Adults On The Autism Spectrum

Posted by Mamacita, Volunteer Mentor @mamacita, Apr 29, 2018

Maybe you were really shy as a child. Perhaps you took home a huge stack of books from the school library, read them, and returned them the next day. Or did your best friend find you crying in your closet, unable to answer the question “Why?” At any rate, your life could be traced to the Self-Help section of the local bookstore. Unfortunately, most of the books were not much help. ADHD seemed to fit, at times. Your shrink said you might be Bi-Polar, although she wasn’t really certain. All you knew was that you rarely fit in, anywhere. One day at work, it hit you square in the face: I don’t speak these people’s language! Really, it was like you were all playing this game, and everyone knew the rules but you. You couldn’t tell a joke, and you never “got” any joke your co-worker tried to tell you. People started getting annoyed with you, because you had a memory like a steel trap. They didn’t appreciate it when you called them on the carpet. Who knew? This was my life, and worse. I finally aced several tests that pointed me to the answer to my questions. The Autism Spectrum. Guess what? Little kids with Autism grow up to be Adults with Autism. Diagnosed late in life? This is the place for you!

@lioness

@hopeful33250 I discovered these by trial and error . Also wheat doesn't settle with me to well so I stay away from this as much as I can . I usually go for Rye or Pumpernickle bread . I found also with my Tinnitus and dairy starts the ears to ring louder so I use Almond milk and almond yogurt that has extra calcium in them

Jump to this post

That is great that you are so tuned in to your body, @lioness. Are Rye and Pumpernickle bread gluten-free or do they just have less gluten?

REPLY
@hopeful33250

That is great that you are so tuned in to your body, @lioness. Are Rye and Pumpernickle bread gluten-free or do they just have less gluten?

Jump to this post

@hopeful33250 Yes the Rye has less gluten in it and you can make a gluten free pumpernickel with different flours and no wheat flour at all in it .

REPLY

@teresa, my allergies got worse as I got older. Foods that did not ever bother me before reared their ugly heads and made life miserable. I did the blood testing for food allergies and environmental allergies as well. Trial and error works too.

Mamacita Jane

REPLY
@mamacita

Hello, @Chris Trout, @gingerw ….It seems like every time I turn around it's Arthritis pain in all my joints, pain from discs that have seen better days, or allergy issues. I'm on Lyrica, Aspirin, Turmeric, Flaxseed Oil Capsules, Magnesium tablets, Garlic and Parsley capsules, Xyzal, Viibrid, and soon to be Deplin. It will take a week to get here.

Viibrid is for Depression. Deplin is to help my body and brain function without the enzyme necessary to process Dopamine and Seratonin. Genetic testing by a reputable company was done to see which medicines would work the best for me. And which ones would not work very well at all . The test results were an answer to prayer.

All these years I was enduring side effects from medicines that did little to alleve my many symptoms of "high functioning" depression. Depression is not just being sad, lonely, or in pain. It is that, but there is so much more to it. In my case, I have always been lacking that enzyme that is important to the body's ability to manufacture the "happiness" hormones. Cymbalta worked, to an extent, for years. But I always had what some refer to as "breakthrough" depression.

Fortunately, I had a determined investigator in my corner who listened closely to me. I even shared with her that I was on the Spectrum. But, that I didn't feel like that was the whole story. I had been prescribed Buspar previously, for anxiety. That was working really well, with no apparent side effects. With off the charts hearing, superior observational skills, and extreme sensitivity, not treating the anxiety was simply not an option.

Cymbalta was raising my blood pressure, so I was put on Adelaide . I stop breathing and get very close to not breathing, 58 times. I will have another sleep study done to see if I have improved enough to where I can use the mouth piece instead of a C Pap machine. My old one finally gave up the ghost .

I'm not perfect about eating exactly what I should. I had some things recently that undoubtedly put me in this situation with my throat and coughing. Allergic to dairy, supposed to be on a gluten free diet, allergic to fish, waternelon, tomatoes, cantaloupe. The list goes on and on.

As one of my medical team so aptly put it, I am a "train wreck."

But I'm my tribe's train wreck. @colleenyoung, @sirgalahad, and all of you smart, funny, sweet, lovely people, you put up with me, along with all my others "irl." Perhaps we can all learn a lesson here. When the Allergist tells you not to eat certain food items because you are severely allergic to them, you had better pay attention.

Because if you eat enough of the foods that bother you , you might end up in the emergency room.

Thank you for allowing me to vent and explain my "train wreck" of a situation.

I will check in with you guys in the various groups where we meet. I promise I won't be so long winded next time. And no more forbidden foods that trigger an anaphylactic response. It's a deal.

Love and light,

Mamacita Jane

Jump to this post

wow don't the quacks read the meds contraindications crap crap crap

REPLY

Well, it's that time of the year again. Time to bring out the medium blue pumpkins. If anyone comes to my door dressed up for Halloween, they do not have to say "Trick or Treat. "

They do not have to say a word. Some of my brothers and sisters are nonverbal and do not communicate the way I attempt to. They might be on the Spectrum in some way. It is not my place to ask.. Or care.

What is important is that I make the effort to participate in a time honored event that allows little ones to have a bit of fun as they dress up in their favorite costumes. These events are memories that they will cherish forever. I want to encourage them to say whatever they want, if they are able to verbalize at all.

I am aware of these children who literally cannot speak for themselves. Extra encouragement on my part will not help them. Bur my smile, my offer of Halloween goodies, and my willingness to "ooh" and "ahh" over their costumes will help in ways only seen by the angels.

I love holidays. All of the Holidays. Let's think about ways we can help each other in large ways and small ways. To get through these times that arrive on time like clockwork, whether we are ready or not. If our health issues prevent us from engaging in things we used to do, perhaps we can enjoy a new tradition.

Love and light,

Mamacita Jane

REPLY

should be celebrating all souls day and all the families and friends that have passed on before us.

REPLY

me being sillies as trick or treat

REPLY

My sweet significant other was in STD division of the State Health Department. For well over 35 years, almost 40.

He gave out condoms, shot people up with penicillin, tracked down patients sex partners and got them treated for deadly diseasea, started the first Aids Support Group in our city, and was a shoulder to cry on when he had to give out a death sentence. "You have Aids." Back then it was not curable. Now, it is no longer a death sentence.

And I will light a candle in my window on All Souls Day. And remember all those who left us way too soon

I will celebrate life as it is now in this moment and be grateful.

Love you all bunches,

Mamacita Jane

REPLY
@sirgalahad

me being sillies as trick or treat

Jump to this post

@sirgalahad, you know I got your back. Life really is a highway. Sometimes we get stuck in traffic. Sometimes we take a wrong turn.

It's ok. Grace covers it. I got a whole lotta splainin to do aboyr my own sassy selfm. Stick around and you will read all about it
Mamacita Jane

REPLY

Oy,vey, @gingerw, this Thursday is not what I had planned at all.

I knew I was taking my oldest daughter to two doctor appointments. I was hoping to just drop her off and get back to homeschooling. Then pick her up and maybe we would all go out to eat at a nice family restaurant. Many Autists are notoriously stuck on scheduling and become a tad bit upset if their schedule is interrupted.

Meet the Autistic who does indeed get a tad bit upset when my schedule is all out of whack.

Yep. But thanks be to God and good medicine, I am handling this in stride.
It's not every day you are told that your Diabetic daughter must go to the ER and be admitted in order to receive IV antibiotics for cellulitis. I've seen worse infections as a Social Worker, out in the field. Much worse. But this one is not pretty.

I feel I am behind in my schoolwork, I know I am behind in my laundry. My husband is sick with what appears to be bronchitis. But I have left him in very capable 14 year old hands. God is good. I'm the only one available to do what I am doing. So I'm doing it.

Many Autistic friends are introverts, preferring the comforts of home. I am also one of those. I am hoping against hope that I am able to get out of here and return to my cozy little Hobbit hole. When she is finally in a room, she will be in good hands.

Here in Alabama, and across the nation, we are mourning the loss of a precious little three year old girl who was taken from a neighborhood birthday party. Ten days later she was found in a dumpster in a landfill. Our hearts are broken. I just want to hold onto my babies and never let them go.

Let's all be careful with the little people in our lives, especially as we approach the beginning of another season of holidays. Children are so quick, they can disappear in an instant.

@teresa, and @lisalucier, how do you handle the holidays in your family? Are you all gung ho, starting decorating on the 4th of July? Do you keep decorations up all year round? Or do you do something entirely different? I would like to hear from you all here in this little community. @sirgalahad, which camp do you think I am in? I bet you can guess the first tine.

Let's talk. To start off….Who likes candy corn?…Ok….that went well. Now, who is like me, and goes all out for the Hersheys mini candy bar bags? Yeah…thats what I thought! You guys are the best!

Ttyl…..love and light,
Mamacita Jane

REPLY
@mamacita

Oy,vey, @gingerw, this Thursday is not what I had planned at all.

I knew I was taking my oldest daughter to two doctor appointments. I was hoping to just drop her off and get back to homeschooling. Then pick her up and maybe we would all go out to eat at a nice family restaurant. Many Autists are notoriously stuck on scheduling and become a tad bit upset if their schedule is interrupted.

Meet the Autistic who does indeed get a tad bit upset when my schedule is all out of whack.

Yep. But thanks be to God and good medicine, I am handling this in stride.
It's not every day you are told that your Diabetic daughter must go to the ER and be admitted in order to receive IV antibiotics for cellulitis. I've seen worse infections as a Social Worker, out in the field. Much worse. But this one is not pretty.

I feel I am behind in my schoolwork, I know I am behind in my laundry. My husband is sick with what appears to be bronchitis. But I have left him in very capable 14 year old hands. God is good. I'm the only one available to do what I am doing. So I'm doing it.

Many Autistic friends are introverts, preferring the comforts of home. I am also one of those. I am hoping against hope that I am able to get out of here and return to my cozy little Hobbit hole. When she is finally in a room, she will be in good hands.

Here in Alabama, and across the nation, we are mourning the loss of a precious little three year old girl who was taken from a neighborhood birthday party. Ten days later she was found in a dumpster in a landfill. Our hearts are broken. I just want to hold onto my babies and never let them go.

Let's all be careful with the little people in our lives, especially as we approach the beginning of another season of holidays. Children are so quick, they can disappear in an instant.

@teresa, and @lisalucier, how do you handle the holidays in your family? Are you all gung ho, starting decorating on the 4th of July? Do you keep decorations up all year round? Or do you do something entirely different? I would like to hear from you all here in this little community. @sirgalahad, which camp do you think I am in? I bet you can guess the first tine.

Let's talk. To start off….Who likes candy corn?…Ok….that went well. Now, who is like me, and goes all out for the Hersheys mini candy bar bags? Yeah…thats what I thought! You guys are the best!

Ttyl…..love and light,
Mamacita Jane

Jump to this post

Hello @mamacita
I just got back from the Mentor Meet Up last night. We had a great time. I got to spend some quality time with @gingerw and I enjoyed every minute of it. We wished you had been with us! Your "sweet significant other" sounds like a kind, caring person. He had a wonderful career in helping people.

Candy corn is not a favorite of mine, but I can really get into peanut butter cups!

REPLY
@mamacita

Oy,vey, @gingerw, this Thursday is not what I had planned at all.

I knew I was taking my oldest daughter to two doctor appointments. I was hoping to just drop her off and get back to homeschooling. Then pick her up and maybe we would all go out to eat at a nice family restaurant. Many Autists are notoriously stuck on scheduling and become a tad bit upset if their schedule is interrupted.

Meet the Autistic who does indeed get a tad bit upset when my schedule is all out of whack.

Yep. But thanks be to God and good medicine, I am handling this in stride.
It's not every day you are told that your Diabetic daughter must go to the ER and be admitted in order to receive IV antibiotics for cellulitis. I've seen worse infections as a Social Worker, out in the field. Much worse. But this one is not pretty.

I feel I am behind in my schoolwork, I know I am behind in my laundry. My husband is sick with what appears to be bronchitis. But I have left him in very capable 14 year old hands. God is good. I'm the only one available to do what I am doing. So I'm doing it.

Many Autistic friends are introverts, preferring the comforts of home. I am also one of those. I am hoping against hope that I am able to get out of here and return to my cozy little Hobbit hole. When she is finally in a room, she will be in good hands.

Here in Alabama, and across the nation, we are mourning the loss of a precious little three year old girl who was taken from a neighborhood birthday party. Ten days later she was found in a dumpster in a landfill. Our hearts are broken. I just want to hold onto my babies and never let them go.

Let's all be careful with the little people in our lives, especially as we approach the beginning of another season of holidays. Children are so quick, they can disappear in an instant.

@teresa, and @lisalucier, how do you handle the holidays in your family? Are you all gung ho, starting decorating on the 4th of July? Do you keep decorations up all year round? Or do you do something entirely different? I would like to hear from you all here in this little community. @sirgalahad, which camp do you think I am in? I bet you can guess the first tine.

Let's talk. To start off….Who likes candy corn?…Ok….that went well. Now, who is like me, and goes all out for the Hersheys mini candy bar bags? Yeah…thats what I thought! You guys are the best!

Ttyl…..love and light,
Mamacita Jane

Jump to this post

@mamacita, How is your daughter doing? Is she still in the hospital?

REPLY
@hopeful33250

@mamacita, How is your daughter doing? Is she still in the hospital?

Jump to this post

We are still in the ER. They are definitely admitting her. They have to, in order to administer the IV antibiotics that she must have to knock out this horrid infection. Her leg is in really bad shape.

Thank you for your concern! I appreciate your kindness and caring.

I will post when I finally get home.. This hospital is great but the sensory environment is a nightmare . I cannot wait to get home!

Love and light,
Mamacita Jane

REPLY

Candy corn and Reece’s cups until the 30th, in my world the 31st is the first day of Christmas let the music begin!

REPLY
@mamacita

We are still in the ER. They are definitely admitting her. They have to, in order to administer the IV antibiotics that she must have to knock out this horrid infection. Her leg is in really bad shape.

Thank you for your concern! I appreciate your kindness and caring.

I will post when I finally get home.. This hospital is great but the sensory environment is a nightmare . I cannot wait to get home!

Love and light,
Mamacita Jane

Jump to this post

Prayers

REPLY
Please login or register to post a reply.