Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)

Posted by anet @anet, Oct 21, 2019

My husband who is 75 is in stage 4 kidney disease according to his gfr. His last Gfr was 27. That sounds terrible to me, but his nephrologist says he is stable. He is not diabetic. His creatinine is 3.2, albumin 4.1. Phosphorus, sodium, calcium, potassium are all normal. His blood pressure is controlled by medication. He exercises by walking one and a half miles every day. He has two heart stents and takes cholesterol medicine. He has shortness of breath on occasion, but still does all of his normal activities like light yard work, fishing, dining out, going to church activities. I do think he sits too much, but try not to nag. He is not good about eating healthy, but is getting better. Maybe I am just worrying too much. Would like to hear from others in this stage of kidney disease.

Liked by billagreste

@darlingtondoll

I had to call 911 at 3 AM this morning with bad chest pains. I asked to come home after they decided that I was not having another hear attack. I feel safer from the virus at home. So now I am resting in bed and staying safe. I keep talking my nitro and a whole aspirin.

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@darlingtondoll that must have been frightening. Did they discover what the cause of the chest pains was? Hopefully you're sleeping peacefully and will answer in the morning.

@kamama94 I've been thinking of you. How are you holding up?

Liked by billagreste

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@colleenyoung

@darlingtondoll that must have been frightening. Did they discover what the cause of the chest pains was? Hopefully you're sleeping peacefully and will answer in the morning.

@kamama94 I've been thinking of you. How are you holding up?

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I’m up at midnight because it’s time for my next dose of gabapentin and tizanidine. They think that my coronary artery is going into spasms from the insertion of the stent. I never get frightened by any of my disorders. I just try to figure out how to treat each problem in the most efficient manner. When I had my spinal cord stroke, I asked the Emergency room doctor where I needed to go to get better. They sent me by ambulance to Shands Hospital, which is associated with the medical school at the University of Florida. They were great and they kept me for five weeks and taught me how to live in a wheelchair. They didn’t prepare me for the horrible burning pain that I have 24/7. I had to figure that one on my own. Now I am also dealing with kidney failure but I am optimistic that I can keep it from going to a dangerous level.

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@darlingtondoll

I’m up at midnight because it’s time for my next dose of gabapentin and tizanidine. They think that my coronary artery is going into spasms from the insertion of the stent. I never get frightened by any of my disorders. I just try to figure out how to treat each problem in the most efficient manner. When I had my spinal cord stroke, I asked the Emergency room doctor where I needed to go to get better. They sent me by ambulance to Shands Hospital, which is associated with the medical school at the University of Florida. They were great and they kept me for five weeks and taught me how to live in a wheelchair. They didn’t prepare me for the horrible burning pain that I have 24/7. I had to figure that one on my own. Now I am also dealing with kidney failure but I am optimistic that I can keep it from going to a dangerous level.

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@darlingtondoll I am so in awe of your spirit and fortitude! Thank you for posting here. Warm hugs,
Ginger

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@gingerw

@darlingtondoll I am so in awe of your spirit and fortitude! Thank you for posting here. Warm hugs,
Ginger

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As Gilda Radner aka Rosanne Rosannadana used to say, “It’s always something “

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@gingerw

@darlingtondoll I am so in awe of your spirit and fortitude! Thank you for posting here. Warm hugs,
Ginger

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Darlingtondoll, Me too! You are truly another valiant heroine in our group of health warriors!

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@darlingtondoll

As Gilda Radner aka Rosanne Rosannadana used to say, “It’s always something “

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Jane, So True!!!!

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@billagreste

Check out the herbal supplement and read the large number of people saying it helped them…. and some not by a little. I know that a lot of kidney failure instances recover and the supplement didn't do it. But mine was chronic and long term. Good luck!!

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Okay Bill. I have been taking the supplement that you mentioned for over a month. I just got my new labs back and my eGFR improved by going up six points! I am almost out of stage 3 and I am so happy to get that news. I can’t stop smiling. I never cheat on my renal diet, so maybe that helps too.

Liked by billagreste

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@darlingtondoll

Okay Bill. I have been taking the supplement that you mentioned for over a month. I just got my new labs back and my eGFR improved by going up six points! I am almost out of stage 3 and I am so happy to get that news. I can’t stop smiling. I never cheat on my renal diet, so maybe that helps too.

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Great news on your GFR improvement, Jane! Can you or Bill re-mention the supplement he must have posted at some other time? Also Stage 3 and wondering if this supplement could be ordered or boost my #s too?

Liked by billagreste

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@fiesty76

Great news on your GFR improvement, Jane! Can you or Bill re-mention the supplement he must have posted at some other time? Also Stage 3 and wondering if this supplement could be ordered or boost my #s too?

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We got it on Amazon. It’s called Sunergetic Kidney Cleanse

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@fiesty76

Great news on your GFR improvement, Jane! Can you or Bill re-mention the supplement he must have posted at some other time? Also Stage 3 and wondering if this supplement could be ordered or boost my #s too?

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Just curious, how can you be sure the supplements are actually changing your kidney function and not just tricking the test into producing a false reading? Many supplement can alter test results dramatically. Vitamin C supplements sometimes produce false positives for blood in stool and Biotin can mask troponin levels in heart attack patients. It be great if there were a supplement that truly regenerated damaged kidney tissue. What ingredients do you think are helping?

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@jolinda

Just curious, how can you be sure the supplements are actually changing your kidney function and not just tricking the test into producing a false reading? Many supplement can alter test results dramatically. Vitamin C supplements sometimes produce false positives for blood in stool and Biotin can mask troponin levels in heart attack patients. It be great if there were a supplement that truly regenerated damaged kidney tissue. What ingredients do you think are helping?

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I don’t know how or why it works, but it sure changed our eGFR numbers. I have been taking it for four weeks when I had blood work done by my nephrologist. I watch my diet very carefully, so it may be a combination of both things. But I will continue to take this supplement forever.

Liked by billagreste

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@darlingtondoll

I don’t know how or why it works, but it sure changed our eGFR numbers. I have been taking it for four weeks when I had blood work done by my nephrologist. I watch my diet very carefully, so it may be a combination of both things. But I will continue to take this supplement forever.

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Ingredients

1A2BA9F7-E51D-4A40-B703-EDE7D33EC5DA

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In reply to @darlingtondoll "Ingredients" + (show)
@darlingtondoll

Ingredients

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Front label

83D3A343-1036-4CC7-BEB8-3E0EE7A02E2F

Liked by billagreste

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@jolinda

Just curious, how can you be sure the supplements are actually changing your kidney function and not just tricking the test into producing a false reading? Many supplement can alter test results dramatically. Vitamin C supplements sometimes produce false positives for blood in stool and Biotin can mask troponin levels in heart attack patients. It be great if there were a supplement that truly regenerated damaged kidney tissue. What ingredients do you think are helping?

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I have also been checking my urine with test strips which measure kidney function. I have seen improvements in that too.

Liked by billagreste

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@darlingtondoll

We got it on Amazon. It’s called Sunergetic Kidney Cleanse

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Jane, thanks for the information. I'll check it out. Not really big on supplements but worth a look and happy that you are reporting good results. I know each of us is different but appreciate the name and location.

Liked by billagreste

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