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Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)

Posted by anet @anet, Oct 21, 2019

My husband who is 75 is in stage 4 kidney disease according to his gfr. His last Gfr was 27. That sounds terrible to me, but his nephrologist says he is stable. He is not diabetic. His creatinine is 3.2, albumin 4.1. Phosphorus, sodium, calcium, potassium are all normal. His blood pressure is controlled by medication. He exercises by walking one and a half miles every day. He has two heart stents and takes cholesterol medicine. He has shortness of breath on occasion, but still does all of his normal activities like light yard work, fishing, dining out, going to church activities. I do think he sits too much, but try not to nag. He is not good about eating healthy, but is getting better. Maybe I am just worrying too much. Would like to hear from others in this stage of kidney disease.

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collegeprof | @collegeprof | Apr 18 1:44pm

@virginia2020 If you have Zoom or facsimile loaded on a cell phone, tablet, or computer, you may wish to consider "one on one" televisits or telehealth care. Mine is with Mayo, and I see my renal dietitian every 3 months. She uploads all sources of material for me to retrieve. The best part about mine is that she encourages me to contact her in the intervening months should I have any questions,

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sally86 | @sally86 | Apr 18 5:25pm
In reply to @collegeprof "@marye2 There is a community program in the LA area called Circle of CORE (UCLA) that..." + (show)
@collegeprof

@marye2 There is a community program in the LA area called Circle of CORE (UCLA) that is an advocacy group that makes sure kidney patients receive the best care possible. In any event, as long as your team of medical personnel include at least a nephrologist, a dietitian and a PCP, you should be in good hands.The most important factors are to learn as much about this disease and to follow up on your labwork regularly. We all have to watch the potatoes and tomatoes, but it sounds like you have a good start.

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Wow! Thank you for this information!!!!! Yes, I'm back to school full-time. I'm absorbing so much and want to learn as much as I can. And that is the Point: As you said, one's team is of primary importance. Unfortunately, my brother did not team up until I had to stir up some complaints in a polite, assertive way. It's so important, especially in the web of tangled medicine we currently Have. I am going to check CORE out now. And still searching for a better nephrologist.
Thank you, Marye 2. I hope your husband is doing better as well!

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