1. < Autism (ASD)

Adults On The Autism Spectrum

Posted by Mamacita, Alumna Mentor @mamacita, Apr 29, 2018

Maybe you were really shy as a child. Perhaps you took home a huge stack of books from the school library, read them, and returned them the next day. Or did your best friend find you crying in your closet, unable to answer the question "Why?" At any rate, your life could be traced to the Self-Help section of the local bookstore. Unfortunately, most of the books were not much help. ADHD seemed to fit, at times. Your shrink said you might be Bi-Polar, although she wasn't really certain. All you knew was that you rarely fit in, anywhere. One day at work, it hit you square in the face: I don't speak these people's language! Really, it was like you were all playing this game, and everyone knew the rules but you. You couldn't tell a joke, and you never "got" any joke your co-worker tried to tell you. People started getting annoyed with you, because you had a memory like a steel trap. They didn't appreciate it when you called them on the carpet. Who knew? This was my life, and worse. I finally aced several tests that pointed me to the answer to my questions. The Autism Spectrum. Guess what? Little kids with Autism grow up to be Adults with Autism. Diagnosed late in life? This is the place for you!

Interested in more discussions like this? Go to the Autism (ASD) Support Group.

Mentor
Ginger, Volunteer Mentor | @gingerw | Apr 1, 2019
In reply to @sirgalahad "i have deformed middle ear mastoids very small does not provide sufficient air in front of..." + (show)
@sirgalahad

i have deformed middle ear mastoids very small does not provide sufficient air in front of and behind the ear drum constant sinus infections and eustachian tubes being deformed and not giving enough air to keep ear drums up .they have severely retracted the ear drums and have stuck to the inside wall of the middle ear and need to be released .i have had 17 operations on mt left ear alone .removal of tumour on auditory nerve realignment of tympanic bones drilled out mastoid and ear canal. I get seen by the ear nose and throat clinic at sydney university rpa hospital and teaching hospital for ENT SURGEONS TO BE . TO TRY AND SAVE MY HEARING or whats left of it

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@sirgalahad Are you able to talk with anyone who has had the surgery before to see how it has changed their life for the better? For me it just sounds so scary! But truthfully the idea of losing a restrictive amount of any of my senses is terrifying. To not be able to experience this world as fully as possible is a hard thing to accept. I wish you well and I hope that this will resolve issues for you.
Ginger

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sirgalahad | @sirgalahad | Apr 1, 2019
In reply to @lioness "@sirgalahad Thank you for this explanation and I'm so sorry for what your going through I..." + (show)
@lioness

@sirgalahad Thank you for this explanation and I'm so sorry for what your going through I sincerely hope this operation helps you to hear fully again .Right now the EENT told me I have nerve damage in my Right ear I went to him for dizziness and balance problems but never thought I had nerve damage .I really wish you well.God bless you

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that means you have an issue with the auditory nerve or with the cilia hair vesicles within the semi circular canal which magnify the sound and send it onto the auditory nerve and then onto the hearing center in our brains .probably advise to consider hearing aids and lots of hugs and hassles with moving your head slowly and slower getting up and no sudden turns or changes in direction .bear hugs

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lioness | @lioness | Apr 1, 2019

@sirgalahad Thank you yes when I move head to right the dizziness starts I go back to him on 15th if it doesn't clear up I don't think it will if nerve is damaged but taking precautions

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sirgalahad | @sirgalahad | Apr 1, 2019

huggies dear friend it could therefore be the semicircular canal or vestibular condition and or menageries

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1 reply
sirgalahad | @sirgalahad | Apr 1, 2019
In reply to @lioness "@sirgalahad Thank you yes when I move head to right the dizziness starts I go back..." + (show)
@lioness

@sirgalahad Thank you yes when I move head to right the dizziness starts I go back to him on 15th if it doesn't clear up I don't think it will if nerve is damaged but taking precautions

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lioness I am also a biomedical scientist by training

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lioness | @lioness | Apr 1, 2019
In reply to @sirgalahad "huggies dear friend it could therefore be the semicircular canal or vestibular condition and or menageries" + (show)
@sirgalahad

huggies dear friend it could therefore be the semicircular canal or vestibular condition and or menageries

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@sirgalahad This is what they think as I did. Vestibular testing 2hr,s

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1 reply
sirgalahad | @sirgalahad | Apr 1, 2019
In reply to @lioness "@sirgalahad This is what they think as I did. Vestibular testing 2hr,s" + (show)
@lioness

@sirgalahad This is what they think as I did. Vestibular testing 2hr,s

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all the best you have to see a neurophysiologist and you get put on seat and twisted and spun around and agyro devices spins you around and upside down to see how you respond and react and recover

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3 replies
lioness | @lioness | Apr 1, 2019
In reply to @sirgalahad "all the best you have to see a neurophysiologist and you get put on seat and..." + (show)
@sirgalahad

all the best you have to see a neurophysiologist and you get put on seat and twisted and spun around and agyro devices spins you around and upside down to see how you respond and react and recover

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@sirgalahad Oh that sounds very dizzing don't think I'd like that

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1 reply
sirgalahad | @sirgalahad | Apr 1, 2019
In reply to @lioness "@sirgalahad Oh that sounds very dizzing don't think I'd like that" + (show)
@lioness

@sirgalahad Oh that sounds very dizzing don't think I'd like that

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unfortunately I agree having been thru it but it is the only way to assesses the vestibular and semicircular canal and balance . its a necessary evil and the only way to get an accurate diagnosis

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Mentor
Ginger, Volunteer Mentor | @gingerw | Apr 1, 2019
In reply to @sirgalahad "all the best you have to see a neurophysiologist and you get put on seat and..." + (show)
@sirgalahad

all the best you have to see a neurophysiologist and you get put on seat and twisted and spun around and agyro devices spins you around and upside down to see how you respond and react and recover

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@sirgalahad I had an electronystagrogram [sp?] done back in 1980, at University of Calif Davis Medical Hospital. They induced dizziness and unbalance. It made me so sick! Yes, it was determined that I have an inner ear issue, and ever since then cannot bear the concept of being off kilter.
Ginger

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