Thoracic aortic aneurysm: Anyone had surgery?
I was born with a hole in my heart and have had 2 surgeries. One to fix hole and the other a valve replacement. I've been recently told the I have a thoracic aneurysm and possibly will need more surgery.. Anyone gone th ru this before??
Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.
Just wanted to say thank you so much for your support inspiration and kindness . He told me could be decades if ever since small and stable. No treatment given yet and tbd in another year when I see him. Hope I have the strength to wait that long even though I feel good. Hope your doing well too.
Hi Drew, I am so happy that the aneurysm is stable. This can continue as just a stable abnormality for the rest of your life. I am sure your cardio is continuing to monitor the situation and will advise you as to what changes in lifestyle might be advisable. The cardio might also suggest medications; last year my cardio placed me on metoprolol, half tablet, to reduce any pressure on the aneurysm to help keep it stable.
Continue to enjoy your life; don't worry about something you can't change. The bicuspid valve might have been a contributing factor to your situation and that formed early in vitro. Nothing you could have done to change that so don't blame yourself for anything.
I wish you continued good health.
Donna
Hi just had year appointment and found out stable and mild and that it’s a bicuspid valve. I’m surprised Kaiser didn’t catch it. Hope your well.
Thank you!
Hi @twocents,
The video will appear on that page https://connect.mayoclinic.org/webinar/video-qa-about-thoracic-aortic-aneurysms/ as soon as it goes live – 12pm, CT.
when I click on the link it just brings me to a page that says video Q & A about Thoracic..... is that the correct page and will the webinar come up on that? will there actually be a video or is it just written questions and answers that will be on there? Thanks
Hi everyone,
I'd like to invite you to join us today, Monday, April 29th at 12 p.m. CT for a video Q&A with Dr. Hector Michelena, cardiologist, Dr. Gabor Bagameri, cardiovascular surgeon, and Dr. Alberto Pochettino, cardiovascular surgeon, about watchful waiting for thoracic aortic aneurysms.
Simply click on the link below, for details and to take part in the video Q&A live.
– https://connect.mayoclinic.org/webinar/video-qa-about-thoracic-aortic-aneurysms/
Drs. Michelena, Bagameri, and Pochettino will answer questions live. Post your questions before and during the broadcast.
I’m sorry that was negative - I have my moments - trying to be positive
Wow is right , gives me hope , speaking of I wonder if from time to time it may help when feeling down which is daily for me if a voice on the other side may help. Hard to cope - will I be there for my babies or die before they grow up. What will my story be and how do I prepare them. I frequently go through these blogs looking at all the wonderful posts. If so let me know and can give phone number.
Wow, you are truly blessed, with an amazing primary care doc and someone up above was watching over you. Bless you and enjoy life. Meanwhile, I will continue to be monitored and pray that nothing changes for both my son and I. We both have the aneursym on our aortic bridge.