Thoracic aortic aneurysm: Anyone had surgery?

Anybody have this happen without listed causes and anyone know why we don’t hear more about this journey ?

Sorry thanks I just meant I don’t have high blood pressure- on lower side so not that , have not smoked since I was a teenager etc so don’t know how mine was caused

I didn't know that an aortic aneurysm could be caused by low blood pressure? Mine is most likely caused because of an bicuspid valve.

In trying to find answers to why this happened when I don’t seem to fit any of the causes - low blood pressure etc could it have been caused by blood flow and other supplements over the years that seemed to have caused palpitations the following days - fish oil, saw palmetto , excedrin , Argenine , citruline - my cardiologist’s says no but I’m at a loss of why me, but I why anyone- bad luck ? Hope we will all be ok getting it monitored and fixed if needed. Thank you

@twocents Hi, There is significant radiation with a CT scan so cardios are sometimes reluctant to order them every 6 months unless there seems to be a rapid increase in size. Sometimes cardios will order echocardiograms on a 6 month schedule as there is no radiation involved. You may wish to talk to your cardio about scheduling echos just to verify the aneurysm is remaining stable. Just be aware that the two measurements will not be the same. One measures directly across the artery and the other measures on the bias so will appear larger. I can't remember which test measures larger but I think it is the echo. I only have knowledge of Ascending Aortic Aneurysms (AAA) so if you have a different condition, this information may not apply to you.

I am new to this group and was diagnosed with a bicuspid heart valve and a thoracic aortic aneurysm several years ago. In 2017 I had a TEE procedure that showed it measured 4.6. This year, because of the complications from the TEE they did CT angiogram which showed that the aneurysm was still at a 4.6. My cardiologist recommended I have the angiogram in another year. My question is do most of you just have the aneurysm measured yearly or every six months..I've read conflicting information on this. Thanks for your help!

@Drew944 It is my understanding that the new protocol is to require an antibiotic only if the valve has been replaced. It apparently is not required for a AAA.

For dental procedures like deep cleaning or even root canal was told no antibiotics needed , is that same as you all ? Thank you

I have had two large aneurysms for 10 years.....no symptoms no problems.

Thank you Janet , yes left to have to trust experts - advised too small to take action and may or may not need too keeping blood pressure as is which is low. Exactly like you said - in between monitoring can it grow they say unlikely as gradual. Have to be calm and not move to fast which is hard to do in life. I’m under 50 and like to go fast and have 2 baby girls to run with. Don’t know how this happened but all we can do is trust and pray I guess.