@colleenyoung my biggest fear is the unknown. Having to deal with the VA for referals seems to be taking to long, even though there has only been 2 business days since my diagnosis. How long will i expect to be out of work? How likely is it that the aortic valve will need to be replaced? What side effects will there be after the surgery? I know these are some questions ill need to ask my surgeon. There is so much going through my head its hard to relax enough to sleep.
You can expect to be out of work safe to say about 90 Days, You wont be able to drive for about Eight weeks. You will have lifting restrictions for a few months The aortic valve being replaced depends if already leaking. but would say that should probably be able to replace you natural valve. You can look up what they call a valve sparing aortic root replacement it might give you some info also Some of the side effects I had after surgery was body temperature changes would have night sweats etc. for couple weeks after surgery,fluid retention. sometimes I became really emotional after surgery . Don’t let you self get so worried about it will be all good
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Had a large thoracic aorta aneurysm (6+) repaired at Mayo in May 2016 plus a total arch replacement plus one bypass by Dr Pochettino. Wonderful Doctor and by my result, a real expert. I am 72, had no complications and felt like the old me after 6 weeks. I cannot recommend Dr Pochettino enough and thankful to him for saving my life. At home in an area of about 100,000 population, there wasn’t a doctor who could do an arch replacement. Mayo and its doctors are the best.
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Good to hear. When my aneurysm was discovered there weren’t any local Doctors experienced with my unique condition, and I had to travel to where the experience practiced. All we can do as patients is our homework. You did yours and it paid off. All the best to you.
Bruce
Texas
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Welcome to Connect @crhp194. Thanks for the ringing endorsement of Mayo and its professional care team. As Bruce said, we have to our homework and find the experienced and the best.
How is your recovery going? You said you felt like the old you after 6 weeks, but are there changes that you’ve introduced to the old you, like diet or activity, perhaps attitude?
I have dealt with some depression but my solution toward depression which I have had for a good share of my life is to keep busy. I have had some trouble sleeping and that’s where depression crops up for me. As for positive things, I am working very hard to walk every day at least 30 minutes.
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My Aneurysm surgery was in 2005. It was very invasive at that time (lots of cutting), and my first operation was in 1978, so my 2005 recovery was slow due to the scar tissue removal of ~24 years delta between the procedures. You feel kind of helpless and out of control the way your body failed, and now depend on others who a few days before were total strangers. I worked on my hobbies for a few months while on the mend. There has to be something you enjoy where you can focus on it while you heal. That will give you something positive to look forward too. Maybe this will help with your depression . Old coins, stamps, etc. Go to a show related to your hobby, like a Coin or Stamp show. Mingle a bit. Keep your chin up!
Bruce
Texas
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Your aneurysm usually needs to be repaired at that size. I would see if you can get to Mayo’s or somewhere that does lots of these surgeries. Many tests are done before surgery so you should know beforehand the operating plan before you have the surgery. If you are worried about afterward, Mayo’s has excellent pain control and excellent nurses who are readily available. In particular, nurses Emily, Callie, Amy, aKevin, Dot, Patti-these are very caring and knowledgable. My surgery was May 10, 2016 and all is well. @smithjss
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Hi @srlove, I moved your message to this existing discussion about Thoracic Aortic Aneurysm so you can meet other members who have “been there” and can help answer your questions about what comes next. I encourage you to read the messages in this discussion forum to see the experiences and tips @michellr @johnwburns @crhp194 @ch246cf10 @jimmorris900 and others have shared.
What concerns you the most? What questions do you have?
What comes next depends on the size of the aneurysm. Above 5 cm doctored seem to,want to operate to avoid rupture. Having gone through open chest surgery in May, I am amazed at how great I feel. Was sore (incision soreness) for about four weeks but could do rehab walk and live a normal life. After 6 weeks I was quite well. If you work, doctors say you can go back after about 6 weeks as long as you don’t lift much for 3 months. I had no complications or infections so I felt very lucky. Mayo Clinic seems to do everything possible to,avoid infections. The staff was so kind, knowledgeable, and careful that rather than the horror the surgery could be, it was not bad at all. The first two days are spent in ICU and then to intermediate care. I must admit I really don’t remember the day of surgery or much on the second day. The pain control at Mayo was excellent. If you have more specific questions, please ask. Good luck!
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@jimmorris900
@smithjss It natural to be scared. I was diagnosed with enlarged aneurysm I was dilated to 5.5 cm I had valve sparing aortic root replacement done in September 2012 at Mayo Clinic Rochester . There always risk with surgery but I wouldn’t be to scared about. surgery just go some were Like Mayo Clinic that well knowing for it. The worse for me was the first 24 hours after surgery the only thing that happened to me was that about two weeks out from surgery I went in to a-fib ended haven ablation for atrial fibrillation other than that it just time only other thing would say is if can wait would wait until fall when the weather is cooler so more comfortable for recovery anything want to know just ask will answer if I can
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