Anyone had Thyroid Nodules?

Posted by kcg @kcg, Oct 26, 2019
@slherman

Yes, I will post back as to what she recommends. They really have not caused me problems until the last few months. Thank you for your response.

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I am also curious to read… 2008 a surgeon dr. was seeing about a bowel issue for first time said; do you have a goiter? By the time I realized what that was he had his hand on my neck and said yes you do…then we went on to discuss a possible colonoscopy.
His report of my visit to my family dr did not mention the goiter. A month later I went to GP as had heard new Gastro in town and asked if I could have him do colonoscopy instead of surgeon.. and during conversation I said to him: oh the other dr said I have a goiter. My GP felt my neck.. oh I DONT feel anything he said! Well I said, why did he say I did?
Anyway GP sent me for ultrasound and yes goitre on R. thyroid and quite large.
Long story short, had the goiter and right thyroid removed. 2.5 hour operation 2 nights in hospital, and have since been on daily Synthroid.
Left thyroid has small nodules in and I go every year for ultrasound since 2009 and they are just leaving them for now as small. Should they get bigger I am to be referred to an ENT.
Having no family dr for past 2 years, I suppose I am now supposed to keep track of this problem? We have 2 ENTs where Ilive and one is a year wait it not urgent and the other 2 years! (Northern Ontario)

Best of luck and anxious to hear your results.. also, I find they do the one thyroid blood test yearly, whereas there are several blood tests they can and I feel should do – maybe ask for them all, I might. 🙂

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@slherman

I have been diagnosed with thyroid nodules 8 years ago. They have been monitored every 6 months. The past couple of months, I have had one that grew and is measured at 2cm. I had a biopsy and it came back benign. There are times I feel the nodule in my throat. I have had hair loss, weight gain, fatigue, depression, however my TSH levels are low but come back in the normal range. I meet with the endo dr next week. I am wondering if anyone has been in this similar situation. I wonder if I can take thyroid hormone to reduce the nodule even if I'm in the low range of the thyroid normal range. Any advice is greatly appreciated.

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Hi , I too have nodules in my thyroid and get a US every 6 months. My TSH fluctuates and my PA told me that it’s in my best interest to get my tsh as close to 0 as possible, she upped my leveothyroxine to slow the growth. I do have both antibodies for hasimotos and now have lots of health issues with my metabolic system.

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@lacy2

I am also curious to read… 2008 a surgeon dr. was seeing about a bowel issue for first time said; do you have a goiter? By the time I realized what that was he had his hand on my neck and said yes you do…then we went on to discuss a possible colonoscopy.
His report of my visit to my family dr did not mention the goiter. A month later I went to GP as had heard new Gastro in town and asked if I could have him do colonoscopy instead of surgeon.. and during conversation I said to him: oh the other dr said I have a goiter. My GP felt my neck.. oh I DONT feel anything he said! Well I said, why did he say I did?
Anyway GP sent me for ultrasound and yes goitre on R. thyroid and quite large.
Long story short, had the goiter and right thyroid removed. 2.5 hour operation 2 nights in hospital, and have since been on daily Synthroid.
Left thyroid has small nodules in and I go every year for ultrasound since 2009 and they are just leaving them for now as small. Should they get bigger I am to be referred to an ENT.
Having no family dr for past 2 years, I suppose I am now supposed to keep track of this problem? We have 2 ENTs where Ilive and one is a year wait it not urgent and the other 2 years! (Northern Ontario)

Best of luck and anxious to hear your results.. also, I find they do the one thyroid blood test yearly, whereas there are several blood tests they can and I feel should do – maybe ask for them all, I might. 🙂

Jump to this post

Very interesting! I went to the dr. to discuss a colonoscopy procedure. While he was talking to me about the procedure sitting behind his desk, he stopped and said, "Has anyone told you that you have thyroid nodules?" That was the first I was told about it. I had it checked from there and have been on this journey. All the years that doctors would feel my neck and everything was fine, and then a colonoscopy doctor tells me what I have without touching my neck. How was the surgery when your thyroid was removed?

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@jewles63

Hi , I too have nodules in my thyroid and get a US every 6 months. My TSH fluctuates and my PA told me that it’s in my best interest to get my tsh as close to 0 as possible, she upped my leveothyroxine to slow the growth. I do have both antibodies for hasimotos and now have lots of health issues with my metabolic system.

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Has the Levothyroxine kept the nodules from growing? Do you feel the medicine helped and what were the side effects?

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@slherman

I have been diagnosed with thyroid nodules 8 years ago. They have been monitored every 6 months. The past couple of months, I have had one that grew and is measured at 2cm. I had a biopsy and it came back benign. There are times I feel the nodule in my throat. I have had hair loss, weight gain, fatigue, depression, however my TSH levels are low but come back in the normal range. I meet with the endo dr next week. I am wondering if anyone has been in this similar situation. I wonder if I can take thyroid hormone to reduce the nodule even if I'm in the low range of the thyroid normal range. Any advice is greatly appreciated.

Jump to this post

I was diagnosed with a thyroid nodule in 1988, it was biopsied and benign. Since then I have taken Synthroid religiously, am monitored and nodule has stayed insignificant. My TSH on Synthroid is always low normal. Before Synthroid TSH was out of range high. Your question needs to be answered by an endocrinologist. I have never had any negative symptoms in all these years.

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@tsch

I was diagnosed with a thyroid nodule in 1988, it was biopsied and benign. Since then I have taken Synthroid religiously, am monitored and nodule has stayed insignificant. My TSH on Synthroid is always low normal. Before Synthroid TSH was out of range high. Your question needs to be answered by an endocrinologist. I have never had any negative symptoms in all these years.

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Thank you. I will have some answers on Monday hopefully.

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@slherman

Has the Levothyroxine kept the nodules from growing? Do you feel the medicine helped and what were the side effects?

Jump to this post

My numbers came down considerably and definitely slowed down the growth. You just can’t seem to stop hasimotos…small vessel heart disease and small fiber neuropathy I believe is symptoms of hasimotos. Diabetes and weight gain is still a problem.

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@slherman

Very interesting! I went to the dr. to discuss a colonoscopy procedure. While he was talking to me about the procedure sitting behind his desk, he stopped and said, "Has anyone told you that you have thyroid nodules?" That was the first I was told about it. I had it checked from there and have been on this journey. All the years that doctors would feel my neck and everything was fine, and then a colonoscopy doctor tells me what I have without touching my neck. How was the surgery when your thyroid was removed?

Jump to this post

That is a coincidence! I think its because the dr i saw about having a colonoscopy was a surgeon primarily and I think they must notice lumps and bumps and read the reports?!
I should have been checked for thyroid as years before had radiation for cancer of cervix and during the five year follow up the dr at the cancer clinic always felt around my neck, but never by my family doctor!
I wish when dismissed from cancer clinic they gave us a sheet of paper with what we should ask our family doctors to do in future, e.g. pap tests, check thryoid etc. I left it up to my family doctor and he let me down on this and other issues a lot…. no wonder people go on google to check things out.
I had a D&C and surgeon said took my appendix out as noticed had "issues"?? Year later another doctor said the surgeon had punctured my uterus so while fixing that took out my appendix.A year later I found out and many many other things I could tell you over the years.
Be vigilant. Ask questions. Check internet. Please don't leave it up to your busy family doctor who, while may be great at many things, doesn't know everything. Also I now ask for a copy of every test result, its free and I would pay for. Even so my fam dr said he could not FEEl the goiter, but another doctor could SEE it from across desk! Ugh Now no one is looking after me as no family dr. I have to be my own dr. and its hard at 77.

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@slherman

Yes, I will post back as to what she recommends. They really have not caused me problems until the last few months. Thank you for your response.

Jump to this post

I had my endo appointment and she told me the nodule was benign, (which I already knew from the hospital). Basically, I was took she would look at it again in January. Nothing can be done, just have to live with it or remove the thyroid. I asked the dr. what she would do if she were me. She said she would try to keep my thyroid. She would not give me any thyroid medicine because she said it can cause problems with the heart. I am going to try to go gluten free to see if that will help reduce the size of the nodule. Sometimes I can't feel it, but sometimes I feel like something is stuck in my throat. Just wish I could feel fine and start growing my hair again. I don't know what else to do.

REPLY
@slherman

I had my endo appointment and she told me the nodule was benign, (which I already knew from the hospital). Basically, I was took she would look at it again in January. Nothing can be done, just have to live with it or remove the thyroid. I asked the dr. what she would do if she were me. She said she would try to keep my thyroid. She would not give me any thyroid medicine because she said it can cause problems with the heart. I am going to try to go gluten free to see if that will help reduce the size of the nodule. Sometimes I can't feel it, but sometimes I feel like something is stuck in my throat. Just wish I could feel fine and start growing my hair again. I don't know what else to do.

Jump to this post

I have a thyroid nodule (actually 3 of them) that have been monitored for about 15 years or so, they get bigger, smaller, sometimes I can see them… This actually persisted through a period of hyperthyroid, which didn't seem to have any impact on the size. My thyroid hormones (all) are also checked often and remain normal no matter the size of the nodule. I can tell you that going gluten-free 10+ years ago has had absolutely no impact on the nodules or thyroid hormones. Who suggested that might help you?
When I saw the latest endocrinologist, she said removing the thyroid is now a last resort, as replacement hormones are never quite the same as your body.
Sue

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@sueinmn

I have a thyroid nodule (actually 3 of them) that have been monitored for about 15 years or so, they get bigger, smaller, sometimes I can see them… This actually persisted through a period of hyperthyroid, which didn't seem to have any impact on the size. My thyroid hormones (all) are also checked often and remain normal no matter the size of the nodule. I can tell you that going gluten-free 10+ years ago has had absolutely no impact on the nodules or thyroid hormones. Who suggested that might help you?
When I saw the latest endocrinologist, she said removing the thyroid is now a last resort, as replacement hormones are never quite the same as your body.
Sue

Jump to this post

The gluten free was just a thought I had. I was thinking maybe the gluten aggravated it and caused it to grow. I guess I just have to get use to the "lump" in my throat at times. Previously, I could not feel the nodules. I am hoping they will maybe shrink since the size increase just seemed to start within the last 3 months. Have you found your hair thinner? Anything that you have done that has helped? I know the endo told me there was basically nothing I could do, but I'm always hopeful.

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@slherman

The gluten free was just a thought I had. I was thinking maybe the gluten aggravated it and caused it to grow. I guess I just have to get use to the "lump" in my throat at times. Previously, I could not feel the nodules. I am hoping they will maybe shrink since the size increase just seemed to start within the last 3 months. Have you found your hair thinner? Anything that you have done that has helped? I know the endo told me there was basically nothing I could do, but I'm always hopeful.

Jump to this post

When I had hyperthyroidism (Graves disease) I had massive hair loss, but I also had heavy metal poisoning from a deteriorating hip implant which was removed in 2011. As those resolved my hair grew back, and I haven't had a problem since.
Sue.

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