Sudden significant, difficult to control nasal bleeding

Posted by delia74 @delia74, Mar 30 10:42am

On March 18th, I awakened around 6 AM to the sensation of a runny nose, only to learn that it was blood --- lots of blood! Made my way to the bathroom and saw blood actually squirting out of left nostril, flowing out the right one. I could feel the warm blood seeming to rush down my throat, and a pulsing sensation within the left side of sinuses. There's a great deal to what transpired over the next 10 hours, but it involved two ERS and a private otolaryngologist (she removed a device called a Rocket which an overambitious PA had inserted without giving specifics and not having asked any questions about my medical issues, and the dang Rocket set off intense nerve pain in my face and left eye. I wanted it OUT and the otolaryn-gologist did so and then cauterized it. She also removed several nasty blood clots out of my throat (no wonder I couldn't swallow water!). She gave me advice and instructions on what to do in the event of another episode, and I left exhausted but relieved to have had the bleeding attended by her. One week later (March 25) almost to the exact same time in the morning, I experienced ground hog day with SAME SITUATION. I took care of it by following the steps given to me by the doctor the previous week, and pinched my nostrils for 1 1/2 hrs until our local Urgent Care opened. The department is on the ground floor of our huge medical group (with many specialists and even radiology and Blood Lab), and yet not ONE of the staff in the ENT department was willing to see me "...because she has active bleeding..." and directed me to go to county medical center (where in the past I sat for HOURS with my elderly mother just waiting to be seen). That was not an option for me, so I went home and tended to my own care. The bleeding was not as significant this time, and stopped by using what I'd been instructed. I did see an ENT the following day (he agreed to see me ONLY because I had "no active bleeding." Examined me and said that he could see "nothing significant, other than a deviated septum and an area of exposed bone." Did not explain well when I questioned the "exposed bone." Told me that if it happened again, to go to medical center, and I told him NO, I would NOT go sit for hours in the ER of the medical center, but would definitely return to the otolaryngologist who had so wonderfully attended to me the prior week.
So I left, and the week went fine. I felt unwell from all the stress, etc., and other health issues, but all went well for balance of week....until this morning! AGAIN nose bleed episode! But I was seriously experienced and prepared THIS time, and with my husband's help, Afrin sprayed cotton pads inserted into nostrils, leaning downward, AND tightly squeezing my Mose, the bleeding came into control. Today is Saturday, and first thing Monday morning, a call will be placed to the private otolaryngologist who helped me the first time I experienced this. Right now, I have the cotton pad plugs in both nostrils. When removed, there is no bleeding but there is light tinge on the plugs.

So THREE nasal bleeding episodes almost exactly a week apart, and I have never had nosebleeds in my life, and I turn 76 in August.

No, I do not take blood thinners and stopped taking low dose aspirin which had been prescribed by my cardiologist, but I ran out about 2 months ago and just forgot to buy more (prescribed dose was one 82 mg tiny aspirin nightly). I also stopped the Omega supplement, about 3 to 4 weeks ago. So NO blood thinners at all.

I would so appreciate any info that can be shared by anyone who has experienced what I'm undergoing.

Thanks for taking the time to read this long post...would have been much longer if I had described the horrible experience that I underwent in the first ER, which is why I left and went to the second one! In the second ER is where the PA called the otolaryngologist who saw me within hours (we had to go home first so my husband could eat since he's diabetic and can't go long hours without nourishment or it causes nasty side effects). I am so indebted to her for her professionalism and willingness to see me when NOT ONE other ENT would do so.

Gracias 💖....

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

Bless You! Do you use Flonase or do you take Fish Oil? Flonase can cause nosebleeds in some people and Fish Oil is a natural blood thinner. Taking Ginger & Feverfew can also cause nosebleeds. Have you had your K level checked? Low Vitamin K can cause nosebleeds. Praying for you to get better. This has got to be scary.

REPLY

Had the same thing 2 years ago! Spontaneous nose bleeds, difficult to stop! Did anyone do lab work, specifically a calcium level/PTH, take your blood pressure or any other diagnostic tests? Just a couple of shots on the dark… Bloody noses could be caused by extremely high blood pressure. In my case it took an astute female Dr to review my lab work to diagnose a parathyroid tumor. These are usually benign, mine was. There are 4 parathyroid glands having nothing to do with the thyroid gland, but help control the calcium levels in your system. My signs & symptoms were missed for over five years which resulted in a severe osteoporosis! Have you internist check you serum calcium, PTH, and BUN levels. I am sure this was & is very distressing to you!

REPLY
@kndaustin71

Had the same thing 2 years ago! Spontaneous nose bleeds, difficult to stop! Did anyone do lab work, specifically a calcium level/PTH, take your blood pressure or any other diagnostic tests? Just a couple of shots on the dark… Bloody noses could be caused by extremely high blood pressure. In my case it took an astute female Dr to review my lab work to diagnose a parathyroid tumor. These are usually benign, mine was. There are 4 parathyroid glands having nothing to do with the thyroid gland, but help control the calcium levels in your system. My signs & symptoms were missed for over five years which resulted in a severe osteoporosis! Have you internist check you serum calcium, PTH, and BUN levels. I am sure this was & is very distressing to you!

Jump to this post

Thank you so much for responding and sharing your experience. 🌺

At least I was ready when I had the repeat performance of my scary nose bleed yesterday.
I hated waking up my husband since he has sleep interruptions due to severe neuropathic pain in his feet but I needed his help with doing what I had been informed would stop the bleeding (and avoid yet another event like the first one on March 18th).

The plugs that he helped me shape from small cotton square rolled into "plugs" sprayed with Afrin absolutely did work! My doctor had suggested cotton balls but the little square pads were great. Took about hour with them in place, and having to replace them twice before the bleeding stopped (as did the disgusting warm blood down my throat and gagging!) and I was able to kinda sleep sitting up, propped by many comfy pillows on the family room sofa. It was difficult having to breathe through my mouth because I'd keep jerking awake whenever my mouth would close and I guess my brain registered "Wake up! No oxygen getting to me!" After getting up, showering, and having a light lunch, I actually was able to go over to our older daughter's home (she lives about 5 minutes away in same town) and do a laundry. Yeah, our washer chose to just stop working this week, to add to my stress level. And you are absolutely spot on when you indicate blood pressure being a factor! Despite metoprolol succinate extended release and losartan, my BP was elevated this week due to the stress of the unknown etiology of the sudden nasal bleeds but also brought on by dealing with a dead washer (that had clothes in it when it chose to stop working), getting a repairman to the house and then learning that the mother board needed replacement so it was not worthwhile saving the 12 yr old appliance, and then coming to grips that I would replace BOTH appliances so that they would both have a distal demise...the dryer had been "hiccuping" for the past month also, with at times extending a dry time of 28 minutes to over an hour and then upping it again by 47 minutes, which meant that I had to keep an eye on the dry cycle...so yes, the stress of facing a major output of money for new appliances had my heart palpitating (I also have irregular beats but not atrial fibrillation thank God).

I did have blood drawn at the second ER that I was in on the first nose bleed event (March 18). And all those tests were normal, no low or high readings of crucial items. But of course it did not include specifics that you indicate your primary ordered. I had a Virtual Visit with my outstanding primary this past Tuesday (day after the second nasal episode) and she had the blood work results done on the 18th so she was pleased to see that all had been fine. Of course I will drop off a note at her office here in town (literally 4 minutes from our home) regarding what you indicated. I drop off notes rather than email via the patient portal since the portal does not always work for me. It's a new system for the medical group and still is quirky, so dropping off a note is way more efficient and direct since her nurse attends to it right way, making sure that my doctor reads it. Her nurse is amazing and she is the one who gives me my monthly B12 shot. So I'll drop off a note tomorrow (she's in the office on Mondays which works out great), asking if she might consider having those specific levels tested. She will definitely be concerned that after speaking with her on Tuesday via Virtual Visit that I had yet another event just 4 days later. The lab is within the same building so it will be easy to get blood drawn.

I do know that I have osteopenia but not osteoporosis. I have fallen several times and thank God no breaks or fissures of any kind. I've had balance issues for over 9 yrs now, and just recently got a diagnosis that explains why, but I can't share that just yet...still wrapping my head around it and the impact on our lives...

Your reply and that of another member have both been very useful and appreciated. The fact that you experienced a similar situation at least relieves a bit of the stress of thinking it could be a vascular issue (although I will be contacting my vascular cardiologist this week to get his input as well). Two otolaryngologists have indicated that the problem lies within the nose passages itself. I will be making an appointment with the one that cauterized the left nostril (the one that literally pulsed and gushed warm blood out the opening as well as flowed down my throat). I vetted her and learned about her incredible education and experience, and that she is also an outstanding surgeon (just in the event that it should be required). The doctor at my medical group pales in comparison, so of course I'd choose her!

Can you share how you are doing now, since having had the parathyroid tumor addressed? Was it excised or treated by another means? It would be helpful for me to know.

Be well, and thank you again💖.

REPLY
@covidstinks2023

Bless You! Do you use Flonase or do you take Fish Oil? Flonase can cause nosebleeds in some people and Fish Oil is a natural blood thinner. Taking Ginger & Feverfew can also cause nosebleeds. Have you had your K level checked? Low Vitamin K can cause nosebleeds. Praying for you to get better. This has got to be scary.

Jump to this post

Thank you so much for responding🌺.
No, I do not use Flonase or any other OTC. Had been prescribed a spray but found it not useful so stopped about 2 yrs ago (used it for about 9 months). I do use Ayr, an OTC saline spray which helps with nasal dryness. We also have air purifier in the bedroom (and in living room and family room) as well as cool mist humidifiers.
I've never been on blood thinners but had taken (as prescribed by cardiologist) low dose aspirin, which I stopped taking when I ran out about 7 weeks ago. Quite honestly, I just forgot to purchase to replenish it. No fish oil, because even the "odorless" offends my nose. I had been on Nordic Naturals Omega supplement (lemon flavor is great), but take only 1 gel capsule daily instead of the indicated 3 per day. Have been taking that for about 6 yrs with no issues, but after the nasal bleeding episodes gave thought to the fact that whenever I've had any type of surgical procedure (even dental such as root canal) I'd been asked to not take. So I stopped taking it as of March 19th (the day following the first nasal bleeding episode.
I don't use ginger, except for a sprinkling when making stir fry dishes, and have never used feverfew. Another member responded with info regarding her own sudden nose bleeding, and how her doctor did incredible investigating into her blood components and discovered it was due to a parathyroid tumor. Live and learn! How wonderful that her doctor was so astute. I am communicating with my primary and asking about certain testing for my blood. Yes, I had blood drawn on the day of the first episode and ALL results were fine, no red flags of any kind.

Quite frankly, I am anxious now about venturing out for fear that another episode can occur. What I find a bit comforting is that we wear masks to everywhere we go, so now I'll just place what is called "a dam" under my nose, which will be concealed by the mask! And I plan our errands, etc., anyway so I won't have to be out for very long. All our doctors, stores, etc., are within a 5 to no more than 10 minute one way trip from our home.

Gracias for taking the time to reply to my post. May you enjoy a blessed and peaceful Sunday today, and the week as well.😊🌺

REPLY
@delia74

Thank you so much for responding and sharing your experience. 🌺

At least I was ready when I had the repeat performance of my scary nose bleed yesterday.
I hated waking up my husband since he has sleep interruptions due to severe neuropathic pain in his feet but I needed his help with doing what I had been informed would stop the bleeding (and avoid yet another event like the first one on March 18th).

The plugs that he helped me shape from small cotton square rolled into "plugs" sprayed with Afrin absolutely did work! My doctor had suggested cotton balls but the little square pads were great. Took about hour with them in place, and having to replace them twice before the bleeding stopped (as did the disgusting warm blood down my throat and gagging!) and I was able to kinda sleep sitting up, propped by many comfy pillows on the family room sofa. It was difficult having to breathe through my mouth because I'd keep jerking awake whenever my mouth would close and I guess my brain registered "Wake up! No oxygen getting to me!" After getting up, showering, and having a light lunch, I actually was able to go over to our older daughter's home (she lives about 5 minutes away in same town) and do a laundry. Yeah, our washer chose to just stop working this week, to add to my stress level. And you are absolutely spot on when you indicate blood pressure being a factor! Despite metoprolol succinate extended release and losartan, my BP was elevated this week due to the stress of the unknown etiology of the sudden nasal bleeds but also brought on by dealing with a dead washer (that had clothes in it when it chose to stop working), getting a repairman to the house and then learning that the mother board needed replacement so it was not worthwhile saving the 12 yr old appliance, and then coming to grips that I would replace BOTH appliances so that they would both have a distal demise...the dryer had been "hiccuping" for the past month also, with at times extending a dry time of 28 minutes to over an hour and then upping it again by 47 minutes, which meant that I had to keep an eye on the dry cycle...so yes, the stress of facing a major output of money for new appliances had my heart palpitating (I also have irregular beats but not atrial fibrillation thank God).

I did have blood drawn at the second ER that I was in on the first nose bleed event (March 18). And all those tests were normal, no low or high readings of crucial items. But of course it did not include specifics that you indicate your primary ordered. I had a Virtual Visit with my outstanding primary this past Tuesday (day after the second nasal episode) and she had the blood work results done on the 18th so she was pleased to see that all had been fine. Of course I will drop off a note at her office here in town (literally 4 minutes from our home) regarding what you indicated. I drop off notes rather than email via the patient portal since the portal does not always work for me. It's a new system for the medical group and still is quirky, so dropping off a note is way more efficient and direct since her nurse attends to it right way, making sure that my doctor reads it. Her nurse is amazing and she is the one who gives me my monthly B12 shot. So I'll drop off a note tomorrow (she's in the office on Mondays which works out great), asking if she might consider having those specific levels tested. She will definitely be concerned that after speaking with her on Tuesday via Virtual Visit that I had yet another event just 4 days later. The lab is within the same building so it will be easy to get blood drawn.

I do know that I have osteopenia but not osteoporosis. I have fallen several times and thank God no breaks or fissures of any kind. I've had balance issues for over 9 yrs now, and just recently got a diagnosis that explains why, but I can't share that just yet...still wrapping my head around it and the impact on our lives...

Your reply and that of another member have both been very useful and appreciated. The fact that you experienced a similar situation at least relieves a bit of the stress of thinking it could be a vascular issue (although I will be contacting my vascular cardiologist this week to get his input as well). Two otolaryngologists have indicated that the problem lies within the nose passages itself. I will be making an appointment with the one that cauterized the left nostril (the one that literally pulsed and gushed warm blood out the opening as well as flowed down my throat). I vetted her and learned about her incredible education and experience, and that she is also an outstanding surgeon (just in the event that it should be required). The doctor at my medical group pales in comparison, so of course I'd choose her!

Can you share how you are doing now, since having had the parathyroid tumor addressed? Was it excised or treated by another means? It would be helpful for me to know.

Be well, and thank you again💖.

Jump to this post

I had one parathyroid gland removed at the Norman Center in Tampa, Florida. This was after over 5 years of missed signs/symptoms of parathyroid disease, ie hypertension, kidney stones, elevated BUN which eventually led to CKD and the severe osteoporosis. I would imagine that your nosebleeds to the degree that you are describing is caused by something! That's what needs to be addressed: Why are you having the nosebleeds?

REPLY
@kndaustin71

I had one parathyroid gland removed at the Norman Center in Tampa, Florida. This was after over 5 years of missed signs/symptoms of parathyroid disease, ie hypertension, kidney stones, elevated BUN which eventually led to CKD and the severe osteoporosis. I would imagine that your nosebleeds to the degree that you are describing is caused by something! That's what needs to be addressed: Why are you having the nosebleeds?

Jump to this post

Thanks for responding and sharing further.
The perplexing thing is that my nose bleeds came out of NOWHERE, and I had never had nosebleeds before, not even as a child. Sinus issues yes, but none in past 2 years or so. I believe that is due to wearing a mask anywhere that we go, and insisting that any service person wear a mask and booties over their shoes (we do have allergies and I do not have a housekeeper so I feel very justified in demanding this). The "source/reason" is precisely what I want to know, but so far no one has offered a reason other than that "you evidently have sensitivities and you absolutely must run the cool air humidifier constantly" (right, like I want to promote mold!). One doctor told me to put vaseline INTO the nostril....gross. I do put a smidgeon of Ayr Gel just inside the opening (so it's not visible), and the product is very soothing with no odor.

Siiiggghhh! Will have to "deal" for now....but will definitely be pushing for the etiology...🤔

REPLY

3 years ago, I had 4 mysterious nose bleeds within 2 weeks.
The 1st one stopped after squeezing the nasal tip for 45 minutes , but #2 & #3 required cauterizations. When #4 started, I sprayed in Aftin and help my nose for only a few minutes before it stopped. (Maybe I should have used cotton.)
No explanation for the cause, but the blood was flowing from the septum side of the lower part of one nostril.
I now use Simple Saline (no preservatives) spray and - when the air is dry - a small amount of coconut oil in my nasal passages before sleep.
An ENT in the ER of a Boston hospital (that specializes in ENT problems) said that if there were more nosebleeds, surgery was possible.
I think that a combination of dry air and thinning nasal membranes left nasal capillaries without protection they had when I was younger.
My experience was not as bad as yours and I also had a partner who was able to drive quickly to the best hospital for this problem.
I’m so sorry that you had to endure this nightmarish experience.

REPLY
@mslw

3 years ago, I had 4 mysterious nose bleeds within 2 weeks.
The 1st one stopped after squeezing the nasal tip for 45 minutes , but #2 & #3 required cauterizations. When #4 started, I sprayed in Aftin and help my nose for only a few minutes before it stopped. (Maybe I should have used cotton.)
No explanation for the cause, but the blood was flowing from the septum side of the lower part of one nostril.
I now use Simple Saline (no preservatives) spray and - when the air is dry - a small amount of coconut oil in my nasal passages before sleep.
An ENT in the ER of a Boston hospital (that specializes in ENT problems) said that if there were more nosebleeds, surgery was possible.
I think that a combination of dry air and thinning nasal membranes left nasal capillaries without protection they had when I was younger.
My experience was not as bad as yours and I also had a partner who was able to drive quickly to the best hospital for this problem.
I’m so sorry that you had to endure this nightmarish experience.

Jump to this post

Thank you for taking the time to reply. Your experiences resonate what I've undergone.
Yes, Afrin sprayed cotton inserted into the left nostril (the one that literally pours out blood) absolutely helped. Ditto to the squeezing (which I did for 90 minutes this past Saturday when I had episode #3!).
We've had air purifiers and cool mist humidifier stationed strategically throughout the house, and most definitely in the bedroom. And yet I experienced what I call "nasal hemorrhaging" episodes.
I'm looking to be seen by the incredible otolaryngologist who cauterized the nostril with the first episode. She also removed sizable blood clots that had lodged in my throat (making it difficult to breathe and swallow). I'm so worn out and stressed with this additional "condition" placed on my already seriously filled medical plate. Doesn't do much for my ongoing depression either, and adds more to my husband's intense heart issues.

Gracias for your input. Deeply appreciated.

REPLY

I'm so sorry for what you're going through, and for the agonizing uncertainty. My 81 year-old husband started having copious nosebleeds (no history) in mid-2022. Maybe an average of once per month. An urgent care visit resulted in a cauterization of some kind and taking Afrin home with us. It worked well for a long time. No bleeding. Then last fall 2023 he started getting a severe headache (he's not a headache person AT ALL) that grew more painful over about a week, and the nosebleed situation came back with it. We figured it was time for the ER. They saw a nasal mass in one of their scans. After consulting with an ENT surgeon the next week (the result of an ER referral), a biopsy was done shortly after and the result was a malignancy, either a carcinoma or sarcoma, (it was never determined for sure). Scans showed no spread. In December the tumor was cleanly removed endoscopically (through the nostril, no cutting) in a long operation by that same ENT and a neurosurgeon standing by. The location of the tumor was close to the brain. It all went very well, with a one-week stay in the ICU to watch for spinal fluid leaks. My husband is now in his final week of chemoradiation (once per week), and we won't know for about 3 months from now (summer 2024) if there is any cancer remaining, when they do all the scans again. Chemo has been more or less tolerable; the radiation has caused more of the discomfort to the targeted area, but compared to many others he has fared well. That's a lot of detail just to tell you that going to the ER was ABSOLUTELY the key to finding and treating his problem, which started as copious, unpredictable nosebleeds, followed by a debilitating headache. I send my encouragement!

REPLY

There is always an underlying reason for nosebleeds that are as copious as everyone has experienced. It just takes the right physician to take the time to work through a diagnostic differential. Therein lies the problem!

REPLY
Please sign in or register to post a reply.