute point to take it, and also the too vaccine's are Mrna vaccine a d have never been widely used in the public, everyone has to deiced for their self, weigh the pro's and cons and make their own decisions , but right now I'm worried about where the virus came from and the limited information that we have been able to see, and to one of your points, it was not near as deadly as the said and would even go so far as to say, that the numbers are wrong……mind you this is my opinion.

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I also respect everyone’s right to make their own decision based on their circumstances. You said you had COVID and it wasn’t that bad. Are you also an organ transplant recipient?

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Yes I've had 4 kidney transplants, now don't get me wrong, this virus is very weird….but I didn't have hardly any issues as a matter of fact I would have never known, that I had the virus. I went to the ER with a bladder infection, and they did an abdominal CT, and saw some ground glass opacities on the bottom of my lungs when they made their pass and so they did the COVID test and I was positive.

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@ess77

silverwoman, I have a friend with one lung, transplanted several years ago, who is currently going through rejection testing and all that goes with it. No definitive answer yet, but he should know something in a day or so. This is such a tough spot, impossible decision at this time. There is so much still to learn about these vaccines and your situation is truly special. You are going to have to keep yourself safe until you get the absolute YES from your doctors. This is one issue re the covid vaccines that must be dealt with as the true experts……I consider the Mayo infections disease and transplant fellows the experts….have enough time and information to have solid answers. Blessings in this tough time. Elizabeth

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@ess77 I did read somewhere that if you have recent rejection you should not have the vaccine for a while.
JK

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@ca426

Yes I've had 4 kidney transplants, now don't get me wrong, this virus is very weird….but I didn't have hardly any issues as a matter of fact I would have never known, that I had the virus. I went to the ER with a bladder infection, and they did an abdominal CT, and saw some ground glass opacities on the bottom of my lungs when they made their pass and so they did the COVID test and I was positive.

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Thank you for sharing this. While I will continue to be extremely careful and do plan to get the vaccination at least I know that contracting COVID isn’t an automatic death sentence for transplant recipients on immunosuppressants. I also understand that it’s different for everyone.

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@contentandwell

@ess77 I did read somewhere that if you have recent rejection you should not have the vaccine for a while.
JK

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@ess77– This certainly makes sense. Any chance of finding the source for this?

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@ca426

I'm just going to give my opinion, I will not be getting the vaccine, I have had COVID, all I had was a cough….it could have been worse I agree. However, since I'm producing antibodies I think its a mute point to take it, and also the too vaccine's are Mrna vaccine a d have never been widely used in the public, everyone has to deiced for their self, weigh the pro's and cons and make their own decisions , but right now I'm worried about where the virus came from and the limited information that we have been able to see, and to one of your points, it was not near as deadly as the said and would even go so far as to say, that the numbers are wrong……mind you this is my opinion.

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@ca426 – Dr. Poland, of Mayo Clinic has encouraged people who have had COVID-19 to still get the vaccines because it is unknown how long your antibodies will last. I encourage you to have a talk with your doctor about this. Aside from this, after 4 kidney transplants, it might be advisable not to get the vaccines.

In making your decision have you discussed this with your family and transplant doctor? DO you think that where the virus came from has anything to do with the vaccine?

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