Are there any treatments available or trials for Small Fiber Neuropathy? My symptoms get worse every day. Thank you
Interested in more discussions like this? Go to the Neuropathy Support Group.
@kfrenc04 here is a list of clinical trials that appeared when using the search word "neuropathy" on the Mayo Clinic Clinical Trials site: https://www.mayo.edu/research/clinical-trials/search-results?keyword=neuropathy&studySiteStatusesGrouped=Open/Status%20Unknown
Do any of these align with you?
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This list is really depressing. I have neuropathy in my feet from type 2 diabetes. I would say that would cover MOST of the neuropathy sufferers. Yet, where are the studies for a 70 year old to get relief when the pain flares up during the day.? All these freaking drugs don't work. There must be something!!!!
@julkun, Sorry to hear you have neuropathy from type 2 diabetes. I have been labeled pre-diabetic for most of my adult life without it getting any worse and it's only been in the past 4 years or so that I started being concerned about it. I started looking into diet and lifestyle changes after reading the following information by @LeeAase.
Reversing Type 2 Diabetes with a Low-Carb Diet: https://social-media-university-global.org/2021/02/reversing-type-2-diabetes-with-a-low-carb-diet/
We also have a discussion on the topic here — Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/
Have you tried making any dietary or lifestyle changes to help with your type 2 diabetes which may also help with your neuropathy?
I think you have misunderstood me. I want to reverse the neuropathy pain. I have completely changed my diet and my weight is perfect and my A1C is low 6's. Controlling type 2 diabetes does not control the pain from neuropathy. Not controlling type 2 diabetes can result in very bad things. I am controlled, yet still suffering from the PAIN.
Sorry for the confusion on my part. Sometimes Neuropathy caused by diabetes can be reversed by controlling the diabetes. It’s great news that your diabetes is under control.
@julkun, It sounds like you still haven't found anything that helps with the pain from your diabetic neuropathy. Have you seen these discussions?
– Type 2 Diabetes: I have neuropathy in my feet and legs: https://connect.mayoclinic.org/discussion/neuropathy-in-my-feet-and-legs/
– Neuropathy due to long untreated diabetes: https://connect.mayoclinic.org/discussion/neuropathy-2/
Also, this is an older article from 2015 that you might not have seen — VM202 gene therapy eases symptoms in painful diabetic neuropathy: https://www.diabetes.co.uk/news/2015/mar/vm202-gene-therapy-eases-symptoms-in-painful-diabetic-neuropathy-91359885.html
Thank you kindly.
I never heard that neuropathy could be reversed by controlling diabetes. By controlling diabetes, the neuropathy might not get worse but not reversed. Nerves were already damaged that can not repair.
I think there are probably a lot of things that factor into what I consider some hope or a chance of reversing any neuropathy. In my own case of having idiopathic small fiber PN with only numbness for symptoms and maybe a small amount of tingling, I think I have either stopped or slowed the progression of my neuropathy which the neurologist told me that I was facing.
I was actually thinking of reversing type 2 diabetes which I think could possibly reduce or eliminate the corresponding neuropathy symptoms from the diabetes – but then it's just my opinion. I did remember reading this article awhile back when I was trying to learn more about diabetic neuropathy as it might relate to my pre-diabetic diagnosis.
Symptomatic Reversal of Peripheral Neuropathy in Patients with Diabetes: https://wholehealthathome.com/wp-content/uploads/2017/04/Symptomatic-Reversal-of-Peripheral-Neuropathy-in-Diabetics.pdf
Thanks, but for starters this article was in 2002. Second, in the first paragraph "There is no treatment to reverse the neurologic deficit of this disease manifestation….." I've tried several light therapies. All have failed. At this point I'm just looking to decrease the daily pain, even partially. When the pain flares up during the day, what do I do??? Neuropathy Meds don't work. Pain meds don't work. Until the nerve pain calms down by itself, I am not a happy camper. To me it's all about the PAIN. What to do when the nerve pain flares up.
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