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Tested negative for MAC

Posted by sharonp51 @sharonp51, Sep 7, 2020

Just had a Bronchoscopy and tested negative for all fungal and bacteria. I have a small nodule, my last one was a Necrotizing granuloma. Wondering if I have Sarcoidosis. My nodules were 3 yrs apart.

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irene5 Irene Estes | @irene5 | Sep 7, 2020

@sharonp51 I think that type of granuloma is associated with an infectious disease. Sarcoid is an autoimmune disease not an infectious one. It can be active or inactive. So glad you were negative. Mycobacterium usually takes six or more weeks to grow. Other bacteria results come back quicker. How long ago was the scan? irene5

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1 reply
thumperguy | @thumperguy | Sep 7, 2020

Nice when a “negative” is a positive! Don

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Sep 8, 2020

Hi Sharon. So happy to hear of your negative results! Was it the nodule showing up on an scan that prompted the bronchoscopy? FYI, nodules can be tested for sarcoidosis. You may have to request it as many drs do not think of it. My cousin has sarcoidosis, and it took her 6 months and several opinions before getting the correct diagnosis.

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sharonp51 | @sharonp51 | Sep 10, 2020
In reply to @irene5 "@sharonp51 I think that type of granuloma is associated with an infectious disease. Sarcoid is an..." + (show)
@irene5

@sharonp51 I think that type of granuloma is associated with an infectious disease. Sarcoid is an autoimmune disease not an infectious one. It can be active or inactive. So glad you were negative. Mycobacterium usually takes six or more weeks to grow. Other bacteria results come back quicker. How long ago was the scan? irene5

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My original biopsy was 2017 They said it was not consistent with sarcoidosis. I am now waiting on the culture To see if anything grows from last week’s Bronchoscopy.

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sharonp51 | @sharonp51 | Sep 10, 2020
In reply to @windwalker "Hi Sharon. So happy to hear of your negative results! Was it the nodule showing up..." + (show)
@windwalker

Hi Sharon. So happy to hear of your negative results! Was it the nodule showing up on an scan that prompted the bronchoscopy? FYI, nodules can be tested for sarcoidosis. You may have to request it as many drs do not think of it. My cousin has sarcoidosis, and it took her 6 months and several opinions before getting the correct diagnosis.

Jump to this post

Unfortunately my old pulmonologist did not test for sarcoid in 2017..

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