Type 2 Diabetes: I have neuropathy in my feet and legs

I am suffering so much with this I can barely take it. Tonight is incredibly painful. I am a Type 2 diabetic. I have adverse reactions to many of the meds the MD has had me try. Gabapentin works some but if I try to take it everyday I get horrible back pain. Same with anti depressants. I get cramping if I increase the dose. I try a few Motrin, no help. Tonight is bad. I have a foot massage machine and used that, Lidocaine and Ativan. Finally I had to take 1/2 of a Vicodin, which is my last resort when I am at an 8 in pain. Are there any tips people use when it’s a bad night? Thank you.

Liked by Leonard, lorirenee1

Good evening @sandiwantstofeelbetter I hope you are sleeping well as I write this. Welcome to Connect, a group of caring patients, caregivers, and providers. We cannot diagnose or prescribe. We are happy to share our experiences and to try and help you in a safe and secure environment.

Let me see if I can interpret what you are trying to tell me about your pain and suffering. You have neuropathy which right now is affecting the lower leg area. You are very sensitive to some medications and do not seem to have a medication routine that works consistently. Have you had a medication screening to determine what might work best for you? What type of clinician are you seeing? Neurologist? Have you been given a diagnosis?

How long have you been suffering and floundering as you try to live with high pain levels? Have you been to a pain clinic of any kind?

My neuropathy journey began pretty much the same way….gabapentin and antidepressants. After multiple surgeries, the neuropathy symptoms became more frequent and more intense. I chose to be educated about medical cannabis. And without too many mishaps, I put together a pain management program that works for me. Do you have access to medical cannabis in a reputable, controlled dispensary.?

And finally, would you mind telling me your age and activity level. What hobbies to you have? Do they distract from your pain? Have you experienced the benefits of gentle yoga, mindfulness, and meditation? Our brains can be trained to help us.

As soon as you can respond with additional information, I will be able to connect you with others who have shared your experience and found some answers.

May you be free of suffering and the causes of suffering.
Chris

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@sandiwantstofeelbetter
Hi Sandi. My wife has horrendous nights sometimes as well. She is allergic to most drugs so she turns to Marijuana and kratom for relief and just recently has been experimenting with cbd oil with THC. On normal nights she soaks her feet in hot water (very hot 🔥) and then applies a product called Penetrex to her feet. Otherwise she pretty much just deals with the pain. Other than that she tries to maintain a balanced and healthy lifestyle. Her one downfall is not exercising enough due to fatigue from the constant pain. That is about all I can offer you about how she deals with it. Best, Hank

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@sandiwantstofeelbetter Hi Sandi, I also suffer from extreme pain due to foot neuropathy. One of the things that helps my pain quite a bit is Kratom. Kratom is made from a SE Asian leaf from trees related to the coffee plant. It is not FDA approved and 5 states do not sell it. However, many people here at Connect do use it to reduce their pain. Private message me if you want to know more. My heart goes out to you. I know pain. LoriRenee1

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@artscaping

Good evening @sandiwantstofeelbetter I hope you are sleeping well as I write this. Welcome to Connect, a group of caring patients, caregivers, and providers. We cannot diagnose or prescribe. We are happy to share our experiences and to try and help you in a safe and secure environment.

Let me see if I can interpret what you are trying to tell me about your pain and suffering. You have neuropathy which right now is affecting the lower leg area. You are very sensitive to some medications and do not seem to have a medication routine that works consistently. Have you had a medication screening to determine what might work best for you? What type of clinician are you seeing? Neurologist? Have you been given a diagnosis?

How long have you been suffering and floundering as you try to live with high pain levels? Have you been to a pain clinic of any kind?

My neuropathy journey began pretty much the same way….gabapentin and antidepressants. After multiple surgeries, the neuropathy symptoms became more frequent and more intense. I chose to be educated about medical cannabis. And without too many mishaps, I put together a pain management program that works for me. Do you have access to medical cannabis in a reputable, controlled dispensary.?

And finally, would you mind telling me your age and activity level. What hobbies to you have? Do they distract from your pain? Have you experienced the benefits of gentle yoga, mindfulness, and meditation? Our brains can be trained to help us.

As soon as you can respond with additional information, I will be able to connect you with others who have shared your experience and found some answers.

May you be free of suffering and the causes of suffering.
Chris

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Chris, thanks for your reply to Sandi. I am a 74 year old male suffering from PN in feet and lower legs. On high dosage of gabapentin each day. Would like to learn more about you going from gabapentin to medical cannabis. Thanks, Terry

Liked by ess77

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@lorirenee1

@sandiwantstofeelbetter Hi Sandi, I also suffer from extreme pain due to foot neuropathy. One of the things that helps my pain quite a bit is Kratom. Kratom is made from a SE Asian leaf from trees related to the coffee plant. It is not FDA approved and 5 states do not sell it. However, many people here at Connect do use it to reduce their pain. Private message me if you want to know more. My heart goes out to you. I know pain. LoriRenee1

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:Lori. would like to learn more about your experience in using Kratom. Which type and strength? Thanks, Terry

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@terrydclaar

Chris, thanks for your reply to Sandi. I am a 74 year old male suffering from PN in feet and lower legs. On high dosage of gabapentin each day. Would like to learn more about you going from gabapentin to medical cannabis. Thanks, Terry

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I have a few questions for the group:

1. What is Small Fiber Neuropathy? None of my physicians have ever mentioned this before.
2. I take 300 gabapentin once nightly. Does this drug aggravate PN? Been taking it for the past 5 years or so when I originally thought I had RLS. Occasionally, I have night issues with cramping, but always have the tingling, muscle twitching constantly.
3. I do not have pain of any kind. Am I in the minority of PN people?

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@jrayk

I have a few questions for the group:

1. What is Small Fiber Neuropathy? None of my physicians have ever mentioned this before.
2. I take 300 gabapentin once nightly. Does this drug aggravate PN? Been taking it for the past 5 years or so when I originally thought I had RLS. Occasionally, I have night issues with cramping, but always have the tingling, muscle twitching constantly.
3. I do not have pain of any kind. Am I in the minority of PN people?

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@jrayk Having neuropathy without having pain does put you in the minority but you are not alone. I also have idiopathic small fiber peripheral neuropathy without pain. I just have numbness. Not that I'm complaining since without pain means there are no drugs you can take to help since drugs only mask the pain signals in the brain (my non medical interpretation/opinion). Gabapentin is normally prescribed to treat neuropathy pain.

You may want to take a look at the following discussion:
– Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/

If you want to learn more about neuropathy and how it's diagnosed, here is an easy to understand explanation of small fiber peripheral neuropathy by Matthew B. Jensen. Assistant Professor of Neurology, University of Wisconsin:

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@jrayk

I have a few questions for the group:

1. What is Small Fiber Neuropathy? None of my physicians have ever mentioned this before.
2. I take 300 gabapentin once nightly. Does this drug aggravate PN? Been taking it for the past 5 years or so when I originally thought I had RLS. Occasionally, I have night issues with cramping, but always have the tingling, muscle twitching constantly.
3. I do not have pain of any kind. Am I in the minority of PN people?

Jump to this post

Good afternoon @jrayk …..I kind of want to jump in here and relay my life partner's story of gabapentin which he took for quite some time for RLS. So……that checks out. As his RLS became more troubling and interfering, his medication was changed as well as the timing of the dosages.

He does not have pain just the "jerkies". His first choice for a good night's sleep in addition to his RLS dosage is medical cannabis right as the lights go out. So….perhaps that will help with your research.

May your day be one of peace and ease.
Chris

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Thank you Chris. Medical cannabis, is that smoked, ingested, topical?

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Yes, I am a type 2 diabetic and you would never know it. I take no pills for pain and the few times I had neuropathy, I marched in place and cut my carbs and the problems went away. Call me lucky, if you like, or call me stubborn, because I took a couple of gabapentin and couldn't get out of bed, so I quit that idea in short order. After 14 years of self managing, my diet controls the diabetes and the neuropathy goes away with exercise, however the neurologist told me exercise wouldn't help. I do it anyway. In my case I consider my diabetes an eating issue, and I still recommend diet changes before pills. I consider cannabis a last resort, but my eating plan keeps me from needing much in the way of pills. I take one metformin a day and think I will be able to skip that next summer when I have fresh garden veggies to eat. I love to eat, and I enjoy variety, so being devoted to my diet has been successful for me. I don't think of myself as having a disease so I do not look for pills as they do not cure diabetes. They may offer some relief. I hope my supporters are not tired of hearing me talk about eating fresh veggies and fruit. I also eat a lot of fish. I eat nothing from a box or bag except a few crackers. I wish more doctors would talk to their patients about diet or send them to a nutritionist. That is the helpful way to get better and enjoy eating well. Dorisena

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Would you like to share what you eat and how active you can be? I don't know much about the pills but I can give helpful hints about eating, especially for lowering the blood sugar numbers . When I have back pain, I think it is from fused vertebrae and a cage in my back, not diabetes, but I still study about everything, Sometimes it is difficult to tell what is causing pain. Not being constipated makes a huge difference in my pain levels. Dorisena

Liked by Hank

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@dorisena

Would you like to share what you eat and how active you can be? I don't know much about the pills but I can give helpful hints about eating, especially for lowering the blood sugar numbers . When I have back pain, I think it is from fused vertebrae and a cage in my back, not diabetes, but I still study about everything, Sometimes it is difficult to tell what is causing pain. Not being constipated makes a huge difference in my pain levels. Dorisena

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@dorisena

Hi Dorisena. I am not diabetic. And I do still eat a number of things that come from packages, like Amy's dinners. But the one thing I did that I have really noticed a major benefit from was reducing my sugar intake. In 2014 my wife cut her sugar intake WAY down as she read sugar feeds cancer (she had been dealing with cancer for about 2-3 years by then). In sympathy to her I decided to cut out a lot of things from my diet to lower my sugar intake as well. For example, I had been having a small bowl of ice cream and 2 store bought cookies every night. I quit that cold turkey and stopped all after dinner snacking as well. I also stopped any random sugar eating that I was doing during the day, i.e. no candy, cookies, pastries, etc. in the diet at all. For about 2 weeks I dealt with bodily cravings for sweets. But I did not cave. After the two weeks the cravings ended and I never looked back. I felt better and was happy to be free of the cravings. Since then I have stopped wanting sweets when I see them in the store. I have not had more than 2 or 3 bowls of ice cream in the past 6 years, mostly just to be polite when I was a guest. I do feel better, healthier. I have always been fairly healthy but this gave me a feeling of well being that was at a different level than before.

I think sugar (or honey or corn syrup, etc.) is not good for the human body and people would be well advised to eliminate it from their diets as much as possible if they want to be healthier. I am not fanatical about it, and although I do read ingredient labels, I don't nix things out of hand if they contain some sugar, just try to keep the sugar content on the low side. I know cutting out most sweets is not an idea welcomed by everyone but I would nudge everyone to at least give it a try.

Best, Hank

REPLY
@jesfactsmon

@dorisena

Hi Dorisena. I am not diabetic. And I do still eat a number of things that come from packages, like Amy's dinners. But the one thing I did that I have really noticed a major benefit from was reducing my sugar intake. In 2014 my wife cut her sugar intake WAY down as she read sugar feeds cancer (she had been dealing with cancer for about 2-3 years by then). In sympathy to her I decided to cut out a lot of things from my diet to lower my sugar intake as well. For example, I had been having a small bowl of ice cream and 2 store bought cookies every night. I quit that cold turkey and stopped all after dinner snacking as well. I also stopped any random sugar eating that I was doing during the day, i.e. no candy, cookies, pastries, etc. in the diet at all. For about 2 weeks I dealt with bodily cravings for sweets. But I did not cave. After the two weeks the cravings ended and I never looked back. I felt better and was happy to be free of the cravings. Since then I have stopped wanting sweets when I see them in the store. I have not had more than 2 or 3 bowls of ice cream in the past 6 years, mostly just to be polite when I was a guest. I do feel better, healthier. I have always been fairly healthy but this gave me a feeling of well being that was at a different level than before.

I think sugar (or honey or corn syrup, etc.) is not good for the human body and people would be well advised to eliminate it from their diets as much as possible if they want to be healthier. I am not fanatical about it, and although I do read ingredient labels, I don't nix things out of hand if they contain some sugar, just try to keep the sugar content on the low side. I know cutting out most sweets is not an idea welcomed by everyone but I would nudge everyone to at least give it a try.

Best, Hank

Jump to this post

Congratulations, Hank. You have listened to your body and learned well how to feed the body and have better health. Yes, I learned that sugar is bad for cancer years ago when I had breast cancer, and I was not surprised when the doctor reported that my thyroid had cancerous nodules on it and had to be removed. That is why it has been easy for me to avoid sugar and enjoy what I eat. I am a crusader for giving up sugar when I get in conversations with others. I wish I had known more when I was younger. Dorisena

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Hello, folks. I have diabetes 2, peripheral neuropathy in both hands and feet/lower legs. I take Janumex for diabetes – metforman combo that I can tolerate. Metformin and I do not like each other at all! But, this works. I am cautious what I eat – no preservatives if possible, no or low salt/sodium, low sugar although if I want something sweet, I eat it. I learned a long time ago I will not deprive myself of something I truly want to eat…..no harsh diets, or anything extreme re my health. My father, who lived an extremely active and event ful life until he was 93 – played tennis, although he switched to doubles in his 80's, until he was 87 years old. Then, swam daily, exercising in the pool. Like I do now in the 'therapy' pool, 94degree temp. Walking, marching, etc. 1 hour 2X daily. I haven't done any pool work since early November when I began having serious orthostatic BP issues. Now diagnosed w/autonomic neuropathy–not a good diagnosis. We'll see what that brings….BUT, as I've mentioned before, I took gabapantin and Lyrica both for years. For fibromyalgia, RLS, neuropathy, burning, itching, pain, etc. They helped, but I had some side effects I wanted to get rid of. So, I'm off both and use THC:CBD, 1:1, tincture an hour before bed, a small spray of THC as needed a couple times daily for pain, a dropper of CBD mid-day for anxiety/pain. This combo works for me better than anything I've ever tried, with no side effects at all other than relief from all the issues involved….unless I overdo the tincture. I don't! I'm taking Requip for RLS. It's a dopamine antagonist. It's wonderful!!!!!!!!!!!!! Apparently, my brain needed it as I can walk better, lift legs and feet better, balance is improved, etc. So, that's what I'm doing now and it's all working together for my benefit. Blessings on your journey. Elizabeth

Liked by Hank

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Overlooked what I wanted to tell you about my father….so dadblasted healthy! I grew up hearing until his death…."Everything in moderation, honey. Everything in moderation!" Well, he's right. Not my nature, but I've been and am still working on it. A good life goal. Blessings. Elizabeth

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