Are Parkinson's symptoms increased with stress?

Posted by esther589 @esther589, May 25 1:51am

I think my symptoms are increased when I feel stressed.
We currently have visitors staying close by and the pressure I feel to think about their needs every day as well as our own seems to be making my symptoms worse.
I've noticed it also when I go for hospital visits.
Do others experience this?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Profile picture for coho222 @coho222

I should have mentioned previously that I’ve had deep brain stimulation surgery. Unfortunately, it has not worked out for me as well, as I would have liked at least with respect to treating the dystonia.

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@coho222
You mean dystonia in your feet? That is the worse symptom for me by far. Luckily, I only get it in the morning before I take my medication.

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I should have mentioned previously that I’ve had deep brain stimulation surgery. Unfortunately, it has not worked out for me as well, as I would have liked at least with respect to treating the dystonia.

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Profile picture for goatgirl28 @goatgirl28

@esther589 In my life I learned early on to value small victories. When I need reminding, I put in my Queen cd and play We are the champions.

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@goatgirl28
Thanks for your comment. I appreciate your support.
Yes, this is a devastating disease and my case is particularly concerning at least to me.

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @coho222

I see from your post that you are considering a second opinion at Mayo Clinic. Here is a link to appointment information: http://mayocl.in/1mtmR63. Complex health issues are often best treated at a large health care facility like Mayo or a university medical school.

On Connect, you can find discussion groups for issues with constipation as well as migraines. To find these discussions, just use the search button at the top of your screen.

I look forward to hearing from you again. Will you continue to post with questions and updates as you seek help?

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@hopeful33250
I will make an effort to get in touch with you And try to get through to the Mayo Clinic in Arizona. I think that is closer than Minnesota.
I’ve already been through the University of Washington system several times over the past few years. I’m sure it’s just as difficult for me there as it will be at Mayo.
Thanks for your concern

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Profile picture for nova11723 @nova11723

@goatgirl28
I’m sorry to have made you discuss this painful situation. I wish there was medication that could help you walk and not have pain in the car. I’ll share that the car is an anxious place for me; not.painful, but mentally challenging. Requip also helped a lot with my movement, but of course, your situation is different. Again, sorry.

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@nova11723 Oh no, don't be sorry. This is one place we can share. I will check out Requip.

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Profile picture for esther589 @esther589

@goatgirl28
A devastating situation for you. This disease takes so much from us but I encourage you to remain hopeful. I was using a wheelchair most of the time last year but now I am able to walk short distances without pain. It enables me to go to the grocery store and walk from the car a short distance. I can sometimes drive but I recognize when I don't have the capacity and find other solutions.
All small victories but I'm grateful for them.
I hope you find your way to some small victories that might give you hope for some bigger ones in the future.

Jump to this post

@esther589 In my life I learned early on to value small victories. When I need reminding, I put in my Queen cd and play We are the champions.

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Profile picture for coho222 @coho222

I have Parkinson’s with Gastroparesis, dystonia in my hamstrings,and possibly my calves, chronic constipation, chronic insomnia, and a frequent migraine headache disorder that has been unresponsive to most medications. I haven’t been able to sit down or lie down on my butt or back an can only sleep on my left side.

I am trying to find a neurologist and gastroenterologist with experience dealing with very complex patients. I am 77 and am not ready to die yet…. Is there a provider at. Mayo who can help me…

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Hello @coho222

I see from your post that you are considering a second opinion at Mayo Clinic. Here is a link to appointment information: http://mayocl.in/1mtmR63. Complex health issues are often best treated at a large health care facility like Mayo or a university medical school.

On Connect, you can find discussion groups for issues with constipation as well as migraines. To find these discussions, just use the search button at the top of your screen.

I look forward to hearing from you again. Will you continue to post with questions and updates as you seek help?

REPLY

I have Parkinson’s with Gastroparesis, dystonia in my hamstrings,and possibly my calves, chronic constipation, chronic insomnia, and a frequent migraine headache disorder that has been unresponsive to most medications. I haven’t been able to sit down or lie down on my butt or back an can only sleep on my left side.

I am trying to find a neurologist and gastroenterologist with experience dealing with very complex patients. I am 77 and am not ready to die yet…. Is there a provider at. Mayo who can help me…

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have any of you tried one of other vagal nerve stimulators for anxiety and other PD autonomic symptoms? Our doctor recommended we try the Pulsetto to help calm anxiety and also help calm the gut. The advertising material is interesting but it's hard to believe much of anything on the internet anymore. Anyone actually tried a Pulsetto or Halo or Parasym gadget?

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Profile picture for goatgirl28 @goatgirl28

@nova11723 I don't go out because sitting in the car is painful and I don't want to be away when I need to curl up on the floor. Being with the goats does not cause PD but I need to be alert and be able to carry 50# of feed and 67# hay bales. Right now I can't even walk to the barn. The issue of being on the farm is the chemicals. Most of us have heard about RoundUp but there are other chemicals some hay growers and feed producers use and I am exposed to them second hand. Don't even get me started on corn. Right now I can't even walk to the barn.

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@goatgirl28
A devastating situation for you. This disease takes so much from us but I encourage you to remain hopeful. I was using a wheelchair most of the time last year but now I am able to walk short distances without pain. It enables me to go to the grocery store and walk from the car a short distance. I can sometimes drive but I recognize when I don't have the capacity and find other solutions.
All small victories but I'm grateful for them.
I hope you find your way to some small victories that might give you hope for some bigger ones in the future.

REPLY
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