Thyroid? Or something else? Constant internal shakiness

Posted by amtxo1989 @amtxo1989, Feb 26, 2018

Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what’s happening when the episodes happen. So far my doctors are clueless.

@jewles63

Hi, I have had some of these same symptoms for over a year and about 4 doctors later I’m still not any closer to finding out why this is happening. It started out with chest pain lasting about 15 minutes that sent me to a doctor, after running some blood tests and a normal ecg he diagnosed me with Hasimotos and sent me for an ultrasound of my thyroid. I started levthyroxin and multiple nodules were found and my thyroid was enlarged, but we will keep an eye on it. (He said)! Still getting chest pain I was sent to a cardiologist where after lots of tests was found to be normal (lol) ! Now I have a vibration throughout my body that is driving me nuts.. Sent to a neurologist that found neuropathy in my legs and feet and started another medication for that. Still get the chest pain about once or twice a month and vibrate like a cell phone . I’m at a loss…and another ultrasound scheduled this week!

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@jewles63 – Thyroid imbalce certainly does have all kinds of symptoms!!! I told my endocrinologist about the vibrations but all she wanted to do was put me on a 24 hour halter monitor. I really don’t think it’s my heart because when it happens i check my pulse and it’s normal. I also listened to my heart with my stethoscope (I’m an RN) and it’s normal as well. So strange. I feel like no matter how well I explain this to any doctor they will never figure it out. I’m just praying it too shall pass. For me, they mostly happen in the middle of the night after I’ve been sleeping for several hours. Wondering if it’s some kind of positional neuropathic effect from compressing certain muscles/nerves in my neck?!?!?? Idk. I should get halter monitor results this week as well as repeat thyroid labs to see if my meds are working to suppress it. Prayers for everyone on here dealing with difficult symptoms.

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@johnbishop

Hi @jewles63, welcome to Connect. It can be a real challenge dealing with different symptoms and not being able to get to a diagnosis. I'm glad you are asking questions and being a strong advocate for your health. If you don't mind my asking, you mentioned the neurologist found neuropathy in your legs and feet and started you on another medication. Did the neurologist give you a specific diagnosis to type of neuropathy? Do you have pain in your feet and legs?

I have idiopathic small fiber peripheral neuropathy but since I only have the numbness there are no medications that address numbness. I'm hoping other members may be able to offer some suggestions or provide some more information for you.

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Neurologist didn’t name the neuropathy put me on gabapentin but it doesn’t help the vibration going on. I didn’t even realize that I couldn’t feel most of my legs and feet . I guess that’s a good thing because the emg freaked me out and I didn’t even feel it lol. I really don’t feel pain just once in a while burning .

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@jewles63

Hi, I have had some of these same symptoms for over a year and about 4 doctors later I’m still not any closer to finding out why this is happening. It started out with chest pain lasting about 15 minutes that sent me to a doctor, after running some blood tests and a normal ecg he diagnosed me with Hasimotos and sent me for an ultrasound of my thyroid. I started levthyroxin and multiple nodules were found and my thyroid was enlarged, but we will keep an eye on it. (He said)! Still getting chest pain I was sent to a cardiologist where after lots of tests was found to be normal (lol) ! Now I have a vibration throughout my body that is driving me nuts.. Sent to a neurologist that found neuropathy in my legs and feet and started another medication for that. Still get the chest pain about once or twice a month and vibrate like a cell phone . I’m at a loss…and another ultrasound scheduled this week!

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My thyroid was enlarged (Goiter) as well for at least 2 years. My endocrinologist did an ultrasound in his office and said that the nodules were actually "the ultrasound looking through parts of my thyroid that had already been eaten away and disappeared"… I said nope and went to The Mayo Clinic in Jacksonville. They said we would wait and see what happened with the nodules as well. I said "Nope, no thank you. Take it out." The pathology came back and I had Stage One Papillary Thyroid cancer. We never would have known if I hadn't insisted they remove it. Removal may not be necessary for all patients. I am just saying keep it in mind if it goes on for a while. Dr. Casler (the department Chair) has done more than 2500 Throidectomies and I wouldn't have trusted anyone else to do the surgery.

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@blulilbaby

My thyroid was enlarged (Goiter) as well for at least 2 years. My endocrinologist did an ultrasound in his office and said that the nodules were actually "the ultrasound looking through parts of my thyroid that had already been eaten away and disappeared"… I said nope and went to The Mayo Clinic in Jacksonville. They said we would wait and see what happened with the nodules as well. I said "Nope, no thank you. Take it out." The pathology came back and I had Stage One Papillary Thyroid cancer. We never would have known if I hadn't insisted they remove it. Removal may not be necessary for all patients. I am just saying keep it in mind if it goes on for a while. Dr. Casler (the department Chair) has done more than 2500 Throidectomies and I wouldn't have trusted anyone else to do the surgery.

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I guess I am surprised that a biopsy wasn't performed prior to surgery.

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@jsrbr

@jewles63 – Thyroid imbalce certainly does have all kinds of symptoms!!! I told my endocrinologist about the vibrations but all she wanted to do was put me on a 24 hour halter monitor. I really don’t think it’s my heart because when it happens i check my pulse and it’s normal. I also listened to my heart with my stethoscope (I’m an RN) and it’s normal as well. So strange. I feel like no matter how well I explain this to any doctor they will never figure it out. I’m just praying it too shall pass. For me, they mostly happen in the middle of the night after I’ve been sleeping for several hours. Wondering if it’s some kind of positional neuropathic effect from compressing certain muscles/nerves in my neck?!?!?? Idk. I should get halter monitor results this week as well as repeat thyroid labs to see if my meds are working to suppress it. Prayers for everyone on here dealing with difficult symptoms.

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Hi, I was also very confused by this feeling thinking it was heart palpitations too. After wearing a halter monitor twice a 24 hr and a 7 day with nothing ! My heart rate does drop pretty low and jump pretty high but cardiologist says that’s from being hypothyroidism w/ hasimotos . When I feel this feeling which seems all the time I use my Iwatch ecg so it’s not my heart .
To keep up with this feeling my heart would have to be beating at 200 bpm or more. I’m still thinking the chest pain is a heart spasm . I always tell my Dr that my check engine light is on when he asks how I’m doing !
I also had 2 MRIS ordered from neurologist with normal findings ( cervical and thorax ) hope your Dr can find why this happens to you.

Liked by jsrbr

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@estrada53

I guess I am surprised that a biopsy wasn't performed prior to surgery.

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He said that a biopsy was just about as invasive as removing my Thyroid because the nodules were small and scattered and that it might spread if it were cancer because the slices to remove a few nodules would be so small they couldn't guaranteed not slicing one with the incisions allowing it to spread. It was by far the easiest of the surgeries I have had. No recovery time really just had a balloon inserted for drainage for a few days and some bed rest. I stayed in the hospital for 3 days to make sure there weren't any complications. I am 2 years out from surgery now and I do not miss that thing at all. I have had a far easier time getting a good medication level and I am taking the Tirosent 75mg which is supposed to be the closest replacement to a natural Thyroid. The sore throat, dizziness, shakiness both internal and external, severe body aches, headaches, recurring throat infections, and goiter have all gone away since surgery. So far we have not seen any new nodules on scans since surgery. But again, surgery is not the answer for everyone.

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@jewles63

Neurologist didn’t name the neuropathy put me on gabapentin but it doesn’t help the vibration going on. I didn’t even realize that I couldn’t feel most of my legs and feet . I guess that’s a good thing because the emg freaked me out and I didn’t even feel it lol. I really don’t feel pain just once in a while burning .

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Good Morning
At this time I do not feel pain. I take Gabapentin every day, too. I've been taking it for a long time for my spine issues. I don't feel like it helps, either. My brother, who has spine issues, too, takes it and finds it helpful. However, he only takes it as needed. I don't know if that makes a difference.

A couple of weeks ago I went to a massage therapist. He worked hard on me. By the time I left, I could move my toes. It did not last more than a couple of days but it gives me hope.

Best for you…Ronnie (GRANDMAr)

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Hi @amtxo1989 , I saw your post and can totally relate to your symptoms I have been struggling with these internal vibrations ( feels like a cell phone or bumblebees) for about 6 years, and have seen every type of doctors for it, including going to Stanford and have yet got an answer for it. But I do believe it has to do with Hashimotos disease or hypothyroidism, most everyone that I’ve found with these internal shakes have one or the other. I started with these shakes only in my arms and chest and only noticed them when I would first wake up, and then it started in my feet and now I get them more strongly in my throat and slightly in my head,. I am a 40 year old mother of 3 and I guess consider healthy and active but mentally drained with seeing so many doctors and it has started to give me daily anxiety, these shakes can cause so much worry because you feel it and no one know what it is. These are some of the test I’ve had and all came back normal: heart monitor, stress test, eeg (nerve conduction study) MRI of brain and spine , endoscopy and colonoscopy, thyroid ultrasound, all kinds of blood test, this is just because I know doctors are gonna have you do these one by one. The only thing I can advise you is to try and not let it control you life , I definitely did and it is so frustrating and mentally draining, the unknown and worrying only makes it worst, some people who also have this say stress makes it feel stronger. It was suggested from 2 different Doctors that acupuncture would help so I thought I’d give it a try I had my first visit and have 5 more to go, I will let you know if this helps, or If I ever find anything that makes it stop lol

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@nancgdav

Hi @amtxo1989 , I saw your post and can totally relate to your symptoms I have been struggling with these internal vibrations ( feels like a cell phone or bumblebees) for about 6 years, and have seen every type of doctors for it, including going to Stanford and have yet got an answer for it. But I do believe it has to do with Hashimotos disease or hypothyroidism, most everyone that I’ve found with these internal shakes have one or the other. I started with these shakes only in my arms and chest and only noticed them when I would first wake up, and then it started in my feet and now I get them more strongly in my throat and slightly in my head,. I am a 40 year old mother of 3 and I guess consider healthy and active but mentally drained with seeing so many doctors and it has started to give me daily anxiety, these shakes can cause so much worry because you feel it and no one know what it is. These are some of the test I’ve had and all came back normal: heart monitor, stress test, eeg (nerve conduction study) MRI of brain and spine , endoscopy and colonoscopy, thyroid ultrasound, all kinds of blood test, this is just because I know doctors are gonna have you do these one by one. The only thing I can advise you is to try and not let it control you life , I definitely did and it is so frustrating and mentally draining, the unknown and worrying only makes it worst, some people who also have this say stress makes it feel stronger. It was suggested from 2 different Doctors that acupuncture would help so I thought I’d give it a try I had my first visit and have 5 more to go, I will let you know if this helps, or If I ever find anything that makes it stop lol

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Hello @nancgdav, welcome to Connect. I know it must be difficult when you aren't able to get a diagnosis and treatments that help.
There is another discussion that you may want to read through here:

> Groups > Brain & Nervous System > Benign Muscular Fasciculation
https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/

@jenniferhunter had the following post in the discussion where she shared some information that I think may be helpful for you.
https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/?pg=1#comment-279251

@mdemo posted a similar question in a new discussion so may be able to share experiences and symptoms with you and @amtxo1989 here.

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@johnbishop

Hello @nancgdav, welcome to Connect. I know it must be difficult when you aren't able to get a diagnosis and treatments that help.
There is another discussion that you may want to read through here:

> Groups > Brain & Nervous System > Benign Muscular Fasciculation
https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/

@jenniferhunter had the following post in the discussion where she shared some information that I think may be helpful for you.
https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/?pg=1#comment-279251

@mdemo posted a similar question in a new discussion so may be able to share experiences and symptoms with you and @amtxo1989 here.

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Thanks John

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