Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what’s happening when the episodes happen. So far my doctors are clueless.
Hello @dalmdal, Welcome to Mayo Clinic Connect. While we wait so see if @jsrbr replies to your post wondering it they have received a diagnosis for symptoms similar to yours, there are other discussions on Connect you may find helpful.
— Internal vibrations: https://connect.mayoclinic.org/discussion/internal-viberations/
— GI Disorder and Internal Shaking: https://connect.mayoclinic.org/discussion/gi-disorder-and-internal-shaking/
You mentioned that no one can figure out what's wrong. Have you thought about seeking help at a major teaching hospital or the Mayo Clinic?
Hi, Over a year later , 4 more Drs after being hospitalized for chest pain for 4 days and still no answers. Referred me to Shands Gainsville Fl and did find a dr for the chest pain ,4 heart meds later for possible micro vascular disease causing heart spasms as for the vibration it’s still going strong driving me crazy. I was switched from Gabapentin to Lyrica this last month but really no change just worse headaches. My neurologist referred me to Mayo Jacksonville Fl so I wait for an appointment . We will see !!!
Liked by John, Volunteer Mentor
Good choice for Mayo Clinic at Jacksonville. It is surprising the doctors don't all have the answers right a way. Everyone is different at times. Your lifestyle choices are part of the equation so you need to learn about eating as well. Always try to talk to a nutritionist in addition to the doctors. Dorisena
This reminds me of my mother whom I couldn't convince her that her heart is a muscle. She thought she should save her heart so it would last longer. Then she wouldn't buy fresh milk because she couldn't use it up before it got bad. But she would eat vegetables from my garden, so that was good. I managed to get her to walk in the summer for a couple of years, but then the arthritis hurt to much for her. The heart needs exercise like the rest of the body. Dorisena
I will try to keep up with my journey and keep you guys in the loop. As for my diet I think I eat pretty good , not plant based like my PCP would like but pretty close. I have struggled with exercise with living in Florida it’s really hot 🥵 and I have issues with heat. Just have to find a routine that works with my issues. I’m lucky to get in 6000 steps on a good day. My husband did order a treadmill for me and I’m totally willing to give it a try. So for now have a great day .
Hello John or whom ever I can get ahold of. I’ve been reading bout this situation here bout if thyroid could be the cause of tremors I’m having. I have hoshimoto. I recently googled “what could be causing my body to have vibrations?” And the link came up also what you had replied to a lady. Mentions Parkinson’s. On the site they call this as tremors. I call it vibrations. W this CoVid19, my husband was layed off work n his insurance expired that midnight. Been since last March. So I’ve not been able to go to my Dr with cost of $80 just to see my Dr. cash only. But I think I’m at the point to lay out the $. My husband is 63 now n I’m 60. My mom died w Parkinson’s n Heart failure. I also have RSD. But even though this is the same feeling as having my Spinal Cord stimulator turned on it’s not that. I’ve not been able to use it past 3-4 yrs as the battery died. Had it put in 2007. I been having bad occipital nerve pain on my left side. I saw a neurologist nearly 2 yrs ago n was swollen on those nerves back of my head. Had nerve block which was more than painful n aggravated that area more. Took 8 months or more just to get it able to live with. But the past 5-6 months I’ve been having these vibrations n my left side. Started like buzzing n bottom of my foot. Now it’s up all my left side n goes up to back of my neck n round part of my head. When I lay on my back I can feel it all through out my body all way up my butt cheeks n belly. It’s like trying to shake off n I can’t. It’s also buzzing n my right foot up my leg. N back of both my arms. It’s like involuntary waving of my arms cause it’s nerve racking n I’m trying to shake it off.I hold out my hands n front of me n the hey both tremble some w the right side more. I’m right handed. So I’m wondering if it could be Parkinson’s related as my mom died w it. Also another issue. I’m really broken. But I also have POTS Disease. Midodrin not helping. N I really can’t afford to see the heart Dr right now so I asked Siri n she directed me here. But w my Orthostatic problem I’m not able to be up very long. I go to the kitchen n I’m bout to drop after 10 min of cuttin up a chicken. My BP drops n my heart races up high. BP has gotten to 65/40. N when I take a shower I can’t stand no longer than 5 min till it happens again n when I do get out I end up puking. Every time I puke. It’s been 10 days n I’m needing a shower as I’m getting ranked w my own sweat which is another issue I’m continually sweating like a cotton picker. I do anything n I start sweating like crazy then chills. I’m sweating n freezing cold at the same time. I’m always sweating. I can’t wear a coat. N it’s cold in Michigan right now. So since Christmas I’ve been laying down a lot Thinkin maybe might make me bet but it’s just worse. What does any of this info lead to your mind? I’ve fallen few times n passed out from this. So any sort of idea that you can relate any of this to, I’d sure appreciate your perspective.
Hello @champton, Welcome to Mayo Clinic Connect. I'm sorry to hear that your husband has been laid off of work and you also lost your health insurance. I can't begin to imagine how hard that must make it for you and your husband. As members of Connect we can only share our experiences and not give medical advice or diagnosis.
@hopeful33250 may be able to share her thoughts about the possibility of Parkinson's. Mayo Clinic has some lifestyle and home remedy information related to abnormal excessive sweating (Hyperhidrosis) that you may find helpful.
– Hyperhidrosis – Diagnosis & treatment: https://www.mayoclinic.org/diseases-conditions/hyperhidrosis/diagnosis-treatment/drc-20367173
You might want to see what help is available in your area for low cost health care if you don't qualify for Medicaid.
– How to find low-cost health care in your community: https://www.healthcare.gov/community-health-centers/
You mentioned not being able to take a shower because you can't stand more than a few minutes. Have you thought about any alternatives like using a washcloth while sitting close to a sink or bathtub?
Liked by Erika, Connect Moderator
@johnbishop
Hello @jewles63, You haven't posted in awhile and I was wondering how you are doing with your neuropathy and other symptoms. Are you still on Gabapentin for your neuropathy pain symptoms? Have your doctors found anything else on the heart palpitations or internal vibrations?
Liked by Colleen Young, Connect Director