Stiff Person Syndrome

Posted by Suzanne Leaf-Brock @suzanneleafbrock, Jul 5, 2011

Am interested in connecting with people who have this or are significant others of people who have this condition. (I’m in the latter group).

Liked by mcrchicago

please someone tell me what is going to happen to me, I cant find anything online I have been on every website

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@suzieflynn

please someone tell me what is going to happen to me, I cant find anything online I have been on every website

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@suzieflynn, I have no medical background or training but I'm not sure anyone can tell you what's going to happen because the prognosis varies depending on a person’s symptoms. You can find more information here:

Stiff Person Syndrome: Outlook / Prognosis:
https://my.clevelandclinic.org/health/articles/6076-stiff-person-syndrome/outlook–prognosis

Here is another patient story that you may find helpful — Sharing Mayo Clinic: Diagnosed with stiff-person syndrome:
https://newsnetwork.mayoclinic.org/discussion/sharing-mayo-clinic-diagnosed-with-stiff-person-syndrome/

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@suzieflynn

Thank you very much Does anyone know what is going to happen to me

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Suzie, you may also be interested in this discussion with @pattygail @sandra319 and @hammere4,
– Stiff Person Syndrome https://connect.mayoclinic.org/discussion/stiff-person-syndrom/

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how do i contact them

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@suzieflynn

how do i contact them

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@suzieflynn, If your question is how to do you contact Mayo Clinic, you can contact one of the appointment offices. The
contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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@johnbishop

@suzieflynn, If your question is how to do you contact Mayo Clinic, you can contact one of the appointment offices. The
contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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thank you

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@suzieflynn

what meds are you taking?

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I am taking baclofen and just started diazepam this week. My insurance approved IVIG again so I am going once a month. This does slow the progression.

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