Mayo Clinic Connect
I have bronchioectasis amd MAC NTM MAI, diagnosed 6 months ago. I remember recently reading that
You shouldn’t swim in chlorinated water. MAC in pool???? I know no hot tubs, showers warm waster not
Clean or polluted. Do I have it right?????
There was some discussion about chlorine between @windwalker @heathert and @tessie here http://mayocl.in/2rzpJEz and here http://mayocl.in/2qV8QS1
Are you an avid swimmer, Jennifer? Are you wondering if you have to give up swimming?
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I have just started swimming in a community pool which is chlorinated. Don't
Swim under water. I thought I remember reading something about chlorine??
And whether this is something ok to do???? So much info that I'm wondering
If I have it wrong
Colleen, neither of the sites you just posted about chlorine took me to
additional info about it. One just took me to this thread, the other took me to
the Mayo home page. Can you tell us in a nutshell what you read about it? Thank
you, Terri M
@windwalker Both of the links in my message above take you to conversations on Connect, where you and other members were talking about chlorine in another thread.
I just read on a post about swimming, not in pools or in lakes. I’ve gone thru videos etc…
And cnt seem to find this info anywhere. I swim in chlorinated indoor pools, but keep head upright. Have
A cottage and swim in a very clean lake in Muskoka and swim underwater. I need someone to respond to
As I feel very unnerved by this. Also, are we to poor spring water into coffee pot to me coffee
Again, haven’t seen a posting on this….so many important questions
I moved your question here to the discussion that you had already started about swimming. It helps to keep all messages about a specific topic in one place so that people can find the information easily. As such, I’ve pulled a couple of related conversations that members have have had about swimming from the main (and long) discussion and provide the links below.
– http://mayocl.in/2qV8QS1 Tessie and Terry talk about chlorine and no underwater dunking and wearing a mask.
– http://mayocl.in/2rbc3wF Here Jen T and Katherine talk about using an oxygen tank while swimming
I invite others to add their experiences about swimming here. What advice might you have about swimming in lakes, oceans, rivers or other non-chlorinated bodies of water?
@megan123, .. Jennifer, if I was sitting in your shoes .. each of us has a different set of medical issues .. so I would make “swimming in chlorinated water in a pool” a question for you own Infectious Disease doctor. They know YOUR own particular set of issues. Me personally .. community pools with children I would avoid like a plague .. your private pool that you could control .. ask your doctor .. I think that would be your best bet. Hugs to you! Katherine
Tks Katherine. reviewed videos, but didn’t see info on this. I will ask my new Dr inSept. I guess for now I will swim in chlorine and lake water. Don’t swim with children in pool. Adult swim.
@megan123, .. Jennifer, truthfully I would NOT wait for Sept! Just a quick call/message to the doctor’s office would suffice .. just ask .. I’m sure they would not mind .. June to September is a long time! Write out your question in advance .. ask it and have peace of mind! Do your “due diligence”! Hugs! Katherine
The last pulmonary Dr I had was poorly informed and overall a lousy Dr. I’m hoping this new Dr will be better. I guess this is an area that hasn’t been clearly stipulated in this forum. In Toronto, there
Isn’t the expertise u have at Mayo or National….so u can’t just ask an infectious disease Dr. The pulmonary Drs tend to cover both MAC and Bronchiectasis. For now I won’t go underwater.
Again, tk u Katherine fit your help. U have been thru so much, yet u find the time to still help…. I was a SocialWorker, recently retired ….now I need the help, as do u❤️
Liked by Katherine, Alumni Mentor
Don’t know if you are interested .. but .. Hugs! Katherine
from my File Cabinet
Canadian Citizen As a Canadian citizen, here are some frequently asked questions for patients from Canada, including what to bring and how Mayo would work with your provincial plan http://www.mayoclinic.org/canada/faq http://www.catie.ca/fact-sheets/infections/mycobacterium-avium-complex-mac
Thank you Katherine❤️
From My File Cabinet .. Hugs! Katherine
SWIMMING POOLS AND HOT TUBS https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3949190/ MAC is ubiquitous in distribution. It has been isolated from fresh water and salt water worldwide.
https://patient.info/doctor/mycobacterium-avium-complex This can occur in those exposed to water vapour containing MAC (commonly in poorly maintained indoor hot tubs or swimming pools).
2017 Per @windwalker Terri When I was at the convention in DC, the experts there said that chlorine actually concentrates MAC and that some species have become resistant to it.
Jennifer, I just read an article from a gov’t health site. There wasn’t much in the article; only that a study of 30 swimming pools were tested for mycobacteriums. 88% came back positive for M. Gordinae, M. Chelonae, M. Fortuitum, and m. Adscessus. They said these organisms were found during ALL phases of the chemical treatment cycles. That means they are resistant to chlorine. The article did not say if these pools were indoors or outdoors. We know that indoor pools are especially dangerous for these organisms. It also stated that the more people that use the pool, the more likely it is to have many bacteriums in it. M. Abscxessus is particularly nasty as it does destruction to your lungs, (causes cavities in the lung) and is extremely hard to get rid of. It is resistant to most antibiotics. I have quit the hot tubs altogether and rarely get into any swimming pools. After reading that article, I am with Katherine, I am not getting into any! I still want to learn more about MAC people and swimming pools.
No more swimming in indoor pools. Going to Mexico in a week. Will be very aware of info given. I will cool off but quickly. I guess my swimming days r cut back. No more under water…hot tubs I never do now. So sad….
Liked by Terri Martin., Volunteer Mentor
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