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jbsb93
@jbsb93

Posts: 2
Joined: Jul 28, 2011

Thoracic aortic aneurysm

Posted by @jbsb93, Jul 28, 2011

‘I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I’ve been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before?’?

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aldona
@aldona

Posts: 1
Joined: Jan 23, 2012
Posted by @aldona, Jan 23, 2012

I qwas diagnosed for a thoracic aorta aneurysm this month. Also had syrgery for a triple A Abdominal aorta aneurysm three years ago. I am looking for reassurance due to my magic magnifying mind…seems like I have a time bomb ready to go off. How did or how are you dealing with this aldona @jbsb93

Liked by abster93

jbsb93
@jbsb93

Posts: 2
Joined: Jul 28, 2011
Posted by @jbsb93, Jan 23, 2012

Well, my body handled it real well with lots of prayers from people all over the country I made it through it. I had my surgery done at the Univ of WA Medical Center in Seattle but I’ve had 2 previous surgeries done at Mayo. If I had lived closer I would have gone to Mayo. However, they did a wonderful job at the UW. I had
Dr. Verrier as my surgeon and his team said that if they would have this surgery done, they would have him. I don’t know how big your aneurysm is but I wouldn’t wait. Mine turned out to be 6cm. I will pray for you. Please let me know how it turns out.

Sharice

Liked by abster93

DebinTx
@debintx

Posts: 1
Joined: Feb 23, 2012
Posted by @debintx, Feb 23, 2012

Endovascular Surgery for thoracic aorta aneurysm

JohnWBurns
@johnwburns

Posts: 300
Joined: Jun 02, 2015
Posted by @johnwburns, Jun 1, 2015

I was diagnosed 4 months ago with an aneurysm on my ascending aorta, 4.3 cm. I’m 66 years old. My father died from a dissected (burst) aortic aneurysm when he was 60. The recommendations seem to vary as far as blood pressure control to prevent dissection. Some say keep the systolic pressure below 140 mm Hg. Others say to get it below 120 mm Hg. Who’s right?

Wonder
@clevelandme

Posts: 2
Joined: Oct 06, 2015
Posted by @clevelandme, Oct 5, 2015

Hi John, I was diagnosed a year and a half ago with the same thing. Mine is 4.6 cm and also dissected. They wanted to do emergency surgery. I told them I felt good and I wanted to get a
Second opinion. They took me to another hospital. I was there for about 4 days. They did all the test again and it ended up with us keeping an eye on it. No surgery, I did a 3 month, 6 month and a one year check up, and now the told me to come back in a year. I was glad to hear this. They told me not to lift over 100 pounds and do not exert myself. I just try to be careful and do what they tell me. I know I can live with this. Hope you do ok too. Good Luck!

Wonder
@clevelandme

Posts: 2
Joined: Oct 06, 2015
Posted by @clevelandme, Oct 5, 2015

Was fled to hear that. I had follow ups at 3, 6 and 12 months. The told me to come back on a year now. I am limited to not lifting over 100 lbs. and do not exert myself. I can live with that. I hope that you do well too.
Good Luck!

michellr
@michellr

Posts: 10
Joined: Jan 30, 2016
Posted by @michellr, Jan 30, 2016

I am 54 yrs old. Diagnosed with thoracic aneurysm. In 8 mos it grew from 4.3 to 4.8. I am scared to death. Anyone out there had the surgery. I dont know which is worse, the bomb in my chest or the stroke i might have diring surgery!

Liked by abster93

Posted by @colleenyoung, Jan 30, 2016

Hi @michellr,
Welcome to Connect. I moved your message to this discussion to introduce you to other Connect members who are talking about thoracic aneurysm. Interestingly @aldona like you felt it was like having a time bomb inside her. @jbsb93 opted to have surgery while @clevelandme decided against it.

I’m also tagging Bruce (@ch246cf10) to bring him into the conversation.

There are many factors to consider when making such an important decision. I encourage you to continue to share your thoughts and ask questions here with people who have “been there”. Sometimes it just helps to write it down.

Colleen
Connect Community Director

axels
@axels

Posts: 3
Joined: Nov 18, 2017
Posted by @axels, Fri, Jan 12 4:44pm

My dissecting aneurysm was measured 6.1 cm last September. I live in Palm Desert , Ca. and the doctor told me they
cannot do it at the Eisenhower hospital. Either Mayo, UCLA or Cedars. Do I qualify with Medicare and AARP at Mayo?
I don,t want to wait too long.

oldkarl
@oldkarl

Posts: 422
Joined: May 25, 2016
Posted by @oldkarl, Fri, Jan 12 4:59pm

@axels I believe you do. What you should do is simple. First, make sure that Mayo (or the others) send the bill to both Medicare and AARP. They will send you the money, as much as they will pay, especially if you have plan F or G. Now, this is incredible important. Put that money in your bank account, and pay the bill with your plastic. DO NOT sign the check and send it to the clinic or whatever, especially MAYO. They will lose it in their incredibly old fashioned system, and tell you that you did not pay the bill yet. So just make sure that you have a VERY transparent process of getting the bill paid. Se came close to going to court over this one.

crhp194
@crhp194

Posts: 45
Joined: Apr 27, 2016
Posted by @crhp194, Fri, Jan 12 5:38pm

The Mayo hospital sends all bills to Medicare and your supplement. With the Clinic, you pay the bill and Medicare and AARP reimburses you. I have had no problems with Mayo billing. I don’t think you will either as long as you know that the clinic does not get reimbursement from Medicare or AARP. If you cannot afford to pay the clinic for tests, talk to Mayo. The clinic will work out something.

michellr
@michellr

Posts: 10
Joined: Jan 30, 2016
Posted by @michellr, Jan 31, 2016

Thank you. I am very aftraid of the surgery and to make matters worse I am a cardiac nurse! I am afraid of a stroke, PE, and death during surgery and sudden death if i dont. Do i just go to a local surgeon , i live in Chicago area, or do i go somewhere else. This is stressing out my life. I have humana hmo. Can i even go somewhere like mayo

JohnWBurns
@johnwburns

Posts: 300
Joined: Jun 02, 2015
Posted by @johnwburns, Jan 31, 2016

Settle down. You’re going to be alright. Your blood pressure is under control right? Control as in systolic

oldkarl
@oldkarl

Posts: 422
Joined: May 25, 2016
Posted by @oldkarl, Fri, Jan 12 5:02pm

@michellr Call Humana, and ask to talk to THEIR nurse/counselor. Humana has been very helpful to me in these matters.

lynnkay1956
@lynnkay1956

Posts: 47
Joined: Oct 26, 2015
Posted by @lynnkay1956, Feb 1, 2016

You would have a hard time going to Mayo since you have an HMO …You have the University of Chicago near and they would probably send you there…http://www.uchospitals.edu/specialties/heart/services/genetics/conditions.html

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