To @nutmeg: Your symptoms sound exactly like mine. I walk with walking sticks when I go for a walk, because I can’t do curbs, slanted surfaces, or gravel. I can motor on sidewalks, but am afraid to go without my walking sticks because of the possibility of the above obstacles.

I had a “negative “ EMG, but am questioning that answer: Twice during the procedure , my left thigh tightened to the point where I could not lift my leg. The tech and doctor were at my ankle level both times. I reported the spasm, but they ignored me both times and just continued the procedure.

I DO have an appointment at Mayo in Rochester this Wednesday, November 5th, and am very hopeful that I get a doctor who listens, is empathetic, and cares about what is happening to me.

Please reply to me. I really hope we can get help: I really want to golf, but that really throws me off balance.

From Peggy

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