Resources for The ABC's on Bronchiectasis and MAC (NTM)
When you are first diagnosed with Bronchiectasis or MAC, chances are you never heard of it before. And the brochure from the pulmonologist's office – if you get one – isn't much help, and can be downright scary, right? Both of these are rare diseases – bronchiectasis affects perhaps a million people in the US, and MAC or NTM maybe 100,000 (17/10,000 (.17%) of the population and 3/10,000 (.03%) respectively. Many doctors, even pulmonologists, have never or rarely seen a case.
So you do what anyone does in 2023 – jump on the computer and "Ask Google" – where you find all kinds of scary stuff, and not a lot of detail. Chances are that's how you found Mayo Connect.
We have so much info, and so many discussions, that's it is hard to find the basics.
So here is a list of places you can find a concise description of diagnosis, treatment and terminology, and some of the basics on airway clearance, which is so important to our healthy: