Thyroid? Or something else? Constant internal shakiness

Posted by amtxo1989 @amtxo1989, Feb 26, 2018

Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what’s happening when the episodes happen. So far my doctors are clueless.

@ambrose

I have had Hashimoto's for more than 30 years. Diagnosed by an endocrinologist in the early 90's. Levothyroxine overdose was the cause of much more violent internal "earthquakes" (is what i called them) for me. A functional Dr. (I found after 10 years of suffering and being told it was all in my head), switched me to Armour Thyroid (desiccated pig thyroid) – and I was a right as rain. He said that some people (like 10%) have trouble with the conversion of T4 to T3 (Levothyroxine is T4). Armour is a combination of T3 and T4. Most people can convert Levo (T4) to T3 as necessary. But he explained, that with an autoimmune disease like Hashimoto's AND with someone with conversion problems, the thyroid is still producing thyroid hormone – only the immune system is killing it before it can get to the cellular level where we "feel" better. Sometimes, he further explained, some of the natural thyroid hormone gets through and when combined with supplemental thyroid hormone, we can go into a state of "Thyroid Storm", or overdose. One theory was perhaps the immune system gets distracted from killing thyroid hormones, as in fighting an infection, etc., and the natural hormone is not destroyed, gets through the immune attach, mixes with the added / supplemental hormone, and bang – you have these "overdose" symptoms. Other causes can be in mixing T4 with for instance calcium supplements (the Tums are mostly calcium). There is definitely a calcium connection with the thyroid, / taking thyroid supplements. There is also a salt connection, particularly if you eat the common sodium chloride salt (AKA table salt). I had the most terrible thyroid storm once (with levo) after eating a huge hot dog, that was particularly salty. Same with taking calcium supplements at the same time as levo. That was way before they began to put the sticker on prescription levo / Armour, re: "do not take with calcium supplements". There has also been study after study that warns of using Flouride Bromide, or chloride (chlorine), (AKA Halides) as they can displace / attach themselves to the iodine receptors of the thyroid and again wreak havoc on the endocrine system, and any attempts we may be making towards supplementing an autoimmune disorder such as Hashimoto's. Health industry advocates would also point to stressed adrenals, however, mainstream medicine still does not recognize adrenals as contributory, for the most part. If one was to address adrenals, then things like coffee, alcohol, and other stimulants would be avoided. My experience in dealing with Hashimotos for all these many years is to eliminate as many inflammation-causing foods as possible (alcohol being number one – darn it!). Gluten / processed and fast foods being a close second. So many inflammation avenues that one must consider when dealing with any autoimmune disorder. And with Hashimotos, you must have a thyroid replacement hormone – you won't have any semblance of a normal life without it. The unbelievably sad part is – even if you find an endocrinologist who will run the thyroid antibodies test. (TSH, T3, T4 test alone won't find Hashimotos). they don't seem to want to do it! Recently had a family member who cannot pin down the many obviously hormone-related problems she is having, finally secured an appointment with an endo, and he actually said, "So what if we do find Hashimotos?" "There is no cure for it!" "Why do you want to know?" While there probably is no cure (There are those who say it is possible to put autoimmune into remission) – there is treatment! Thyroid Replacement Hormone!
The constant internal shakiness is most probably an imbalance of T3 / T4 in someway – regardless of whether it is undermedicated, overmedicated, or not medicated at all – or of an interference with replacement hormone, like calcium, fluoride, bromide (found in flour – "Bleached wheat flour" in the US – outlawed int the UK). That has been my painfully acquired education and experience. The good news? Once you start paying attention to when / how these episodes occur, (assuming you do have supplemental thyroid hormones of some sort) – life with Hashimotos can be fairly close to normal wonderful!

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HELLO THANK YOU FOR YOUR POST I LEARNED A LOT FROM IT AS I HAVE GRAVES DISEASE AUTOMMUNE DISEASE ALSO DONT KNOW WHERE THE CAUSE OF IT IS. MY EYES ARE AFFECTED DOUBLE VISION. TAKE CARE TERESA

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Yes, Graves Disease does affect the eyes – most notably. However, the treatment for Graves is not more thyroid hormone, but other medicines of which I know a lot less about. I do know that Graves's disease is very treatable. Are you taking medicine / being treated? Oddly enough, I heard that in the bad old days, when much less was known about treatment for Graves, that "Flouride" and "Chloride" were some of the things they chose to try and stifle thyroid hormone production! There are much more effective medicines today – or so I've heard.

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I have the internal shakiness 24/7 i suffer from Hashimoto's but nobody knows what it is from either, i am going crazy. The only thing is my BP does not go up but this is horrible i feel inside like when you are cold that you tremble all over plus i have Tinnitus that makes it worse. I have an appointment next Tuesday with my endo, although i do not trust any been to nine of them and none knows too much about my condition. I have been to the Neurologist and done many test and nothing just some white matter but he says that is nothing, have and MRI and an MRA both ok, have many labs and nothing so it is really very frustrating. If you find anything that helps you or take it away please let me know

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@jewles63

Hi, I have had some of these same symptoms for over a year and about 4 doctors later I’m still not any closer to finding out why this is happening. It started out with chest pain lasting about 15 minutes that sent me to a doctor, after running some blood tests and a normal ecg he diagnosed me with Hasimotos and sent me for an ultrasound of my thyroid. I started levthyroxin and multiple nodules were found and my thyroid was enlarged, but we will keep an eye on it. (He said)! Still getting chest pain I was sent to a cardiologist where after lots of tests was found to be normal (lol) ! Now I have a vibration throughout my body that is driving me nuts.. Sent to a neurologist that found neuropathy in my legs and feet and started another medication for that. Still get the chest pain about once or twice a month and vibrate like a cell phone . I’m at a loss…and another ultrasound scheduled this week!

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Hi, i also have those vibrations/internal shakiness and for many years now been to neurologist, have MRI AND MRA and found nothing my endo knows nothing or any other doctor very frustratiing. If you find out what it is please share it, thanks

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@oregongirl

It appears that many doctors are clueless when it comes to pain and Autoimmune diseases. I put off calling my doctor for two days now. All I have to say to her is I cannot take it anymore. I feel sorry for you Amtxo. I complained of serious withdrawal pain for three nights at the ER. They sent me home Next day, Gall Bladder was an urgent surgery. I was full of infection. We do not know what this does to our organs. Xanex is strong. I could not take it.

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I'm so sorry the ER didn't listen 😔 I hope you are healing

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@khali

I have the internal shakiness 24/7 i suffer from Hashimoto's but nobody knows what it is from either, i am going crazy. The only thing is my BP does not go up but this is horrible i feel inside like when you are cold that you tremble all over plus i have Tinnitus that makes it worse. I have an appointment next Tuesday with my endo, although i do not trust any been to nine of them and none knows too much about my condition. I have been to the Neurologist and done many test and nothing just some white matter but he says that is nothing, have and MRI and an MRA both ok, have many labs and nothing so it is really very frustrating. If you find anything that helps you or take it away please let me know

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You will get better when you get thyroid replacement hormone – I know it took me 10 years to finally find an endo who would test something other than TSH, T3, and T4. You must have the test for TPO antibodies. The ending who finally and kindly listened to me had me collect urine for a week. And yes, then my “borderline” thyroid disfunction” was diagnosed as Hashimotos and I was given Levothyroxine – and probably overdosed – which is even worse! Ended up on Armour Thyroid for 30 years, (tinnitus never stopped) now am back on a much lower dose of Levo. Recently discovered that most people with Hashis also have adrenal problems (craving salt is a tell-tale). Started treating adrenals by taking Fulvic minerals. Calms jitters within the hour – like 1 oz of liquid minerals. wonderful stuff! After 30 years researching this on my own I’ve discovered the root cause is probably in the gut and with the liver. I have begun and tried all sorts of natural protocols like ginger tea and probiotics. Every little bit helps! Hope this helps you! Please write and tell us what works for you all we have is each – other the medical community is ignoring Hashimoto’s and has been and it’s becoming pandemic.

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@ambrose

You will get better when you get thyroid replacement hormone – I know it took me 10 years to finally find an endo who would test something other than TSH, T3, and T4. You must have the test for TPO antibodies. The ending who finally and kindly listened to me had me collect urine for a week. And yes, then my “borderline” thyroid disfunction” was diagnosed as Hashimotos and I was given Levothyroxine – and probably overdosed – which is even worse! Ended up on Armour Thyroid for 30 years, (tinnitus never stopped) now am back on a much lower dose of Levo. Recently discovered that most people with Hashis also have adrenal problems (craving salt is a tell-tale). Started treating adrenals by taking Fulvic minerals. Calms jitters within the hour – like 1 oz of liquid minerals. wonderful stuff! After 30 years researching this on my own I’ve discovered the root cause is probably in the gut and with the liver. I have begun and tried all sorts of natural protocols like ginger tea and probiotics. Every little bit helps! Hope this helps you! Please write and tell us what works for you all we have is each – other the medical community is ignoring Hashimoto’s and has been and it’s becoming pandemic.

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Thanks for sharing the TPO antibodies test information @ambrose. @kahli here is information on the test from Mayo Clinic:

Thyroid peroxidase antibody test: What is it?
https://www.mayoclinic.org/thyroid-disease/expert-answers/faq-20058114

Have you thought about getting a second opinion? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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@khali

Hi, i also have those vibrations/internal shakiness and for many years now been to neurologist, have MRI AND MRA and found nothing my endo knows nothing or any other doctor very frustratiing. If you find out what it is please share it, thanks

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I started internal vibrations/tremors 4 months ago. I thought they were better but we’re not…until, I found what appears to be the reason behind the vibrations. I had a roof leak in June 2019 it was found. The hoa contractor plastered over two wall sections that showed water damage. One wall section was very large 7’ tall x 31” wide. He did repair the mold he found in the ceiling. I kept being very sick. Unusually so. I had a contractor come open the wall. He found very bad mold. I did the mold analysis test. Just got result. It was chaetomium. A dangerous mold that can permanently damage your nervous system. I have been staying in my daughters room, unfortunately she got the sofa because I’m disabled and have pain. I get the mildest vibrations now but only when I go near the water damaged area. It’s been an answer!!! And it’s been consistent. I sleep all night no vibrations and they used to be the worst at night. And I have just the super mild ones when I get even close to the fireplace. The rain leak was at the chimney. Unfortunately it’s not my liability and I can’t afford the repair. So I’m trying to work with the HOA in hopes neither of us have to spend money on an attorney. I will pray for you, if that’s ok. I don’t get on here often I’m visually impaired. But would ask you to consider if there has been any leak even in the past in the home you live in. Mold is coming out from my research to be a cause of things like Alzheimer’s. I saw they are going to put something out and it’s important info. I’m only good at research. I don’t claim it’s 100%. But might be important for you to did deep into research on the web about chaetomium and mold causing nervous system damage. I hope you improve. I know what you feel. Super scary all day long having those vibrations.

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@jewles63

Hi, I have had some of these same symptoms for over a year and about 4 doctors later I’m still not any closer to finding out why this is happening. It started out with chest pain lasting about 15 minutes that sent me to a doctor, after running some blood tests and a normal ecg he diagnosed me with Hasimotos and sent me for an ultrasound of my thyroid. I started levthyroxin and multiple nodules were found and my thyroid was enlarged, but we will keep an eye on it. (He said)! Still getting chest pain I was sent to a cardiologist where after lots of tests was found to be normal (lol) ! Now I have a vibration throughout my body that is driving me nuts.. Sent to a neurologist that found neuropathy in my legs and feet and started another medication for that. Still get the chest pain about once or twice a month and vibrate like a cell phone . I’m at a loss…and another ultrasound scheduled this week!

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I had vibrations for 4 months. I made a post today. My vibrations are so much better almost completely gone 2 weeks now! I only get super mild ones. Barely notice them and only when I get near the fireplace. I had a rain leak in the chimney last year. Long story short. The leak was not correctly fixed by the contractor. I had a mold analysis done. It was chaetomium mold. And at a problem level. I would research heavily mold. Chaetomium has been known tho cause perm nervous system damage. This is serious. There is research out there some site was talking about it being or mold being a cause of short timers disease. Im not a doctor. But consider researching mold. Consider if you’ve had any water leaks anywhere in your home in the past. I wish you peace and that you find the answer and get better. I’m seldom on here since I’m visually impaired. But I’ll try to check in.

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@jewles63

Hi, I have had some of these same symptoms for over a year and about 4 doctors later I’m still not any closer to finding out why this is happening. It started out with chest pain lasting about 15 minutes that sent me to a doctor, after running some blood tests and a normal ecg he diagnosed me with Hasimotos and sent me for an ultrasound of my thyroid. I started levthyroxin and multiple nodules were found and my thyroid was enlarged, but we will keep an eye on it. (He said)! Still getting chest pain I was sent to a cardiologist where after lots of tests was found to be normal (lol) ! Now I have a vibration throughout my body that is driving me nuts.. Sent to a neurologist that found neuropathy in my legs and feet and started another medication for that. Still get the chest pain about once or twice a month and vibrate like a cell phone . I’m at a loss…and another ultrasound scheduled this week!

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Hi, have you figured out what was causing all of it? I have very similar symptoms and have no idea where to go. Have been to cardiologists already, nobody gives me any definitive answer. Could it be just from the thyroid? Thanks!

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@khali

I have the internal shakiness 24/7 i suffer from Hashimoto's but nobody knows what it is from either, i am going crazy. The only thing is my BP does not go up but this is horrible i feel inside like when you are cold that you tremble all over plus i have Tinnitus that makes it worse. I have an appointment next Tuesday with my endo, although i do not trust any been to nine of them and none knows too much about my condition. I have been to the Neurologist and done many test and nothing just some white matter but he says that is nothing, have and MRI and an MRA both ok, have many labs and nothing so it is really very frustrating. If you find anything that helps you or take it away please let me know

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I know how horrible thes vibrations are!!! Oh my they are scary. And you have to go to sleep with them. They go on throughput sleep and daytime. Mine have improved but you may have read I had found mold from a recent roof leak. This chaetomium mold can permanently damage the nervous system. I’m not say you have mold I’m saying I moved out of that part of my house and sm waiting on Remediation. While I moved out I’m vibration free practically. They are so mild I barely can notice them. When the mold is gone I bet they’ll be gone. I have heart cath s going on. Had high BP all last year. Super high. 243/103. I’m visually impaired so please excuse my typos. I’ve been to all the docs you said. I’ve had all the tests you said. No answer. I have neuropathy but this is different. My neuropathy doesn’t vibrate. But. Main thing is I think I found my source…the mold from the recent roof leak. I pray you find your answer too.

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@tsilia07

Hi, have you figured out what was causing all of it? I have very similar symptoms and have no idea where to go. Have been to cardiologists already, nobody gives me any definitive answer. Could it be just from the thyroid? Thanks!

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Good morning @hope58 @jewles63 @khali I found this article about internal tremors that might be interesting. But, please, don’t get me wrong; I’m NOT saying that anyone one of these diseases! But, maybe there would be something of interest. https://www.medicalnewstoday.com/articles/322217
Have the doctors said anything? Maybe keep a log with time of day, location of tremors, how long they last, etc. Then you can show it to the doctors. Good luck to you!

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@becsbuddy

Good morning @hope58 @jewles63 @khali I found this article about internal tremors that might be interesting. But, please, don’t get me wrong; I’m NOT saying that anyone one of these diseases! But, maybe there would be something of interest. https://www.medicalnewstoday.com/articles/322217
Have the doctors said anything? Maybe keep a log with time of day, location of tremors, how long they last, etc. Then you can show it to the doctors. Good luck to you!

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Thank you, @becsbuddy, that was a good article!

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@joyg

Hi amtxo, I have experienced the internal tremors as well. It is in the back of my head, spine and hips. I have hashimotoe's (autoimmune thyroid disease) but not hypothyroid as of yet that I know of. I also experience neuropathy and weird imbalance issues like I am walking on sand or bouncing up and down really fast even though I am walking on normal ground and not bouncing! It's worse after using elevators and wearing heeled shoes. I have no diagnosis yet but I wanted to let you know that internal tremors I looked up may be harmless. I to do not know what causes it but I will keep you updated as I am undergoing test and treatments.

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Please if you find anything about what is causing the internal shakiness or tremor please share i have this but specially in my head and like chest kind of and sometimes it is very strong, been to neurologist, internist, endocrinologist, and nobody knows what it is or where does it comes from.

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56 Year Old Male on Synthroid for 20 years. I had a Thyroid Storm in 2018 that went undetected for 10 months causing heart issues, terrible rashes, anxiety and anxiety attacks, etc. It took another year to get my Thyroid numbers normalized. Now I am left with internal shakiness/ feelings of weakness – especially in the morning. I'm taking Lexapro daily and Lorazepam when needed to deal with the anxiety from the internal issues. Daily issue, sometimes leading to panic attacks. Any thoughts anyone?

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