amtxo1989
@amtxo1989
@amtxo1989
Posts: 6
Joined: Jan 26, 2017
Thyroid? Or something else? Constant internal shakiness
Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what’s happening when the episodes happen. So far my doctors are clueless.
John, Volunteer Mentor
@johnbishop
@johnbishop
Posts: 7064
Joined: Mar 22, 2016
Hi, I'm just wondering you ever got a diagnosis? I am experiencing the exact same thing, internal tremors when I'm sleeping, only in my trunk and head. I don't feel them in my limbs. I also feel the need to get up and move around and this definitely helps.
No one can figure out what's wrong . All my blood work is fine, and indicate no thyroid issues but am in Peri menopause. Started estrogen and progesterone but hasn't helped.
I'm starting to worry about MS or Parkinsons but apparently I don't have any of the other symptoms.
It's all very frustrating and scary.
Hello @dalmdal, Welcome to Mayo Clinic Connect. While we wait so see if @jsrbr replies to your post wondering it they have received a diagnosis for symptoms similar to yours, there are other discussions on Connect you may find helpful.
— Internal vibrations: https://connect.mayoclinic.org/discussion/internal-viberations/
— GI Disorder and Internal Shaking: https://connect.mayoclinic.org/discussion/gi-disorder-and-internal-shaking/
You mentioned that no one can figure out what's wrong. Have you thought about seeking help at a major teaching hospital or the Mayo Clinic?
jewles63
@jewles63
@jewles63
Posts: 10
Joined: Mar 17, 2019
Happy St. Patrick's Day
I think everyone is Irish on this day. lol
Anyway, due to having pink eye and just starting eye meds, I'm not going back to read all your posts. So, If I say something you already addressed, I'm sorry!
I've had a sluggish thyroid for years and years. With meds, it has kept it normal. All of a sudden, about 3 weeks ago, I went to the neurologist (will tell you about it in a minute) and she ordered blood work. My thyroid number was way, way, way low. My PCP had me take it again (3 weeks later) and the result was the same. He is reducing my dosage. It must explain why I am so tired and why when I look at food I put on 10 pounds. He will redo the blood work in 3 months after I've had time to get the new dosage. I am hoping it will arrive this week from my mail away pharmacy.
That's the story about my thyroid. Now the shaking. Another story…….
This year I've had 2 spinal surgeries (Feb. my cervical spine and Oct.my lumbar spine). As far as I am concerned they were a success because it too away the chronic pain (24/7) that I experienced for over 10 years, probably closer to 15. Just a couple of months before my lumbar surgery, I noticed that when I sat, I couldn't sway my right foot, lift my toes or move my toe at all. I also noticed that although it was not the same as the right, my left foot did not feel normal, either. My neurosurgeon took ALLLLLLL SORTS OF TESTS and could not figure it out. He said if it didn't improve after the lumbar surgery, he wanted me to see a neurologist.
Not only did my symptoms NOT improve, they were worse. I needed to use a cane to walk and I had s few falls. This is something you don't want to do after spine surgery. Off to the neurologist I went…….
During my preliminary exam she noticed my hands quivered. I did notice that starting to happen, too. My mom, son and cousin also have (or had) quivering hands. It did not prevent any of them from writing or doing anything. As a matter of fact, my mother was a typist and my son does nuclear medicine tests that require him to give injections. Neither had a problem. Then, the doctor looked in my mouth. She noticed the roof of my mouth was quivering, too. I never felt that.
She reviewed my MRI (ordered by the neurosurgeon) and noticed that a bunch of nerves are clumping together. I also still have stenosis. However, NONE of these hurt. The doctor who performed the test said I have SIGNIFICANT nerve damage coming from my lumbar spine and S1. That is all he would say. I meet with the neurologist Tuesday, followed by an appointment with the neurosurgeon. It is my hope that they will be able to give me a diagnosis (more than neuropathy in my feet) and come up with some sort of a plan of action to slow down the neuropathy.
The reason I al telling you all this is because I have some of the similar symptoms and I wanted you to know about who I have seen and tests they performed. Will share more after my appointments; that is if they give me more information.
Happy Sunday……
Ronnie (GRANDMAr)
Hi, Over a year later , 4 more Drs after being hospitalized for chest pain for 4 days and still no answers. Referred me to Shands Gainsville Fl and did find a dr for the chest pain ,4 heart meds later for possible micro vascular disease causing heart spasms as for the vibration it’s still going strong driving me crazy. I was switched from Gabapentin to Lyrica this last month but really no change just worse headaches. My neurologist referred me to Mayo Jacksonville Fl so I wait for an appointment . We will see !!!
Liked by John, Volunteer Mentor
bustrbrwn22
@bustrbrwn22
@bustrbrwn22
Posts: 369
Joined: Aug 28, 2020
Hi, Over a year later , 4 more Drs after being hospitalized for chest pain for 4 days and still no answers. Referred me to Shands Gainsville Fl and did find a dr for the chest pain ,4 heart meds later for possible micro vascular disease causing heart spasms as for the vibration it’s still going strong driving me crazy. I was switched from Gabapentin to Lyrica this last month but really no change just worse headaches. My neurologist referred me to Mayo Jacksonville Fl so I wait for an appointment . We will see !!!
@jeweles63. Please keep us posted. My heart goes out to you for dealing with for so long
Liked by sears
dorisena
@dorisena
@dorisena
Posts: 545
Joined: Mar 04, 2019
Good choice for Mayo Clinic at Jacksonville. It is surprising the doctors don't all have the answers right a way. Everyone is different at times. Your lifestyle choices are part of the equation so you need to learn about eating as well. Always try to talk to a nutritionist in addition to the doctors. Dorisena
terri672
@terri672
@terri672
Posts: 57
Joined: Jul 19, 2018
Hi I also have internal shakiness but I call it electricity. Not sure if we have the same symptom. I have it in my legs (calves) bad and over the last few years in my hands. It gets much worse if I don't sleep well. I also need pain killers for it as the vibrations don't stop and the shakiness is also painful after I start feeling it for 5 minutes. Nothing else has helped me. I am also hypothyroid. It was also spreading to the bottom of my lumbar. I had that for a week and I did read on line that there is not enough calcium in your body and the nerves are not connecting and can cause this tremor. This person recommended taking Tums – since I was desperate for it not to be in another spot in my body I did take Tums , the first 2 weeks every day just 2 or 3 at the most. And believe it or not that stopped the vibrations in my lower back. Who knows? I now take Tums about 3 or 4 times a week to make sure, if they are helping to stop this weird electricity, that I have enough calcium in my system. Maybe it is part of a calcium issue? NO dr. in 20 years has any idea why this happened but it happened to me at the exact same time my thyroid went. I am sorry that this is going on at only 28, but maybe the Tums might help you.
Have they tested your calcium levels? Calcium is necessary for the movement of the muscles, including your heart (which is a muscle). Without enough calcium your heart can stop…
dorisena
@dorisena
@dorisena
Posts: 545
Joined: Mar 04, 2019
This reminds me of my mother whom I couldn't convince her that her heart is a muscle. She thought she should save her heart so it would last longer. Then she wouldn't buy fresh milk because she couldn't use it up before it got bad. But she would eat vegetables from my garden, so that was good. I managed to get her to walk in the summer for a couple of years, but then the arthritis hurt to much for her. The heart needs exercise like the rest of the body. Dorisena
jewles63
@jewles63
@jewles63
Posts: 10
Joined: Mar 17, 2019
This reminds me of my mother whom I couldn't convince her that her heart is a muscle. She thought she should save her heart so it would last longer. Then she wouldn't buy fresh milk because she couldn't use it up before it got bad. But she would eat vegetables from my garden, so that was good. I managed to get her to walk in the summer for a couple of years, but then the arthritis hurt to much for her. The heart needs exercise like the rest of the body. Dorisena
I will try to keep up with my journey and keep you guys in the loop. As for my diet I think I eat pretty good , not plant based like my PCP would like but pretty close. I have struggled with exercise with living in Florida it’s really hot 🥵 and I have issues with heat. Just have to find a routine that works with my issues. I’m lucky to get in 6000 steps on a good day. My husband did order a treadmill for me and I’m totally willing to give it a try. So for now have a great day .
jewles63
@jewles63
@jewles63
Posts: 10
Joined: Mar 17, 2019
Good morning @hope58 @jewles63 @khali I found this article about internal tremors that might be interesting. But, please, don’t get me wrong; I’m NOT saying that anyone one of these diseases! But, maybe there would be something of interest. https://www.medicalnewstoday.com/articles/322217
Have the doctors said anything? Maybe keep a log with time of day, location of tremors, how long they last, etc. Then you can show it to the doctors. Good luck to you!
Thx
jewles63
@jewles63
@jewles63
Posts: 10
Joined: Mar 17, 2019
Have they tested your calcium levels? Calcium is necessary for the movement of the muscles, including your heart (which is a muscle). Without enough calcium your heart can stop…
Yes my levels are at 9.5
jewles63
@jewles63
@jewles63
Posts: 10
Joined: Mar 17, 2019
jewles63
@jewles63
@jewles63
Posts: 10
Joined: Mar 17, 2019
Hello @jewles63, You haven't posted in awhile and I was wondering how you are doing with your neuropathy and other symptoms. Are you still on Gabapentin for your neuropathy pain symptoms? Have your doctors found anything else on the heart palpitations or internal vibrations?
Recently switched to lyrica. And referred to mayo
jewles63
@jewles63
@jewles63
Posts: 10
Joined: Mar 17, 2019
Hello @jewles63, You haven't posted in awhile and I was wondering how you are doing with your neuropathy and other symptoms. Are you still on Gabapentin for your neuropathy pain symptoms? Have your doctors found anything else on the heart palpitations or internal vibrations?
Apparently all replies are going to my junk folder ( that I very rarely check) so I apologize for the extreme delay .
@johnbishop
Hello @jewles63, You haven't posted in awhile and I was wondering how you are doing with your neuropathy and other symptoms. Are you still on Gabapentin for your neuropathy pain symptoms? Have your doctors found anything else on the heart palpitations or internal vibrations?
Liked by Colleen Young, Connect Director