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Am interested in connecting with people who have this or are significant others of people who have this condition. (I’m in the latter group).
how do i contact them
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@suzieflynn, If your question is how to do you contact Mayo Clinic, you can contact one of the appointment offices. The
contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.
what meds are you taking?
I am taking baclofen and just started diazepam this week. My insurance approved IVIG again so I am going once a month. This does slow the progression.
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