Adults On The Autism Spectrum

Posted by Mamacita, Volunteer Mentor @mamacita, Apr 29, 2018

Maybe you were really shy as a child. Perhaps you took home a huge stack of books from the school library, read them, and returned them the next day. Or did your best friend find you crying in your closet, unable to answer the question “Why?” At any rate, your life could be traced to the Self-Help section of the local bookstore. Unfortunately, most of the books were not much help. ADHD seemed to fit, at times. Your shrink said you might be Bi-Polar, although she wasn’t really certain. All you knew was that you rarely fit in, anywhere. One day at work, it hit you square in the face: I don’t speak these people’s language! Really, it was like you were all playing this game, and everyone knew the rules but you. You couldn’t tell a joke, and you never “got” any joke your co-worker tried to tell you. People started getting annoyed with you, because you had a memory like a steel trap. They didn’t appreciate it when you called them on the carpet. Who knew? This was my life, and worse. I finally aced several tests that pointed me to the answer to my questions. The Autism Spectrum. Guess what? Little kids with Autism grow up to be Adults with Autism. Diagnosed late in life? This is the place for you!

@gingerw

@mamacita We moved me up to this quaint little rural town last week, and now I have internet! We have been met with well-intentioned people, who give me a measure of comfort.
The idea this young boy has, to show acts of kindness, is sadly lacking as a matter of course everyday. Yesterday I went out to our ambulance station, and signed up for both ambulance service and Mercy flight. Being rural, they will take you to closest hospital, which costs almost $3K by ambulance, up to $20K by flight. Unless you have their subscription, which is $84/year including the Mercy flight. As I spoke to the head paramedic, I asked him about donations. He said they are happy to receive them as an offset to the costs. So, that will be a pet project of mine. Wondering if raffling off a quilt will raise some monies for them…..
Ginger

Jump to this post

Oh, @gingerw , that is a wonderful idea!!! I pray that these random acts of kindness will spread like wildfire!

I believe they will!

Love and light to you!

Mamacita Jane

REPLY

Hi everyone. Today is Wedneaday, August 7, 2019. Here in the Southern United States, at least…..

We have members and guests here from all over the world! I hope that wherever you are on the clock, that you smiled, you laughed, and if you cried, you called on a cyber friend or a fleshandblood friend to pour our your troubles to.

There are many private groups on social media for us. Oftentimes cyber friends become as dear to us as fleshandblood friends. That has happened here on Connect. Many of you have supported us, encouraged us, and just had our back. That is a really good feeling.

Neurodiverse and Allies alike are invited to come here and chat. Share experiences, strength, and hope.

Within the next few weeks we will launch our book club, a welcome addition to the Spectrum Cafe.

We welcome you to the group. Pull up a chair, and stay awhile. We would love to get to know you.

We are better together.

Goodnight, me lovelies!

Mamacita Jane

REPLY

As auties, we see things in very linear, black and white fashion. Today is a prime example. Over the last several months I made contact with someone in the closest big town that shares a Zentangle passion. She made plans and arrangements to come today so that we could do some artwork together. Her comment was she would be here by noon. It is 4 hours later, with no communication with her, and no idea if she is okay. I have time issues, that is true. But I find it very disrespectful to not have communicated with me. I gave her my cell number and she has my email. I am working very hard at not taking this personally, but at this moment it's hard not to. There were other things set aside to meet with her today. It helps to have vented to you all and my sincere apologies for whining. As I would say to a friend, "would you like some cheese with that whine?"
Ginger

REPLY
@gingerw

As auties, we see things in very linear, black and white fashion. Today is a prime example. Over the last several months I made contact with someone in the closest big town that shares a Zentangle passion. She made plans and arrangements to come today so that we could do some artwork together. Her comment was she would be here by noon. It is 4 hours later, with no communication with her, and no idea if she is okay. I have time issues, that is true. But I find it very disrespectful to not have communicated with me. I gave her my cell number and she has my email. I am working very hard at not taking this personally, but at this moment it's hard not to. There were other things set aside to meet with her today. It helps to have vented to you all and my sincere apologies for whining. As I would say to a friend, "would you like some cheese with that whine?"
Ginger

Jump to this post

@gingerw I think most of us would feel as you do. To not show up after agreeing to is certainly impolite, to say the least. I hope the rest of your day goes better! I'll take cheddar with my whine!

REPLY

@gingerw, Oh my goodness….there is someone else out there who has the same issues that I have. Either I don't have a clue how to negotiate the site procedures and processes because I don't use them enough or I use them so often that they are automatic for me but I can't explain them to anyone else. Talk about between a rock and a hard place.

Thanks for giving us updates on your move. Have a lovely evening looking at the mountain. I do miss the mountain I lived on for 20 years. It was my rock, the way I related to the rest of the world. Now, I don't know whether I am going North or South, East or West. Even when I try to orient myself to the Mississippi River……..it does run North to South……I get all turned around. Maybe it will take another 20 years.

REPLY
@hopeful33250

@gingerw I think most of us would feel as you do. To not show up after agreeing to is certainly impolite, to say the least. I hope the rest of your day goes better! I'll take cheddar with my whine!

Jump to this post

we make plans to do stuff and arrange stuff and able bods think its ok to either blow us off or rock up when its appropriate for them and not for us and expect us to accept it

REPLY
@sirgalahad

we make plans to do stuff and arrange stuff and able bods think its ok to either blow us off or rock up when its appropriate for them and not for us and expect us to accept it

Jump to this post

@sirgalahad In 3 different emails she spoke about today. Her response to the email sent today was " there was a communication snafu. I meant Saturday." No can do that day.
Ginger

REPLY
@gingerw

@sirgalahad In 3 different emails she spoke about today. Her response to the email sent today was " there was a communication snafu. I meant Saturday." No can do that day.
Ginger

Jump to this post

hmmmmm

REPLY
@gingerw

@sirgalahad In 3 different emails she spoke about today. Her response to the email sent today was " there was a communication snafu. I meant Saturday." No can do that day.
Ginger

Jump to this post

@gingerw So sorry Ginger that is certainly rude to say the least . Sounds like something came up with her but she should of emailed or called you .

REPLY

Hey, @gingerw and @sirgalahad and all my bright lights…..keep shining!!!This past week was wonderful, awesome, challenging, gut wrenching, yet beautiful. All I can say right now is that I am in a really painful Fibroflare.

We went to church, were blessed by family and friends who love us, warts and all. So many new beginnings.

I can't wait to tell you about some of the things that happened.

Let me get through this pain first.
Love you all and so very proud of you all for stepping up, speaking out, and making a change in your own part of the world.

If you want to friend me on social media, you know how to find me. I should be the only one who mentions this particular site on her profile.

I don't do drama. But I do advocate.

Love and light.

Mamacita Jane

REPLY
@mamacita

Hey, @gingerw and @sirgalahad and all my bright lights…..keep shining!!!This past week was wonderful, awesome, challenging, gut wrenching, yet beautiful. All I can say right now is that I am in a really painful Fibroflare.

We went to church, were blessed by family and friends who love us, warts and all. So many new beginnings.

I can't wait to tell you about some of the things that happened.

Let me get through this pain first.
Love you all and so very proud of you all for stepping up, speaking out, and making a change in your own part of the world.

If you want to friend me on social media, you know how to find me. I should be the only one who mentions this particular site on her profile.

I don't do drama. But I do advocate.

Love and light.

Mamacita Jane

Jump to this post

@mamacita Love and light back to you, and hoping you recover soon from a painful flare.
Ginger

REPLY
@mamacita

Hey, @gingerw and @sirgalahad and all my bright lights…..keep shining!!!This past week was wonderful, awesome, challenging, gut wrenching, yet beautiful. All I can say right now is that I am in a really painful Fibroflare.

We went to church, were blessed by family and friends who love us, warts and all. So many new beginnings.

I can't wait to tell you about some of the things that happened.

Let me get through this pain first.
Love you all and so very proud of you all for stepping up, speaking out, and making a change in your own part of the world.

If you want to friend me on social media, you know how to find me. I should be the only one who mentions this particular site on her profile.

I don't do drama. But I do advocate.

Love and light.

Mamacita Jane

Jump to this post

Wishing you rest and calm for your needed recovery from this fibro-flare, @mamacita! We all love you and want you to be well!

REPLY

Fibro flares can be vicious. I have found diet has a lot to do with it for me. There are some that aggravate my symptoms. We are all wired differently.

REPLY

there is recent medical scientific research in regards to fibromyalgia and ms and pther infalmatory diseases their is a contributing factor they found at the walterand eliza medical institute that the inflamtaory response is linked to the amounts of poly unsaturates we eat in our western diet inparticular omega 3 and 6 .which excites the inflammatory responses within our bodies and consequently falre up s and pain and acting on the nerves and nerve impulses .something to explore in USA as well

REPLY
Please login or register to post a reply.