Small Fiber Neuropathy

Posted by kfrenc04 @kfrenc04, Feb 10, 2022

Are there any treatments available or trials for Small Fiber Neuropathy? My symptoms get worse every day. Thank you

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Worse in my legs and feet but also beginning all over.

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@pippy023

Mine as well. All over my body pretty much up to the top of my shoulders and trunk. As well as legs and arms feet and hands.

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By “all over”, do you mean pain in all those places, or numbness - what do you experience? In my case I have tenderness all the time over most of my body. I’ve lived with this tenderness for so long, I instinctively know what activities to avoid. For example, my rib cage is really tender to touch. If you have cats, you know how they like to find you when you’re lying down, and walk on your body. That is so painful! I do a little mental assessment every morning when I’m getting out of bed.
My feet burn most days, on and off - I’ve lived with that so long that I barely notice it.

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Funny thing is I Don't have much pain except my feet occasionally. This is all numbness and tingling and difficulty with fine motor and walking. Not sure if not having pain is good or bad. I don't think it could be good. Once my feet were burning up but I was hell so having a vertigo episode.

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