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jbsb93
@jbsb93

Posts: 2
Joined: Jul 28, 2011

Thoracic aortic aneurysm

Posted by @jbsb93, Jul 28, 2011

‘I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I’ve been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before?’?

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aldona
@aldona

Posts: 1
Joined: Jan 23, 2012
Posted by @aldona, Jan 23, 2012

I qwas diagnosed for a thoracic aorta aneurysm this month. Also had syrgery for a triple A Abdominal aorta aneurysm three years ago. I am looking for reassurance due to my magic magnifying mind…seems like I have a time bomb ready to go off. How did or how are you dealing with this aldona @jbsb93

Liked by abster93


jbsb93
@jbsb93

Posts: 2
Joined: Jul 28, 2011
Posted by @jbsb93, Jan 23, 2012

Well, my body handled it real well with lots of prayers from people all over the country I made it through it. I had my surgery done at the Univ of WA Medical Center in Seattle but I’ve had 2 previous surgeries done at Mayo. If I had lived closer I would have gone to Mayo. However, they did a wonderful job at the UW. I had
Dr. Verrier as my surgeon and his team said that if they would have this surgery done, they would have him. I don’t know how big your aneurysm is but I wouldn’t wait. Mine turned out to be 6cm. I will pray for you. Please let me know how it turns out.

Sharice

Liked by abster93


DebinTx
@debintx

Posts: 1
Joined: Feb 23, 2012
Posted by @debintx, Feb 23, 2012

Endovascular Surgery for thoracic aorta aneurysm


JohnWBurns, Mentor
@johnwburns

Posts: 304
Joined: Jun 02, 2015
Posted by @johnwburns, Jun 1, 2015

I was diagnosed 4 months ago with an aneurysm on my ascending aorta, 4.3 cm. I’m 66 years old. My father died from a dissected (burst) aortic aneurysm when he was 60. The recommendations seem to vary as far as blood pressure control to prevent dissection. Some say keep the systolic pressure below 140 mm Hg. Others say to get it below 120 mm Hg. Who’s right?


Wonder
@clevelandme

Posts: 2
Joined: Oct 06, 2015
Posted by @clevelandme, Oct 5, 2015

Hi John, I was diagnosed a year and a half ago with the same thing. Mine is 4.6 cm and also dissected. They wanted to do emergency surgery. I told them I felt good and I wanted to get a
Second opinion. They took me to another hospital. I was there for about 4 days. They did all the test again and it ended up with us keeping an eye on it. No surgery, I did a 3 month, 6 month and a one year check up, and now the told me to come back in a year. I was glad to hear this. They told me not to lift over 100 pounds and do not exert myself. I just try to be careful and do what they tell me. I know I can live with this. Hope you do ok too. Good Luck!


Wonder
@clevelandme

Posts: 2
Joined: Oct 06, 2015
Posted by @clevelandme, Oct 5, 2015

Was fled to hear that. I had follow ups at 3, 6 and 12 months. The told me to come back on a year now. I am limited to not lifting over 100 lbs. and do not exert myself. I can live with that. I hope that you do well too.
Good Luck!


michellr
@michellr

Posts: 10
Joined: Jan 30, 2016
Posted by @michellr, Jan 30, 2016

I am 54 yrs old. Diagnosed with thoracic aneurysm. In 8 mos it grew from 4.3 to 4.8. I am scared to death. Anyone out there had the surgery. I dont know which is worse, the bomb in my chest or the stroke i might have diring surgery!

Liked by abster93


Colleen Young, Connect Director
@colleenyoung

Posts: 3686
Joined: Jul 23, 2014
Posted by @colleenyoung, Jan 30, 2016

Hi @michellr,
Welcome to Connect. I moved your message to this discussion to introduce you to other Connect members who are talking about thoracic aneurysm. Interestingly @aldona like you felt it was like having a time bomb inside her. @jbsb93 opted to have surgery while @clevelandme decided against it.

I’m also tagging Bruce (@ch246cf10) to bring him into the conversation.

There are many factors to consider when making such an important decision. I encourage you to continue to share your thoughts and ask questions here with people who have “been there”. Sometimes it just helps to write it down.

Colleen
Connect Community Director


michellr
@michellr

Posts: 10
Joined: Jan 30, 2016
Posted by @michellr, Jan 31, 2016

Thank you. I am very aftraid of the surgery and to make matters worse I am a cardiac nurse! I am afraid of a stroke, PE, and death during surgery and sudden death if i dont. Do i just go to a local surgeon , i live in Chicago area, or do i go somewhere else. This is stressing out my life. I have humana hmo. Can i even go somewhere like mayo


JohnWBurns, Mentor
@johnwburns

Posts: 304
Joined: Jun 02, 2015
Posted by @johnwburns, Jan 31, 2016

Settle down. You’re going to be alright. Your blood pressure is under control right? Control as in systolic


lynnkay1956
@lynnkay1956

Posts: 48
Joined: Oct 26, 2015
Posted by @lynnkay1956, Feb 1, 2016

You would have a hard time going to Mayo since you have an HMO …You have the University of Chicago near and they would probably send you there…http://www.uchospitals.edu/specialties/heart/services/genetics/conditions.html


JohnWBurns, Mentor
@johnwburns

Posts: 304
Joined: Jun 02, 2015
Posted by @johnwburns, Feb 1, 2016

UC isn’t chopped liver. Neither is Rush. If you can find a way to go to Mayo a big plus is the social worker arm of their organization to grease the wheels for your trip and recovery. But maybe UC or Rush has something like that too. Rush is in a wicked neighborhood as is UC. This is a big deal. You want things to go smoothly, and they will.


Colleen Young, Connect Director
@colleenyoung

Posts: 3686
Joined: Jul 23, 2014
Posted by @colleenyoung, Feb 2, 2016

Hi @michellr
I’m so sorry to hear how stressful this is for you and hope you are taking measures to manage the stress.

As for getting treatment at the Mayo Clinic, Dr. Pochettino, an aortic surgery expert at Mayo would be happy to review your records to understand your situation and determine what type of cardiac surgery needs to be performed. To begin this process, please call Dr. Pochettino’s patient appointment secretary, Hope Nesbit at 507-255-2000. After determining what type of surgery is needed, Ms Nesbit will connect you to our business office to speak about insurance options.

Here’s a video Dr. Pochettino made explaining what patients need to know about aortic surgery https://www.youtube.com/watch?v=s3plTqJ9E4s

Here’s a quick read about the The 4 A’s when you find yourself stressing – Avoid, Alter, Accept and Adapt – http://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/stress-relief/art-20044476?pg=1

I hope this helps. Keep talking with us. You’re not alone.

Liked by Martin


crhp194
@crhp194

Posts: 37
Joined: Apr 27, 2016
Posted by @crhp194, Jul 13, 2016

Had a large thoracic aorta aneurysm (6+) repaired at Mayo in May 2016 plus a total arch replacement plus one bypass by Dr Pochettino. Wonderful Doctor and by my result, a real expert. I am 72, had no complications and felt like the old me after 6 weeks. I cannot recommend Dr Pochettino enough and thankful to him for saving my life. At home in an area of about 100,000 population, there wasn’t a doctor who could do an arch replacement. Mayo and its doctors are the best.


ch246cf10
@ch246cf10

Posts: 12
Joined: Dec 27, 2015
Posted by @ch246cf10, Jul 13, 2016

Good to hear. When my aneurysm was discovered there weren’t any local Doctors experienced with my unique condition, and I had to travel to where the experience practiced. All we can do as patients is our homework. You did yours and it paid off. All the best to you.

Bruce
Texas

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