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jelrog
@jelrog

Posts: 3
Joined: Feb 13, 2017

Stem cells for Pulmonary Fibrosis

Posted by @jelrog, Mon, Feb 13 4:43pm

Has anyone heard about stem cell implants for pulmonary fibrosis?

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Colleen Young, Connect Director
@colleenyoung

Posts: 3365
Joined: Jul 23, 2014
Posted by @colleenyoung, Mon, Feb 13 6:16pm

Welcome to Connect, @jelrog.
At Mayo Clinic, research is leading the development of new regenerative therapies (stem cell therapies) for people with a wide range of lung diseases. Regenerative medicine has the potential to provide innovative new therapies for people with lung diseases, including chronic obstructive pulmonary disease (COPD), pulmonary fibrosis, cystic fibrosis, pulmonary arterial hypertension and bronchiolitis obliterans. You can read more about it here: http://mayocl.in/2ieWfYH

I’m tagging @mike0m @pd02 and @powderpuf as they too were looking into stem cell therapy and pulmonary fibrosis.
Jelrog, how are you currently managing IPF?


jelrog
@jelrog

Posts: 3
Joined: Feb 13, 2017
Posted by @jelrog, Tue, Feb 14 3:01pm

This is for my husband. He has a family medicine doctor; an Allergy and Immunology doctor; a Rheumatology doctor; an Oncology & hematology doctor; and a Pulmomology doctor. These are his medications:

20 mcg Forteo injected daily
IVIG infusion every 28 days
200 mcg Breo daily
75 mg high blood pressure medicine daily
3 liters oxygen continually
nasal sprays


pfists
@pfists

Posts: 12
Joined: Dec 27, 2016
Posted by @pfists, Mon, Feb 13 7:09pm

Yes I have been considering it.
Lunginstitute.com
I thing its pretty expensive and not covered by medical insurance though.
They use your own stem cells from either blood or your fat.


tula
@tula

Posts: 16
Joined: Feb 11, 2017
Posted by @tula, Tue, Jul 11 9:35pm

My pulmonologist said, while stem cells work for some diseases, it doesn’ work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!


jelrog
@jelrog

Posts: 3
Joined: Feb 13, 2017
Posted by @jelrog, Fri, Jul 14 12:06am

My husband’s pulmonologist said the very same thing. He actually went and checked one out. He said it is also very difficult for older people to get lung transplants in the U.S.

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