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jelrog
@jelrog

Posts: 3
Joined: Feb 13, 2017

Stem cells for Pulmonary Fibrosis

Posted by @jelrog, Feb 13, 2017

Has anyone heard about stem cell implants for pulmonary fibrosis?

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@colleenyoung

@robinson and @robertjr, I urge you to call the Regenerative Medicine free Consult Service at 1-844-276-2003. They can answer your specific questions about the status of stem cell therapy for lung conditions such as IPF and COPD. See more about here: http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/focus-areas/lung-regeneration

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Colleen,thanks for answer,going to call this week.Since leaving hospital been visited everyday by a nurse and have my wife and family here.My copd is end stage but once i can get my self so i can start getting more physical tberopy ,hop
efully things will get better.having trouble with broken ribs and foot.At first stem cell sounded great but some answers didnt sound that helpful for me.

@colleenyoung

@robinson and @robertjr, I urge you to call the Regenerative Medicine free Consult Service at 1-844-276-2003. They can answer your specific questions about the status of stem cell therapy for lung conditions such as IPF and COPD. See more about here: http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/focus-areas/lung-regeneration

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OK Colleen, I’m planning on calling the Consult Service tomorrow. Thanks

@tula

My pulmonologist said, while stem cells work for some diseases, it doesn’ work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!

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@tula Thank you for posting that. Many of these Stem Cell clinics ARE shams. That is why your insurance won't cover it.

Liked by joanelle77

I am am also looking for info on steam cell therapy for IPF. Any information on Clinical Trials or legetimate Stem Cell Therapy will be appreciated.

I am searching for stem cell treatment options for IPF. Please let me know what you with find out. I was diagnosed with IPF about 5 months ago. I get very short of breath with minimal exertion.

@wba3721

I am searching for stem cell treatment options for IPF. Please let me know what you with find out. I was diagnosed with IPF about 5 months ago. I get very short of breath with minimal exertion.

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Hi @wba3721
To find legitimate information about stem cell therapy for IPF and available clinical trials, I recommend contacting Mayo Clinic's free telephone consult service.

When you call the Mayo's Regenerative Medicine consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

I have been searching for information on Stem Cell/Regenertive Treatment for IPF. Have not found a legetimate option.

I will let you know if i find anything. Please do the same.

@tula

My pulmonologist said, while stem cells work for some diseases, it doesn’ work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!

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@windwalker Thanks! Now I know to avoid this for my Stepdad. I can't thank you enough for recommending Mayo Connect. It's a great help!

@tula

My pulmonologist said, while stem cells work for some diseases, it doesn’ work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!

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@joanelle77, Good morning Joanelle. I am so glad that you visited the Lung Health group. Did you see mention of a med that patients with IF use? I had intended to look it up after I checked all of my texts in my group. There are also diff apparatus available to help clear the lungs of mucous. One is called an 'Acapella', it is a gadget that is put to the mouth and provides a pulsing pressure to the lungs to break up phlegm. There is also a vibrating vest that is commonly used on Cystic Fibrosis patients that shakes the phlegm loose. I know it is difficult to watch someone who is struggling to breathe. He may also experience panick attacks. That is common for people with serious lung diseases. Sometimes patients are prescribed a seditive to take when an attack arises. You and your step-dad are in my thoughts.

@tula

My pulmonologist said, while stem cells work for some diseases, it doesn’ work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!

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@joanelle77 Here is a site for the drug 'Ofev' that is prescribed to IF patients. There is info about the disease itself as well. https://www.ofev.com/

@tula

My pulmonologist said, while stem cells work for some diseases, it doesn’ work for lung disease. You will be given your blood stem cells and spend lots of money, time and effort and it will not help you! A complete sham!

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@joanelle77 Here is another drug that is prescribed for IF patients…https://www.esbriet.com/

I am also looking for information on stem cells for IPF. I will let you know if i find any good info.

@wba3721

I am also looking for information on stem cells for IPF. I will let you know if i find any good info.

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Welcome to Connect, @wba3721
I'm sure that you read through the messages of this discussion. Have you called the Mayo Clinic Regenerative Medicine free consult line? When you call the Mayo's Regenerative Medicine consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service. Or call 1-844-276-2003 to speak with one of our experts.

It can be really difficult to tell which stem cell therapies and regenerative medicine practices are effective and which institutions are offering evidence-based proven therapies. In fact, recently the Food and Drug Administration (FDA) released a stern warning against unproven stem cell therapies. The FDA issued these two press statements: https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573427.htm and https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573431.htm.

It's important to do your research. Happy to hear what you find out.
Wba3721, are you researching about stem cells and IPF for yourself or a loved one?

Have you found any new info about stem cells for Pulmonary fibrosis?

@wba3721

Have you found any new info about stem cells for Pulmonary fibrosis?

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@wba3721, I strongly encourage you to call Mayo's Regenerative Medicine consult service. They will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

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