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‘I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I’ve been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before?’?
I’m so sorry to hear how stressful this is for you and hope you are taking measures to manage the stress.
As for getting treatment at the Mayo Clinic, Dr. Pochettino, an aortic surgery expert at Mayo would be happy to review your records to understand your situation and determine what type of cardiac surgery needs to be performed. To begin this process, please call Dr. Pochettino’s patient appointment secretary, Hope Nesbit at 507-255-2000. After determining what type of surgery is needed, Ms Nesbit will connect you to our business office to speak about insurance options.
Here’s a video Dr. Pochettino made explaining what patients need to know about aortic surgery https://www.youtube.com/watch?v=s3plTqJ9E4s
Here’s a quick read about the The 4 A’s when you find yourself stressing – Avoid, Alter, Accept and Adapt – http://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/stress-relief/art-20044476?pg=1
I hope this helps. Keep talking with us. You’re not alone.
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THank you, Bruce! Mayo did their part bu seeing the need for almost immediate surgery and scheduled it quickly.
I have dealt with some depression but my solution toward depression which I have had for a good share of my life is to keep busy. I have had some trouble sleeping and that’s where depression crops up for me. As for positive things, I am working very hard to walk every day at least 30 minutes.
My Aneurysm surgery was in 2005. It was very invasive at that time (lots of cutting), and my first operation was in 1978, so my 2005 recovery was slow due to the scar tissue removal of ~24 years delta between the procedures. You feel kind of helpless and out of control the way your body failed, and now depend on others who a few days before were total strangers. I worked on my hobbies for a few months while on the mend. There has to be something you enjoy where you can focus on it while you heal. That will give you something positive to look forward too. Maybe this will help with your depression . Old coins, stamps, etc. Go to a show related to your hobby, like a Coin or Stamp show. Mingle a bit. Keep your chin up!
@smithjss we haven’t heard from you in a while. How are you doing? Any updates on getting surgery?
Your aneurysm usually needs to be repaired at that size. I would see if you can get to Mayo’s or somewhere that does lots of these surgeries. Many tests are done before surgery so you should know beforehand the operating plan before you have the surgery. If you are worried about afterward, Mayo’s has excellent pain control and excellent nurses who are readily available. In particular, nurses Emily, Callie, Amy, aKevin, Dot, Patti-these are very caring and knowledgable. My surgery was May 10, 2016 and all is well. @smithjss
I had surgery 2/15. The pain was no.big deal. I was kayaking 8 wks after. I am still.having opthalmic migraines, something new since surgery. Besides that , feel great
Diagnosed with this 6 months ago. Just now starting to have minor chest pains. Have CT scan with contrast on Thursday …anyone else have this. What comes next? A little concerned. Thanks.
Hi @srlove, I moved your message to this existing discussion about Thoracic Aortic Aneurysm so you can meet other members who have “been there” and can help answer your questions about what comes next. I encourage you to read the messages in this discussion forum to see the experiences and tips @michellr @johnwburns @crhp194 @ch246cf10 @jimmorris900 and others have shared.
What concerns you the most? What questions do you have?
What comes next depends on the size of the aneurysm. Above 5 cm doctored seem to,want to operate to avoid rupture. Having gone through open chest surgery in May, I am amazed at how great I feel. Was sore (incision soreness) for about four weeks but could do rehab walk and live a normal life. After 6 weeks I was quite well. If you work, doctors say you can go back after about 6 weeks as long as you don’t lift much for 3 months. I had no complications or infections so I felt very lucky. Mayo Clinic seems to do everything possible to,avoid infections. The staff was so kind, knowledgeable, and careful that rather than the horror the surgery could be, it was not bad at all. The first two days are spent in ICU and then to intermediate care. I must admit I really don’t remember the day of surgery or much on the second day. The pain control at Mayo was excellent. If you have more specific questions, please ask. Good luck!
Have one but no surgery yet. Watchfull waiting.
Want more info
Mine is 4.8. Worried about future
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