Mayo Clinic Connect
I am not sure where to put this but this seems like a place to start. For dizziness my doctor wants me to try Scopoline. Has anyone used this? I am always anxious about new medications as I tend to have bad reactions to most medications. Thank you.
Liked by Leonard
Hello @ryman, I am not a medical professional, but believe you put this conversation in the right place. From what I was able to research, https://www.mayoclinic.org/drugs-supplements/scopolamine-transdermal-route/description/drg-20072848, scopolamine can be used to treat nausea and vomiting from motion sickness. Being anxious about new medications is completely understandable. If you don't mind sharing, is your dizziness part of another diagnosis?
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Thanks for your reply. I have had dizziness for a long time. First they thought it was a crushed disc in my neck. Then fluid on the brain. I went to a neurosurgeon who did test and said it wasn’t that but I had Lyme disease and had had it for at least a year. Then I was tested and treated for BPPV. Sent for a sleep study. My heart rate fell to 20 so I now have a pacemaker. It had to be redone because it irritated the vagus nerve. So I have problems from that. Meantime, I am still dizzy. Hence the patch. What bothers me most is I can no longer drive.
Not driving has driven my crazier than I already am. My seizures stopped me from driving. Bought a new car in 2010 and a month later I had a seizure so couldn’t drive for a year. Just as I Was authorized to drive and drove for two days another seizure and another year forbidden to drive. Been ok after that. So I can relate my friend.
Hope you get ok lickety-split and drive again soon, but I hope you drive better than my friends and the police say I drive. I obviously need need a new set of friends and the hiway patrol officers have it out for me. Life can be tough behind the wheel!!!
I understand your frustration- about not driving. I like the saying- the difference between sadness and depression is HOPE. I hope you find a way to drive. When I came out of my five week coma- all I could think about was- did I miss my license plate renewal date. Even though I couldn’t possibly drive, or even take a ride for months, I always enjoyed driving my Mustang convertible top-down. Ironically, the night before my second neck surgery – I was given HOPE , and was told to imagine the wind breeze blowing through my hair as I drove my trusty 35 year Mustang anniversary car. It worked. As I vividly imagined driving through the country, it lifted my hopes enough to endure another surgery. So don’t give up hope- By the way, the hospital staff encouraged me to write a small article about hope for the Holidays. I know there is No holiday in sight, but some of the article might be useful. And by the way, YOU are giving hope to others by reaching out. Take car my friend.
I haven’t posted for a while. Been going thru tests and treatments. I have had dizziness and blurry vision for a very long time. I think my doctors and family have given up. I am ready to.
Liked by Parus, grandmaR
@ryman — I merged your post with this discussion you were participating in before, so that you could connect with some members who knew some of your story. I am so sorry you are feeling like giving up. Sounds like it's been a very discouraging road with the dizziness and blurry vision, and not getting answers.
I also thought that some other members who have talked about dizziness might have some suggestions for you on that and the blurry vision, and what to possibly do next, like @amandacw @klhe @aesmayo01 @techi @bellagirl.
This is definitely important for your quality of life to improve and get your ability to drive back. I'd echo what @grandmar asked: is there a possibility of getting another opinion?
Liked by Colleen Young, Connect Director, Teresa, Volunteer Mentor
@ryman Many of us here have felt the same way and it is painfully uncomfortable. I will not bombard you with all of the pretty words, preach at you or any of these things I oft hear. You are in a hard place. It is where you are now and I can accept thus.
I do not know your situation. If you are comfortable with sharing more there may be others than can relate to you.
Liked by Lisa Lucier
You mentioned you were having one more test to rule out (or rule in) the "tiny dot" in your T-spine. If you are comfortable sharing more about this, what type of test is it? I wish you well and hope that this test is far less painful that the Myelogram CT that you had earlier this week. I would like to know how this turns out. I hope you will post again.
Liked by grandmaR
Thank you. It is terribly discouraging. And even more so since my family has pretty much given up. My grandson used to go to apts with me, push for answers and speak up for me. But he has lost interest after so many tests and treatments. He really doesn’t want to hear about it anymore.
Thank you. My daughter and grandson both have very busy jobs and after so many tests and treatments they don’t seem too interested. Since I can’t drive and all the specialist are far away, I can’t really look for another doctor. My neurologist seemed very concerned but when I saw her two weeks ago she seemed to be brushing me off. All she offered were antidepressants and I have tried way too many of them. I can send her and my primary messages which i plan to do. I suppose if all else fails, whatever my problem is it will eventually land me in the hospital.
I have been living the same way for two years now. I woke up from back surgery this way. I no longer can drive nor work. I live as a recluse because my balance stinks and I’m scared of falling. I have went broke going to so many doctors and numerous test with no answer. I hate living this way.
@ryman I am so sorry how you feel, it is frustrating. Some doctors don't understand when you say you have dizziness. I have definitely been there and still going through. I found out l was having some issues with some of my meds and l have talked to my doctors about it. A couple of my meds were recalled and l daught that before the doctors. I am not saying l don't still having problems with dizziness because l do have a liver condition and the doctors here are not up to date as some other states are. But usually l do know when l am going to be dizzy. I can't get out of bed and l have to call a family member to come to help me or l just stay in the bed until it passes. I am sti driving but if l get in the car and l am dizzy l won't drive. I don't drive on the highway but l think sometimes l might be dehydrated or didn't eat as much as l should. Last week l went to the doctor office and l just fell. I didn't feel dizzy but l just fell forward and l am so blessed l didn't knock my teeth out. And my husband was in the car waiting for me. My ammonia levels had been high and then when l went to the er they said it was low. I had to be admitted and for 2 days l couldn't get out of bed without assistance. Then they gave me a med l was allergic to and l had s reaction and right away l was told l was depressed. Then l was given aspirin and l have that on a my medical records l am allergic to it but my hematologist said it was okay to take. I know you are not suppose to have it when you have liver disease and l had a reaction. And bruises on my arms. So l just have to take it one day at a time and don't get discouraged. And l just have to pray because not everyone will understand even if you keep telling them. One nurse told me even through all you been through you are so upbeat and l told her l have too. I even had my hairdresser get mad at me when l was sick and l tried to have my sister take my place so she wouldn't lose any money. And she chewed me out but l acted like it didn't bother me because l did what was right and my health come first. So try and find out what your diagnosis is, write down all your symptoms. I have an app l log my information on. CareZone.com. You can record all your medications how you feel each day. Also you can have information passed on to family, friends and doctors. And remember you have to be your own advocate and if you have to change your doctors until you are heard then don't feel regretful because you and your health should be attended to. I hope that helps but remember to talk to your doctor with all of information.
So sorry you are having so many issues with your family, especially your family.
You should understand that when a disease or illness is not seen on the outside, people don't understand you can still feel miserable.
And when your tests say nothing is wrong (and you know you are), people sometimes feel that you (the generic you) are just looking for sympathy and attention.
Regardless of what your family does or does not believe, continue your search to find someone who can help you.
He or she is out there, you just have to keep searching.
I am not at all uncomfortable talking about most things.
After all, that is why I am here.
I had a MRI with contrast, of my T-spine.
We hope to be ruling out a tumor.
The test was a piece of cake.
They use a different kind of contrast than they use for a Mylogram.
Plus, in a Mylogram, they shoot the contrast right into the spinal canal.
With a MRI w/contrast, they either inject it or give it to use via a IV.
Funny, the tech told me the report will be ready for the doc by tomorrow, late morning.
When I asked when I can have a copy, they said next week.
Can't I see my own report?
Guess who is getting a visit from me??????????
Grandmar, I hope the test goes well for you and gives some answers.
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