← Return to Stiff Person Syndrome: Want to connect with others

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@trs

Hi Chris,
I use medical cannabis to help with stiffness, pain and spasms. SPS spasms in my case are the most debilitating. Prior to turning to medical cannabis, I had exhausted medication including epidurals, balcofen and many others. I had to experiment with different products, doses and method of use. It required me to journal daily. 2:1 ratio does not seem to work for me. However, the gummies, vape, chocolates and my home made tincture (I mix the medical cannabis is Agave syrup) and use it in my hot beverages or take a tablespoon before I retire to bed. Also, adding the 1:1 rso in the Agave cuts way down on my cost. One bottle last about 2 months depending on my symptoms. The capsules do not work for me. I try to stay with the same company and Iow experiment ounif the product is not available. Remember, all cannabis is not the same. More specifically, different medical cannabis company's products will produce a different impact, even if it's a 1:1 ratio of the THC/CBD. And no one seems to know why. You find what works for you and stay with it. I am good with exploring, because just like differences within medical cannabis, so are there differences with SPS. And medical cannabis is safer😁 My focus is on doing everything, everyday that I can to function at my best. So I fight! Hopefully, I will write an article this winter on my experience. I am on Valium PRN, but unless I travel out of state, I never use it. Thank God!

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Replies to "Hi Chris, I use medical cannabis to help with stiffness, pain and spasms. SPS spasms in..."

@trs, Thank you for sharing your medical cannabis protocol. I used to put the tincture in my coffee. Now I hold it under my tongue so it can get to work sooner. I am very interested in your Agave syrup. Are you letting the Agave take the place of the coconut oil, etc. that combines with the cannabis in the dispensary bottle? Or are you adding to the tincture while keeping
the ratio at 1:1.? If you can, from what I have written, HELP.

I understand the Valium PRN......I did that the very same way when I was in pain prison....and especially for traveling when I knew I had a difficult meeting at 9:00 a.m. Now, with just a 2:1 and some gabapentin to quiet the hands, I can sleep on past the 5:30 am "burn" or "zaps" that I used to face. Retirement helps.

One more request.....if the SPS spasms are the most debilitating, do you use this same cannabis program or with something extra?

It sounds like we are both fighting the fight. If you can, please respond. I will be looking forward to your article. Find relief today. Chris