Mayo Clinic Connect
Has anyone delt with a nodules in the thyroid?
Liked by Teresa, Volunteer Mentor, JK, Volunteer Mentor
Hello @kcg and welcome to Mayo Connect.
I have thyroid modules as well. My thyroid blood levels and an ultrasound are done annually.
Are you being followed up in a similar way?
I’m going to see a specialist and they will monitor it every 6 months, it’s affecting my breathing and I’m coughing
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Do your doctors think that the problems with breathing and coughing are due to thyroid nodules, @kcg? Have the tests determined the size of the nodules?
They said the nodule is small, yes they think my coughing and breathing is due to it, my hair has also thinned, I think there is more to this then they are saying
Liked by Teresa, Volunteer Mentor
@kcg Hi, welcome to Connect. Are thyroid nodules related to having hypo or hyperthyroidism? I do have hypothyroidism but do not have any nodules as far as I know. Try to not worry that there is more to this than they are telling you. In my experience, doctors do tell the possibilities, good and bad. I hope with your continued monitoring they are able to do something to help so that your symptoms will be alleviated.
I hope you will be comfortable sharing what the specialist says.
Yes, I had nodules on my thyroid they found when doing an ultrasound on my carotid artery. They sent me to a surgeon who said I they were cancer and I had the thyroid removed right away, damaging my vocal chord in the process, which is a common problem. They put me through a series of tests a year later and said I was cancer free, but the endocrinologist said I must stay on low thyroid to prevent possible cancer. Years before, I had radiation after breast cancer lumpectomy and I blame that for the nodules, because they used no protection on my neck area for the radiation treatments. But they are never going to admit that possibility. I drag around in life and would like a higher dose of Synthroid which I took for a while, but they say my numbers are perfect now. They blame my low energy on diabetes which I admit is part of the problem. I am doing pretty well, but don't last long when I walk or do chores. That's life. Dorisena
yes. I have a nodule. It has remained unchanged for 3 years.. surgery is not recommended for THAT at this time.
May I ask you a question ? my thyroid is being removed ,, ( but not due to the nodule), but due to Graves. i am pre-diabetic, did you or do you have an issue with wt control without your thyroid? I lost 40 lbs with my Graves disease last year… was wondering if I will get it all back again? thanks..t
Nobody ever mentioned Graves to me, so I know nothing about it. If I had lost 40 pounds when I had prediabetes, I would not have had any signs of prediabetes anymore. As it is, I lost 20 pounds when I first had prediabetes and kept it at nigh normal for a few years until it bumped up a little the last couple of years. No, having no thyroid doesn't seem to affect my weight, just eating and not exercising makes the difference. Not having stress in my life makes a huge difference in eating. I never connected thyroid problems and diabetes. I will study more. Dorisena
I don't really think there actually IS a connection with pre diabetes and thyroid….I"m headed to Mayo on Tue .. will find out! AS far as Graves,,, I'm hyper with my thyroid.. had nothing to do with the nodule as far as I know.
I am surprised to find that those with nodules aren't being associated with cancer, as mine was. I don't remember any test to determine this, but they said it was cancer and they said I had it for years. I had already survived a breast lumpectomy which was level one cancer.
I insisted on being checked for ovarian cancer twice when I had bladder repair surgery and found no sign of cancer. At my age I don't worry much about it because I eat almost no sugar to feed cancer and I love vegetables that are thought to be an anti-cancer diet. So I sleep pretty well at night and if I should get more cancer at my age, I will make plans for my demise as gracefully as possible. So far I am able to contribute in music and activities at church so I feel pretty blessed by my outcomes of the past. But now I want to read more. Dorisena
Nope. I never have had any problems with Graves disease. I had low thyroid early in my marriage and took Synthroid which didn't seem to help my energy level at all but I had lots of stress, way too much. I had to change doctors and he made me go off the pills for a month and then tested me and said I didn't need any Synthroid. He left the medical profession shortly after that and I dragged myself through the next thirty or forty years until my husband died and I had the bladder, thyroid, and diabetes issues. After I was old enough for Medicare, it seemed I received better attention to my health problems because Medicare covered the costs. I think it was a little late for the best results in health care. But that is an opinion, not a fact. That's my story and I hope it helps someone. Dorisena
Liked by Teresa, Volunteer Mentor, mcmurf2
now I'm curious,,, so there are no real tests for nodule cancer other than doing a needle biopsy? IF that is the only way to know,,, then why don't nodules be tested more often??? puts a lot of questions in my head.. I guess since,, in my personal experience now,,, they are taking out the thyroid anyway so maybe they will test it then..??
I had a needle biopsy for breast cancer by the local surgeon, not a specialist in cancer. I thought it was routine. But with the thyroid they just sent me to the chief surgeon in the department of the big hospital who said it was cancer, so I don't know how everyone seemed to know without testing. He was so excellent you can't even see a scar, but then there was the vocal chord damage which the ENT denied there was a problem. So it took 18 months for another voice therapist to tell me what happened and that he couldn't help me at that point. The only thing the doctors all said is that if you have thyroid cancer, it is the one to have because it is curable. They were very confident about that but tested me a year later to confirm that I had no cancer cells floating around.
I am only relating my experience and I have no idea if everything was the best treatment. I learned in college science class in my middle age that a growth is a DNA change result and that a growth is a growth and the teacher didn't differentiate between cancerous and benign if it kept growing. He said the DNA change will increase the risk of future growths the rest of your life. Now after the Genome project success, the scientists are working on DNA repair. Interesting, but a little late for some of us. I am not scared about all of this. But I am happy to share my experiences. I'm still alive and active. Dorisena
I don't use the word "benign" in my vocabulary because I don't trust the definition as non=cancerous. I do trust the word precancerous. It means take some action, especially with your diet, activities, and attitude toward life. Dorisena
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