Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)

Posted by anet @anet, Oct 21, 2019

My husband who is 75 is in stage 4 kidney disease according to his gfr. His last Gfr was 27. That sounds terrible to me, but his nephrologist says he is stable. He is not diabetic. His creatinine is 3.2, albumin 4.1. Phosphorus, sodium, calcium, potassium are all normal. His blood pressure is controlled by medication. He exercises by walking one and a half miles every day. He has two heart stents and takes cholesterol medicine. He has shortness of breath on occasion, but still does all of his normal activities like light yard work, fishing, dining out, going to church activities. I do think he sits too much, but try not to nag. He is not good about eating healthy, but is getting better. Maybe I am just worrying too much. Would like to hear from others in this stage of kidney disease.

@fiesty76

Great news on your GFR improvement, Jane! Can you or Bill re-mention the supplement he must have posted at some other time? Also Stage 3 and wondering if this supplement could be ordered or boost my #s too?

Jump to this post

I am also eating a bowl of blueberries nightly and taking anti-inflammatory supplements and drinking a 5050 mix of brown and green tea. Also taking RESVERATROL, 100 MG.

REPLY
@darlingtondoll

I have been taking the supplement that you recommended and at first, all my kidney numbers were bad – off the charts. It has now been 12 days since I started to take them and all my numbers are normal except my microalbumin which is very high. Everything else looks great. I will get my blood work done again in two weeks. I hope that my eGFR has improved too. Than you Bill for telling me about this kidney cleanse. You’re a life saver.

Jump to this post

I am excited for you. I have been on the 1st color on creatinine test strips now for more than a month. I gave no idea where I am at my GFR rate but I'm hopeful because before this I was at the last color (high creatinine) always. I wonder if any others have tried this similar regimen and experienced improvement?

REPLY
@darlingtondoll

I have been taking the supplement that you recommended and at first, all my kidney numbers were bad – off the charts. It has now been 12 days since I started to take them and all my numbers are normal except my microalbumin which is very high. Everything else looks great. I will get my blood work done again in two weeks. I hope that my eGFR has improved too. Than you Bill for telling me about this kidney cleanse. You’re a life saver.

Jump to this post

Don't forget to post your post Doctor report.

REPLY
@jolinda

Just curious, how can you be sure the supplements are actually changing your kidney function and not just tricking the test into producing a false reading? Many supplement can alter test results dramatically. Vitamin C supplements sometimes produce false positives for blood in stool and Biotin can mask troponin levels in heart attack patients. It be great if there were a supplement that truly regenerated damaged kidney tissue. What ingredients do you think are helping?

Jump to this post

Well, good point! However I did get lab results from my doctor putting me back to my 2013 or so results. I went from flirting with level 5 failure back to level 3. I'm urinating better and only get up once per night versus 3 times. I suspect my kidneys are clearing much more urine faster. I'll post more after my next appointment.

REPLY
@fiesty76

Jane, thanks for the information. I'll check it out. Not really big on supplements but worth a look and happy that you are reporting good results. I know each of us is different but appreciate the name and location.

Jump to this post

Read all the reviews on Amazon then decide.

REPLY
@billagreste

Don't forget to post your post Doctor report.

Jump to this post

My doctor called and he has cancelled all office appointments because of the Covid 19 virus. I got the lab results via a telephone call. I will ask to have the results sent to my home next week when he calls me again.

REPLY

Jane,. Your labs are almost always available online. Mine I can get from "MyChart", but you'll need to research your access.

REPLY

Hi everyone,
When considering complementary or taking supplements, be open-minded yet skeptical. Learn about the potential benefits and risks from credible, evidence-based sources. Here is an article from Mayo Clinic about evaluating claims made by the producers and/or sellers of supplements, natural products and other alternative medicines. http://mayocl.in/2tGC0Jp

Reading reviews from commercial sites like the product's own website or Amazon are not reliable. Companies can pay to have positive reviews posted. Before trying any supplement, I search the National Center for Complementary and Integrative Health's website. Here is what I found:
– Before You Try a Kidney Cleanse https://www.verywellhealth.com/kidney-cleanse-89121
You can also use the NCCIH website to look up the evidence for the individual ingredients in a supplement.

Here's another article that may interest you.
– “Detoxes” and “Cleanses”: What You Need To Know https://www.nccih.nih.gov/health/detoxes-and-cleanses-what-you-need-to-know

Please note that supplements are not reviewed or regulated by the FDA. Always let your provider know if you plan to or are taking any supplements.

REPLY
@darlingtondoll

As Gilda Radner aka Rosanne Rosannadana used to say, “It’s always something “

Jump to this post

You are too young to know Rosanne Rosannadanna! 🙂

REPLY

Some experts advise against taking juniper as it is thought to be nephrotoxic. I stopped using it for that reason.

REPLY
@billagreste

Jane,. Your labs are almost always available online. Mine I can get from "MyChart", but you'll need to research your access.

Jump to this post

Only my urine labs are available right now.

REPLY
@colleenyoung

Hi everyone,
When considering complementary or taking supplements, be open-minded yet skeptical. Learn about the potential benefits and risks from credible, evidence-based sources. Here is an article from Mayo Clinic about evaluating claims made by the producers and/or sellers of supplements, natural products and other alternative medicines. http://mayocl.in/2tGC0Jp

Reading reviews from commercial sites like the product's own website or Amazon are not reliable. Companies can pay to have positive reviews posted. Before trying any supplement, I search the National Center for Complementary and Integrative Health's website. Here is what I found:
– Before You Try a Kidney Cleanse https://www.verywellhealth.com/kidney-cleanse-89121
You can also use the NCCIH website to look up the evidence for the individual ingredients in a supplement.

Here's another article that may interest you.
– “Detoxes” and “Cleanses”: What You Need To Know https://www.nccih.nih.gov/health/detoxes-and-cleanses-what-you-need-to-know

Please note that supplements are not reviewed or regulated by the FDA. Always let your provider know if you plan to or are taking any supplements.

Jump to this post

Colleen, Good point! I generally ignore claims by suppliment suppliers. What I do take is from actual research, not claims. It does work for me. The kidney suppliment was a guess however. There was no conclusive research leading me to it other than prayer. I just started looking and with a sense of doubt started reading testimony after testimony of folks swearing it worked. I had talked to a herbalist also that wanted a fortune but claimed he could help me. My own skeptical side is why I decided to look at the kidney suppliments first. Anyhow, my belief is prayer lead to these events that have me doing the things I needed to do for a positive turn away from dialysis. I suppose we may know more if others here try it.

REPLY
Please sign in or register to post a reply.