Thyroid? Or something else? Constant internal shakiness

Posted by amtxo1989 @amtxo1989, Feb 26, 2018

Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what’s happening when the episodes happen. So far my doctors are clueless.

@jbug

Hi@nancgdav your story sounds extremely like mine! I too suffer daily with internal shaking that causes me daily anxiety at work…which makes it even worse of course. I find the shaking worse when i'm tired as well. I have seen numerous doctors and gone through the run of tests, none of which flag anything. Every doctor I have seen are perplexed by the internal vibrations and can't seem to explain it. I was going to start acupuncture too as an option and wondered how your experience had been with it? I'm almost a year into these symptoms and i'm so tired of the worry/struggle to find a solution. Thanks!

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@jbug I also welcome you to MayoClinicConnect. Living with your situation for a year with no answers must be so worrying! And having the anxiety extend into your work day…… Have you been able to talk with a therapist or counselor to find ways to deal with the anxiety? Are your coworkers able to detect the anxiety? Maybe you’re able to hide it real well and that just adds to the worry. My doctor just suggested that I go back to my therapist because I haven’t been able to come to terms with all that has happened in the past 2years. Everyone thinks I’m fine, but I’m not and it really weighs on me and worries me. Guess I should follow my own advice and call! A therapist may help you, too. Will you think about it? And follow @johnbishop ‘s advice, also!

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@tanap1

@blulilbaby, Oh wow!! I can relate to those symptoms and more!! I have also been diagnosed with Hashimoto's. I do have hypothroiditis. My thyroid hormones check out well with my medications, however, my TPO antibodies and TG antibodies remain crazy high! I have had numerous falls (2 broken bones) due to imbalance issues, temors in my hands and head-neck. The tremors seem to be more obvious to others the more physically tired I am. I have memory issues, possible witnessed absence seizures, loss of words, horrble spasms in my feet….ugh!! I could go on and on! I have been doing test after test for more than 5 years now! These symptoms come and go! I can tell you a bunch of things i DONT have! It IS frustrating!! I just wish i could find even i trigger to feel like i have some control over this

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I have all of these symptoms. Please get tested for bartonella. It is so hard to diagnose. It many times needs to be cultured in a lab to be found. Galaxy labs has a culture test that Is one of the only accurate resources. Good luck.

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@lifewarriorwellness

I have all of these symptoms. Please get tested for bartonella. It is so hard to diagnose. It many times needs to be cultured in a lab to be found. Galaxy labs has a culture test that Is one of the only accurate resources. Good luck.

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Hello @lifewarriorwellness, welcome to Connect. Thank you for sharing your experience. I found the site you referenced and thought I would post the link for you since new members are not able to post links for a short period of time after joining. Also found a few other sites with information on Bartonella.

Galaxy Diagnostics
https://www.galaxydx.com/what-is-bartonellosis/

CDC – Bartonella Testing FAQs
https://www.cdc.gov/bartonella/testing-faq/index.html

National Organization for Rare Disorders
https://rarediseases.org/rare-diseases/bartonellosis/

You mentioning having all of these symptoms. Were you diagnosed with bartonella? How are you doing now?

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Since November I've been to the ER 3 times for acute anxiety. Blood Pressure was out of bounds. I have the shakiness inside too and the anxiety drugs they gave me at the hospital doesn't work. I also have hypothyroid but don't know if that is the problem. Thyroid tests come back in range, but the doctor keep me in the low range and I don't know why. I'm have a lot of problems and the shakiness is just one of them.

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@dablues

Since November I've been to the ER 3 times for acute anxiety. Blood Pressure was out of bounds. I have the shakiness inside too and the anxiety drugs they gave me at the hospital doesn't work. I also have hypothyroid but don't know if that is the problem. Thyroid tests come back in range, but the doctor keep me in the low range and I don't know why. I'm have a lot of problems and the shakiness is just one of them.

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Hi @dablues, I know it can be frustrating when the doctors are not able to figure out what's going on with your body. You mentioned the doctor keeping you in the low range but you don't know why. I'm wondering if your doctor may have an idea of what's going on but has not communicated it to you. Are you able to discuss your questions with your doctor?

I did find an interesting article on the thyroid that may provide some helpful information. Harvard Medical School — Could it be my thyroid?: https://www.health.harvard.edu/healthbeat/could-it-be-my-thyroid

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Thanks for the reply. She tried to explain and felt that it was in my best interest where it was at. My previous doctor also kept me in the low range, or maybe I should say they would say it was normal and I would ask what range it was in, and it was always low. I'm perplexed

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I too started having internal tremors about 2 months ago. I’m visually impaired so please excuse typos. But the really good news is mine have stopped!!!!! Ohmygosh these were scary. They were so strong I almost couldn’t sleep. I don’t know much but my doctor thought it was from nerve damage since I am a T1D (juvenile diabetic) . But I don’t think so. I had serious high blood pressure issues all year. TIA’s and just at the end of Nov 2019 I found out my brain checked out but my heart has a super high calcium score of 1,333. Should be less than 400. My brother is not diabetic and his score is considered very high too at 500. Lol mine is worrisome. But I found out then I had 3 heart blockages. Now I did recently start a very low dose anxiety med because my doc thought it could help my high be. And I do have a low thyroid all my life. But thyroid has checked out too. The very first time I felt the internal vibrations I had overdone cleaning my closet upstairs and oh I guess I’ve had the vibrations 4 months cause the first one was late September when I was cleaning my closet and I felt like I had a serious heat exhaustion. I laid down and woke with the internal vibration and also a visual disturbance in my best eye. I’m blind in one eye. But anyway. Race forward almost 4 months and I had 2 stints put in my heart 2 weeks ago. And last week these vibrations started getting less strength in the vibration. I could at least tolerate them. But now they are gone!!!! I’m sooooooo thankful I can not explain how much cause I’ve just not understood what was happening tome!!! I just looked this up again and found your forum and had to tell each of you there is hope. And I also wanted to say what my circumstances are. I’ve had blood pressure meds changed and it could have o do with that too. All the things I mentioned. Diabetes and low thyroid are both autoimmune diseases so I have both of them. Anyway ask me any questions. Sending you prayers for yours to go away🙏❤️

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My reply is below. But I wanted to tell you my boss was as high as 243/110. And I’ve ran in the 180/101 range for many months of this year with all my doctors aware. My cardiologist and neurologist. All of them. My internal vibrations have just stopped. Finally they were really really making me worry. I am on the low side of the normal range for my tsa too. I’ve been on anxiety meds this year because doc thought it could help my bp. My bp has been super high all year long. So I understand your frustration.

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@hope58

My reply is below. But I wanted to tell you my boss was as high as 243/110. And I’ve ran in the 180/101 range for many months of this year with all my doctors aware. My cardiologist and neurologist. All of them. My internal vibrations have just stopped. Finally they were really really making me worry. I am on the low side of the normal range for my tsa too. I’ve been on anxiety meds this year because doc thought it could help my bp. My bp has been super high all year long. So I understand your frustration.

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Hello, @hopeful58. I’m really puzzled about your high blood pressure and your doctors being aware. Have you had any 2nd opinions?

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@hope58

I too started having internal tremors about 2 months ago. I’m visually impaired so please excuse typos. But the really good news is mine have stopped!!!!! Ohmygosh these were scary. They were so strong I almost couldn’t sleep. I don’t know much but my doctor thought it was from nerve damage since I am a T1D (juvenile diabetic) . But I don’t think so. I had serious high blood pressure issues all year. TIA’s and just at the end of Nov 2019 I found out my brain checked out but my heart has a super high calcium score of 1,333. Should be less than 400. My brother is not diabetic and his score is considered very high too at 500. Lol mine is worrisome. But I found out then I had 3 heart blockages. Now I did recently start a very low dose anxiety med because my doc thought it could help my high be. And I do have a low thyroid all my life. But thyroid has checked out too. The very first time I felt the internal vibrations I had overdone cleaning my closet upstairs and oh I guess I’ve had the vibrations 4 months cause the first one was late September when I was cleaning my closet and I felt like I had a serious heat exhaustion. I laid down and woke with the internal vibration and also a visual disturbance in my best eye. I’m blind in one eye. But anyway. Race forward almost 4 months and I had 2 stints put in my heart 2 weeks ago. And last week these vibrations started getting less strength in the vibration. I could at least tolerate them. But now they are gone!!!! I’m sooooooo thankful I can not explain how much cause I’ve just not understood what was happening tome!!! I just looked this up again and found your forum and had to tell each of you there is hope. And I also wanted to say what my circumstances are. I’ve had blood pressure meds changed and it could have o do with that too. All the things I mentioned. Diabetes and low thyroid are both autoimmune diseases so I have both of them. Anyway ask me any questions. Sending you prayers for yours to go away🙏❤️

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@hope58 Gee, I just realized that I forgot to welcome you to MayoClinicConnect! We’re an online community that shares health related experiences to help and guide each other. We’re not doctors so we don’t give out medical help. I found MayoClinicConnect when I was diagnosed with an inflammation in my brain and was looking for information and help. I have found so much! And so many supportive people. Welcome!

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I'm so sorry for the difficulty you are experiencing. I have had Grave's disease for about 20 years. About a year ago I switched from hyperthyroid to hypothyroid as my thyroid has "burned out". Apparently this can happen after years of making too much thyroid. The only way that I discovered the change was because I had a sudden onset of high blood pressure. My BP is normally on the low side, so this was really unusual. After describing other symptoms, like dry skin, dry eyes and dry mouth, my doctor ordered some thyroid tests. I was low on thyroid and my TSH was through the roof so my doctor started me on a low dose of thyroxodine. Amazingly, my BP immediately went back to my normal normal lower BP.

I was curious if you have been put on any kind of thyroid replacement and if you have, has it made any difference? Hoping things improve for you. When the thyroid is out of whack, it seems like everything is out of whack. Good luck. Donna

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@jewles63

Hi, I have had some of these same symptoms for over a year and about 4 doctors later I’m still not any closer to finding out why this is happening. It started out with chest pain lasting about 15 minutes that sent me to a doctor, after running some blood tests and a normal ecg he diagnosed me with Hasimotos and sent me for an ultrasound of my thyroid. I started levthyroxin and multiple nodules were found and my thyroid was enlarged, but we will keep an eye on it. (He said)! Still getting chest pain I was sent to a cardiologist where after lots of tests was found to be normal (lol) ! Now I have a vibration throughout my body that is driving me nuts.. Sent to a neurologist that found neuropathy in my legs and feet and started another medication for that. Still get the chest pain about once or twice a month and vibrate like a cell phone . I’m at a loss…and another ultrasound scheduled this week!

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i have this vibration all over and its getting worse i am feeling even like dizzy, i have gone to nerurologist and did all tests he didn't find anything, i have Hashimoto's but my labs are mostly ok although my TSH is a vit hight for me, i feel fine in 1.0 and it is aroun 2.20, but this is driving me insane nobody can find out what it is.

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I had the same thing until I had been on the Gabapentin for 2-3 weeks and then it stoped and hasn't returned in 4 years.

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We can self refer to Mayo.

If you do, tell registration all of the body systems you are having challenges with.

I told the Mayo Internist to put me through a fine tooth comb to find out everything I was dealing with. Sent to several specialists, I finally got help at Mayo.

Sometimes we have to be tenacious self advocates.

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I have had Hashimoto's for more than 30 years. Diagnosed by an endocrinologist in the early 90's. Levothyroxine overdose was the cause of much more violent internal "earthquakes" (is what i called them) for me. A functional Dr. (I found after 10 years of suffering and being told it was all in my head), switched me to Armour Thyroid (desiccated pig thyroid) – and I was a right as rain. He said that some people (like 10%) have trouble with the conversion of T4 to T3 (Levothyroxine is T4). Armour is a combination of T3 and T4. Most people can convert Levo (T4) to T3 as necessary. But he explained, that with an autoimmune disease like Hashimoto's AND with someone with conversion problems, the thyroid is still producing thyroid hormone – only the immune system is killing it before it can get to the cellular level where we "feel" better. Sometimes, he further explained, some of the natural thyroid hormone gets through and when combined with supplemental thyroid hormone, we can go into a state of "Thyroid Storm", or overdose. One theory was perhaps the immune system gets distracted from killing thyroid hormones, as in fighting an infection, etc., and the natural hormone is not destroyed, gets through the immune attach, mixes with the added / supplemental hormone, and bang – you have these "overdose" symptoms. Other causes can be in mixing T4 with for instance calcium supplements (the Tums are mostly calcium). There is definitely a calcium connection with the thyroid, / taking thyroid supplements. There is also a salt connection, particularly if you eat the common sodium chloride salt (AKA table salt). I had the most terrible thyroid storm once (with levo) after eating a huge hot dog, that was particularly salty. Same with taking calcium supplements at the same time as levo. That was way before they began to put the sticker on prescription levo / Armour, re: "do not take with calcium supplements". There has also been study after study that warns of using Flouride Bromide, or chloride (chlorine), (AKA Halides) as they can displace / attach themselves to the iodine receptors of the thyroid and again wreak havoc on the endocrine system, and any attempts we may be making towards supplementing an autoimmune disorder such as Hashimoto's. Health industry advocates would also point to stressed adrenals, however, mainstream medicine still does not recognize adrenals as contributory, for the most part. If one was to address adrenals, then things like coffee, alcohol, and other stimulants would be avoided. My experience in dealing with Hashimotos for all these many years is to eliminate as many inflammation-causing foods as possible (alcohol being number one – darn it!). Gluten / processed and fast foods being a close second. So many inflammation avenues that one must consider when dealing with any autoimmune disorder. And with Hashimotos, you must have a thyroid replacement hormone – you won't have any semblance of a normal life without it. The unbelievably sad part is – even if you find an endocrinologist who will run the thyroid antibodies test. (TSH, T3, T4 test alone won't find Hashimotos). they don't seem to want to do it! Recently had a family member who cannot pin down the many obviously hormone-related problems she is having, finally secured an appointment with an endo, and he actually said, "So what if we do find Hashimotos?" "There is no cure for it!" "Why do you want to know?" While there probably is no cure (There are those who say it is possible to put autoimmune into remission) – there is treatment! Thyroid Replacement Hormone!
The constant internal shakiness is most probably an imbalance of T3 / T4 in someway – regardless of whether it is undermedicated, overmedicated, or not medicated at all – or of an interference with replacement hormone, like calcium, fluoride, bromide (found in flour – "Bleached wheat flour" in the US – outlawed int the UK). That has been my painfully acquired education and experience. The good news? Once you start paying attention to when / how these episodes occur, (assuming you do have supplemental thyroid hormones of some sort) – life with Hashimotos can be fairly close to normal wonderful!

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