Stress and Parkinson's symptoms
I think my symptoms are increased when I feel stressed.
We currently have visitors staying close by and the pressure I feel to think about their needs every day as well as our own seems to be making my symptoms worse.
I've noticed it also when I go for hospital visits.
Do others experience this?
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@windyh
I agree with everything you are saying. It is a tough journey to acceptance.
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1 ReactionI hear you! I have had to give up my discussion group, eating out and, worst of all, my livestock.
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2 Reactions@goatgirl28
You have to give up all that? My spouse often schedules me for things that makes it hard to say “no.” So I force myself to attend, and my body usually finds a way to make it work. I don’t want to make it sound so easy; it involves the right combination of meditation and some planning. And it isn’t always perfect, but sometimes forcing myself to go out is not a bad option,
By the way, I have heard in this forum that being on a farm can cause PD, but do you mind me asking is livestock cause you symptoms?
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@nova11723 I don't go out because sitting in the car is painful and I don't want to be away when I need to curl up on the floor. Being with the goats does not cause PD but I need to be alert and be able to carry 50# of feed and 67# hay bales. Right now I can't even walk to the barn. The issue of being on the farm is the chemicals. Most of us have heard about RoundUp but there are other chemicals some hay growers and feed producers use and I am exposed to them second hand. Don't even get me started on corn. Right now I can't even walk to the barn.
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4 Reactions@goatgirl28
I’m sorry to have made you discuss this painful situation. I wish there was medication that could help you walk and not have pain in the car. I’ll share that the car is an anxious place for me; not.painful, but mentally challenging. Requip also helped a lot with my movement, but of course, your situation is different. Again, sorry.
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3 Reactions@goatgirl28
A devastating situation for you. This disease takes so much from us but I encourage you to remain hopeful. I was using a wheelchair most of the time last year but now I am able to walk short distances without pain. It enables me to go to the grocery store and walk from the car a short distance. I can sometimes drive but I recognize when I don't have the capacity and find other solutions.
All small victories but I'm grateful for them.
I hope you find your way to some small victories that might give you hope for some bigger ones in the future.
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3 Reactionshave any of you tried one of other vagal nerve stimulators for anxiety and other PD autonomic symptoms? Our doctor recommended we try the Pulsetto to help calm anxiety and also help calm the gut. The advertising material is interesting but it's hard to believe much of anything on the internet anymore. Anyone actually tried a Pulsetto or Halo or Parasym gadget?
I have Parkinson’s with Gastroparesis, dystonia in my hamstrings,and possibly my calves, chronic constipation, chronic insomnia, and a frequent migraine headache disorder that has been unresponsive to most medications. I haven’t been able to sit down or lie down on my butt or back an can only sleep on my left side.
I am trying to find a neurologist and gastroenterologist with experience dealing with very complex patients. I am 77 and am not ready to die yet…. Is there a provider at. Mayo who can help me…
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3 ReactionsHello @coho222
I see from your post that you are considering a second opinion at Mayo Clinic. Here is a link to appointment information: http://mayocl.in/1mtmR63. Complex health issues are often best treated at a large health care facility like Mayo or a university medical school.
On Connect, you can find discussion groups for issues with constipation as well as migraines. To find these discussions, just use the search button at the top of your screen.
I look forward to hearing from you again. Will you continue to post with questions and updates as you seek help?
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2 Reactions@esther589 In my life I learned early on to value small victories. When I need reminding, I put in my Queen cd and play We are the champions.
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3 Reactions